Hey everyone. I feel for you all suffering from the colitis. I was diagnosed in 2000 in the month of September and I'm guessing that August/ September are the months that the condition reall kicks in for you guys too. My Doctor could not tell me why that was (what can doctors tell you about colitis except of course "take more pred steroids") They really know nothing and won't even consider diet as a factor!
Now, there are things that you can do to help. The best thing you can do is probably not very practical for most of you and that is: move to Asia. I know how that sounds but this is what I did and have never had a bad year (no symptoms what so ever) in the 5 years ive been here. Everytime I go back to England bang there it is 4 months on the toilet up to 30 times a day with only a few seconds warning! Now let me tell you that my colitis was SEVERE in every sense. One of the worst cases my specialist has ever seen. When i was diagnosed my red cell blood count had fallen to 5.3 (should be 14) my blood irritation level was 145 (should be 0-10) I am six foot three and my weight was 57 kilos! so you can imagine waht i looked like. The doctor wanted to remove the whole bowel but didnt because he didint think i would survive the surgery in that condition. So i recovered the normal way: 12 preds a day and 6 asacol for many months and I had the moon face and the thinning of the thighs and other pred side effects. That was 2000. When i recovered i went travelling around the world in 2001(mostly Asia) and did not get sick at all indeed it was as if I had never been sick at all. When i went home 2002 the colitis was waiting for me and i was taken back to hospital and met a new doctor. He told me the only food i could intake was boiled vegetables, fish, boiled potatoes, rice, chicken not even fruit! Here's what I did: I checked my self out of hospital in a wheel chair(with about 5 or 6 doctors and nurses trying talk me out of it all the way) I went home and booked the first flight to thailand. As you can imagine the flight was rough. As soon as we took off i went to the toilet and just sat there for hours making sure that when i needed to rush i wouldnt mess myself in the line for the toilet.
So i arrived in bangkok and started to relax. I even had a beer and a curry!!!!! That was it after four days I was cured i threw the preds in the bin and got a job as an English teacher and never ever thought about colitis again until i went back to england in 2006 for a family funeral where yet again i got sick in August. I left for Thailand and China yet again living as a teacher and am still here with zero effects!!!
Nobody understands colitis but i will tell you my thoughts. Certain things bring it on like fermented foods, stress, possibly leaf molds in the air in the autumn, alchohol etc but the root cause is in the mind. Any negative thoughts (for me the feeling of life passing me by and the feeling of working just to stay afloat) cause colitis in the predisposed. Once i was away from those feelings and happy and fulfilled the symptoms just vanish.
My advice is if you cant obviously move to Asia is to holiday there at the most sensitive time of year, switch to a rice based diet (this works) and try meditation and relaxation techniques to improve your mental landscape. Most illness manifests from the mind.
I hope you all feel better. Miracle cures can happen as for me colitis is just a distant memory.