How long for Remicade

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pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/15/2009 8:21 AM (GMT -6)   
Sorry if I'm asking a repeat question, but for those of you on Remicade, how long did it take to start working? I really want this to work. I started it on Thursday and am just wondering if it is going to start working any time soon or it won't be until after the next infusion or what. The urgency has actually increased since starting it and I can't even always make it to the bathroom 10 feet from my bedroom and I'm afraid to leave the house. I feel better, though, but still lots of frequency and it will come on so quick.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
30 mg Prednisone AM, 30 mg PM
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/15/2009 10:12 AM (GMT -6)   
For me, there was a difference after the second infusion. After the third, I was essentially in remission. Over the next six months or so I started to get my energy back, although it never has gotten to where it was before UC. But then I'm also 7 years older now.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 6/15/2009 2:52 PM (GMT -6)   
Mine took 3 infusions. But they also increased my dose, and now I get infusions every 6 weeks. It did the trick though. After the 2nd infusion I had a bad flare, which is why they increased it. It was that or surgery so I'm glad it finally took. Hang in there.
Diagnosed '93.


Asacol, Prednisone (tapering, at 5mg now), Remicade (every 6 weeks), Imuran


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/15/2009 3:18 PM (GMT -6)   
fargman said...
Mine took 3 infusions. But they also increased my dose, and now I get infusions every 6 weeks. It did the trick though. After the 2nd infusion I had a bad flare, which is why they increased it. It was that or surgery so I'm glad it finally took. Hang in there.


Thanks. My GI doctor said it was this or surgery, too, so I really want it to work. I hope it won't take that long for it to work for me. i feel like a bad mom
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
30 mg Prednisone AM, 30 mg PM
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 6/15/2009 4:55 PM (GMT -6)   
I noticed a definite improvement within days, but it took almost a year of infusions before I was able to finally get off of Prednisone and really feel like I was in remission. Even so, I am not 100%, but I'd not give up the Remicade for anything. It has been a real godsend and I am *almost* "normal.

At some point I do feel I will behaving my colon removed, we shall see.
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

16 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 6/06/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


Canadian Chick
Regular Member


Date Joined May 2009
Total Posts : 60
   Posted 6/16/2009 6:30 AM (GMT -6)   
Mine also took 3 infusions before I noticed any significant difference. Hang in there. I know it's hard, I relapsed badly after having my son last April too.

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/16/2009 7:35 AM (GMT -6)   
It took me 4-5 infusions plus the right combo of rectal meds to reach remission. If it doesn't start working right away, don't worry! I actually did worse and had to schedule surgery, until we realized that the only inflammation left was in my rectum.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Forvia, Vitamin D, Calcium, Prozac, Turmeric


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 6/16/2009 12:49 PM (GMT -6)   
Hang in there. You're not a bad mom--we all just do what we can.
Don't think you're the first mom to breastfeed on the toilet!! :)
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/16/2009 12:51 PM (GMT -6)   
AmyWaffle said...
Hang in there. You're not a bad mom--we all just do what we can.
Don't think you're the first mom to breastfeed on the toilet!! :)

haha, i totally just did that

good news, I really am feeling better today and yesterday. I am still having quite a bit of frequency but BMs are actually starting to form for the first time in a long time and I have no bleeding. Now if it keeps up when tapering the Prednisone, I will be so happy
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
30 mg Prednisone AM, 30 mg PM
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success

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