The Poor House!

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Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 6/12/2009 2:02 PM (GMT -6)   
I am just venting but...

The cost of all of these darned pills is going to put me in the poor house. I just picked up my prescription for the new Apriso and it cost me $92.28. for one one month's worth! The pharmacy where I am required by my insurance to get my scripts filled cannot use the coupon for the $50.00 savings each month. Thankfully I called Salix Pharmaceuticals loyalty program and they will mail me a check if I send them a photocopy of my card and the original receipt.

Does anyone know how much Azathioprine / Imuran costs? If my blood work comes back OK, I'm going to go on that, too.

Plus all of the supplements I'm taking? Plus I should be taking probiotics but haven't gotten around to.

Holy smokes!!!! I'm going to have to get another job! (and can't quit the one that I have because then I'll have a "pre-existing condition" and won't be insurable! ahhhhh)

Again just venting. I'm sure we are all in the same boat.

Jen
Age 34
Diagnosed with UC September 2008
Current Meds:
Prednisone 30 mgs in the am, 10 in the pm
Just started taking Asacol 1200 mgs 3 x per day 5/7/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 2000 mg per day
Multivitamin


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/12/2009 2:25 PM (GMT -6)   
I feel your pain, I don't even have a diagnosis, but I have spent thousands out of pocket trying to get one. I just had to pay $400 up front for my GI Dr visit and colonoscopy fee plus 20% of the hospital charges which I have not yet been billed for.

Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/12/2009 2:27 PM (GMT -6)   
I'm on 6MP and it is CHEAP! It's a generic so with my insurance plan I pay $10 a month at Wal-Mart pharmacy. I don't know about Imuran but they are similar drugs.
  • 26 years old, married, Stay-at-home Mommy to 2 1/2 year old daughter and trying to get pregnant 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Allergy meds., Digestive Advantage Sustenex, Prenatal-U vitamin, and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 6/12/2009 2:31 PM (GMT -6)   
Mommy I hope you are right! That would be a relief!
Age 34
Diagnosed with UC September 2008
Current Meds:
Prednisone 30 mgs in the am, 10 in the pm
Just started taking Asacol 1200 mgs 3 x per day 5/7/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 2000 mg per day
Multivitamin


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/12/2009 8:34 PM (GMT -6)   
immuran is really cheap too, i think when i was taking it my copay for 3 months was like 20 dollars or something.

hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 6/12/2009 11:09 PM (GMT -6)   
Azathioprine / Imuran is expensive for me. I think I take azathioprine which is supposed to be the cheap one and I pay around $50 - I am with you being sick sucks and is expensive
Jessica 27/F
Remicade, Entocort 3/day, Rowasa ,
Apriso/4 pills
Citalopram 20 MG
Align


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 6/13/2009 9:10 AM (GMT -6)   
If you quit your job for another job, you will be covered under the new companies group insurance plan. Group plans don't deny people with pre-existing conditions. It's funny how I have no insurance and I manage to get everything for free. When I had insurance I was spending 300 a month on Canasa. Now it is free. I also get Asacol for free. I am so thankful this is possible, I would be very sick otherwise. Sometimes I find myself feeling bad for people who have to pay for their medications.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 6/13/2009 10:11 AM (GMT -6)   
I hear ya!  I hate paying for my prescriptions.  6MP for me is $65 a month, Lialda is $100.  I've tried so many medications and forked over thousands of dollars from this disease. 

Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 6/13/2009 10:54 AM (GMT -6)   
Yeah for those of us who only have major medical because we lost our jobs, this disease is a killer financially. I feel your pain.
The cost of most drugs is insaine in the US, it's a sham. Greedy jerks getting wealthy from other peoples suffering.

RH_Texas_Gal
Regular Member


Date Joined May 2009
Total Posts : 367
   Posted 6/13/2009 11:24 AM (GMT -6)   
try needymeds.org if you need prescription help. I called the manufacturer for Lialda and they said they have special programs for people who have trouble paying for prescriptions. They referred me to that website as they have a number of medications that qualify for free or reduced meds. I just have to fill out a form and have my doctor sign off on it. Every 3 months I have to repeat the process but it will be worth it for the meds. I just started this process for the first time since hubby lost his job and with it insurance. I'll let you guys know how it works. I did see other UC meds on there besides Lialda. Check with each drug manufacturer ... you will be surprised by the number of option available.

Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 6/22/2009 8:11 PM (GMT -6)   
Just an update guys:

While away on vacation I got the message from my GI's office. My blood work came back. He wants me to start on Azathioprine 100 mgs tomorrow. I picked it up today.

Thankfully this one was only $4.17 for a months worth! That is more like it price-wise!

Has anyone had to send their receipts for Apriso to Salix for the loyalty program? I can't for the life of me remember who suggested I try it. I sent my receipt about 10 days ago and no news yet. (I sent a letter with my phone, address, e-mail, etc).

Jen O
Age 34, Diagnosed with UC September 2008
Current Meds:
Prednisone currently on 20 mgs, tapering down 5 mgs every Wednesday
Will start Azathioprine 100 mgs 6/22/2009
Just started taking Apriso 4 tabs daily 6/11/2009 (SIGN UP FOR THE LOYALTY PROGRAM FROM SALIX!)
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 2000 mg per day
Multivitamin
Also tried: Remicade, Asacol, Rowasa, Cantasa


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/23/2009 3:37 AM (GMT -6)   
     This brings back memories of when my parents were still alive.  They had to pay full price for their meds because they didn't qualify for the programs.  Middle class people were the onces who suffered.  But what really annoyed me was that they would pick up their prescriptions, pay in full, come home and open their trusty little "Worse Pills, Best Pills" book.  Read about the side effects and toss the meds downstairs.  After dad passed in 95, my husband and I went down their basement and it looked like a freakin pharmacy.  Must have been six hundred bottles of pills down there....maybe only a few pills missing in each container.  They refused to take the med after reading about it.  Wonder they lived as long as they did.  They told me they were taking the meds!!!  Mom came to live with us and I made sure she understood the medicine and side effects BEFORE getting the prescription filled.  She was on dialysis so she couldn't ditty around.  Ugh....HOPE I never put my kids through that.
     We have a decent plan.  I pay 10% of the cost of mine, sometimes not even.  The 6MP isn't too bad.  I think I pay the most for the Canasa, $36 for two week supply.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 6/23/2009 4:52 PM (GMT -6)   
Don't forget to try mail order. For maintenance drugs, it can be the same price for three months worth, instead of 30 days.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow

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