Could this be the beginning of remission?

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Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/15/2009 10:24 AM (GMT -6)   
I started my Meslamine enemas again a week ago.  My mornings are almost worth waking up for the last couple days.  Hardly any gas at all, and only 1bowel movement when I first get up.  (which I figure some is the result oif last nights enema) No middle of the night except to urinate.
My mornings used to be spent in the bathroom.  In out, in out. Gas, gurglings and D. For at least the first hour or two.
I still have urgency after I eat(unless I take Lomotil), but bathroom trips are down to maybe 3 a day.
No blood,(thats been gone for over a month) and stools are not D, but not really formed.  Kind of short and thin.(where else could we ever say this  LOL)
All I need is the urgency to let up(as its hard to plan a trip to the zoo when you have to find a bathroom that fast), and I would be a happy lady.
 
Does remission happen over a period of time?  Could I be in the beginning of it?  (hoping hoping)  Is urgency the last to go?
 
Ulcerative proctitis. On Asacol 3 3x a day,  Started Meslamine enemas nightly again.
  Doc now has me on prescription Pepcid, and  Questran.  Just started that 05/15, so will wait and see.
 Update: Questran made me worse, so I stopped taking it.
 
Urgency is still my biggest problem.  Blood is now gone.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/15/2009 11:49 AM (GMT -6)   
I think remission does slowly develops. I mean, the inflammation wouldn't get suddenly better, so it seems as it slowly heals, the symptoms would slowly disappear. That's what was happening with me, until I got a tummy bug that set me back and I had to go on pred. The "remission" was sudden!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/15/2009 11:58 AM (GMT -6)   
Yeah it can be slow at times. It's amazing how much relief you can get from just a bit of healing.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 6/15/2009 11:59 AM (GMT -6)   
I was going to ask a similar question.

What do you guys define as remission? My doctor (the old one or the new one) has never really been able to tell me what "remission" is.

I have been tapered from 40 mgs of Prednisone to 30 mgs since Wednesday. No adverse effects so far. I started Apriso on Friday. As far as I know, no adverse effects from that, either.

I have been getting up early (around 5:00 am) needing to move my bowels, soft formed stools, usually 2 or 3 times in the morning. This morning I woke up, didn't have to go for more than an hour and at that, I really had to pee and just sat there for a few extra minutes for my BM. I haven't gone since. I haven't had bleeding in 3 weeks or so.

Since I'm still on the 'roids does that mean I'm not in remission? I'm still waiting for bloodwork because my doc wants me to go on Imuran and he needed to see some numbers first. I'm guessing that they had to send it off far away somewhere as I had the blood drawn on Wednesday and I haven't heard back yet. Do I need the Imuran if I am coming off the prednisone OK and getting better each day?

This is so all new to me and I'm glad you started this thread Joylu!

Jen
Age 34
Diagnosed with UC September 2008
Current Meds:
Prednisone 30 mgs in the am, 10 in the pm
Just started taking Asacol 1200 mgs 3 x per day 5/7/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 2000 mg per day
Multivitamin


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/15/2009 12:10 PM (GMT -6)   
I wouldn't consider you to be in remission b/c you're still on pred. I consider remission to be no pred and normal BM's for you. A lot of people say that the BM's all have to be well-formed, but I wasn't one to poop big hard turds before UC anyway. My stools were generally soft, probably b/c I drink a ton of water and eat a lot of fruits and veggies every day.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 6/15/2009 3:49 PM (GMT -6)   
I agree with the previous poster in that you're not in remission until you've successfully tapered from the pred.  I'm currently at 5mg (started at 60mg), and haven't had blood or urgency for 3 months.  In 4 weeks, I should be pred free.  I will declare myself in remission after that.  Even though I feel like I've been there for a long time.
 
Good luck Jen and Joylu! 
Diagnosed '93.


Asacol, Prednisone (tapering, at 5mg now), Remicade (every 6 weeks), Imuran


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/15/2009 9:38 PM (GMT -6)   
But I've never been on Pred.
Ulcerative proctitis. On Asacol 3 3x a day,  Started Meslamine enemas nightly again.
  Doc now has me on prescription Pepcid, and  Questran.  Just started that 05/15, so will wait and see.
 Update: Questran made me worse, so I stopped taking it.
 
Urgency is still my biggest problem.  Blood is now gone.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/15/2009 9:52 PM (GMT -6)   
I was talking to Jen O, and I assume that fargman was as well...sorry to have confused you!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/15/2009 10:03 PM (GMT -6)   
Joylu - it sounds like you are on your way to remission!
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Trying Applied Kinesiology & supplements.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 6/16/2009 4:38 AM (GMT -6)   
Joylu..your flare is on the way out by the sounds of it...I wouldn't call it remission, but definitely on the way

Regarding urgency...since you just started the Rowasa recently, I would think that it should improve daily....

By urgency, you mean the minute you have a feeling, you have to go now...or meaning you can hold it for a short while and then must go soon?

Happy to hear you're feeling much better.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/16/2009 9:02 AM (GMT -6)   
Quincy, when I am eating lunch, at times I have to get up in the middle of eating and rush to the bathroom. But usually now, that will be the last one of the day.
It happened yesterday after I took a couple bites but then I didn't go again for the rest of the day. But had that lunch been somewhere that had a bathroom that was occupied, I would have been in trouble.
I was thinking it maybe is my loss of gallbladder doing this, but my Doc gave me Questran to try, and my goodness I had to take it before bed, and I was up all night long with gas and D.
I finally quit taking it.
Ulcerative proctitis. On Asacol 3 3x a day,  Started Meslamine enemas nightly again.
  Doc now has me on prescription Pepcid, and  Questran.  Just started that 05/15, so will wait and see.
 Update: Questran made me worse, so I stopped taking it.
 
Urgency is still my biggest problem.  Blood is now gone.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 6/16/2009 2:00 PM (GMT -6)   
I suggest you take a fibre supplement...I've been having success with Metamucil capsules and take them with my two major meals of the day (I only eat brunch (or breakfast) and supper...but do snack afterward..lol!

The urgency you explain is because eating triggers peristalsis, and whatever is in the rectum will have to be purged...I don't see it as a biggie, however.

Are you having mucus type stuff or are you having a formed stool during that time?

Yep,, could be the gallbladder (lack of)....but i do think that the fibre supplement might be a plus.

As well....consider probiotics.

hope you have a feeling better day!

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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