The Incidence of UC is increasing: IT SEEMS!

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blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/16/2009 1:38 AM (GMT -6)   
It's so disappointing to hear so many of us are suffering/have suffered from this disease.  It seems like the number of people having this disease is increasing and will continue to increase.   I visit these forums everyday and it appears that we always have new members.   Obviously, this disease is getting recognition.  We now have a commercial from the CCFA highlighting a hockey player(Fernando Pisani) with UC.  We've made it to the mainstream, and I foresee this problem only getting bigger.  We have to look at root causes.  In my case, I'm the only one who has UC in my family but many relatives have IBS, and other digestive problems.   
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/16/2009 8:16 AM (GMT -6)   
I"m not sure if the incidents are increasing or because there is more access to information and discussion boards that more people are coming out and participating in forums. I had UC before the advent of the internet. We had a local CCFA meeting for Crohn's and UC patients in the small town I live in. We had about 7 members but we knew there were about 300 people in town with the disease (based on our local GIs count). Most of those people with IBD were not interested in attending a support group meeting because most of them were managing their respective diseases. It's true of this site too; most people here are struggling with their disease but the vast majority of those diagnosed with UC are not on these boards.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 6/16/2009 9:16 AM (GMT -6)   
The GI doctors are always booked up for months it seems in my area.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/16/2009 12:07 PM (GMT -6)   
I agree with Sue, that it's likely because of the internet and such that it seems there are more and more cases.

It's just like the argument that many people make concerning the supposed link between the rise in autism cases and vaccines. I think that more kids are being diagnosed under the autism "umbrella" that there were 10-20 years ago because kids who were once just thought of as "weird" are being diagnosed with mild autism or Asperger's syndrome.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/16/2009 12:45 PM (GMT -6)   
There are more new cases of IBD DX every yr and that is a fact in itself regardless of the number of new people on forums.
 
see this link....
 


My bum is broken....there's a big crack down the middle of it! LOL :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/16/2009 12:51 PM (GMT -6)   
The Facts:

The Crohn's and Colitis Foundation of America estimates that over 1,000,000 people in America alone are afflicted with IBD. The Los Angeles Times recently reported that the number people afflicted with Crohn's and Colitis could have increased to up to 750,000 per illness. Thus estimating that the one million number could've increased 50%.

It is estimated that there are approximately 4,000,000+ cases of IBD worldwide.


The Lost Angeles Times recently reported that 55 people are diagnosed with Crohn's everyday in America. Taking into the Crohn's Foundation's statistic of the number of people afflicted with Crohn's and Colitis are equal, an astonishing 110 new people are diagnosed with Crohn's everyday in America.


Men and women are equally afflicted (in numbers).

Medical reports report that adolescents diagnosed with the condition have a 50-70% chance of having at least one surgical within 15 years of diagnosis.

Medical reports also show that IBD is more common in whites than non-whites. It is also very common in Jewish families.

Medical reports also show that height deficits are common in approximately 40% of the cases of Crohn's.

In 1998, a drug by the name of Remicade was FDA approved for the use in Crohn's disease. This was the first drug approved by the FDA for the use in Crohn's in nearly 30 years. {This is pure evidence that there is not enough research being performed}
IBD often goes undiagnosed or misdiagnosed. Many people worldwide are unaware that they are afflicted with the condition because of the lack of awareness amongst the public as well as physicians.

Former President Dwight D. Eisenhower had IBD. He frequently consulted Dr. Burrill B. Crohn, the founder of Crohn's disease. His condition was not highly publicized.

about 20% of people with Crohn's have parents or siblings with some form of IBD.

IBD accounts for approximately 152,000 hospitalizations each year.

The cost of missed work days for IBD patients is estimated to be at least a one billion dollars per year.

Approximately 20 million people in America are afflicted with some type of Inflammatory Bowel Syndrome (IBS) or intestinal complications.
IBD is not only restricted to humans; it's found in cats, dogs, and other animals as well.
My bum is broken....there's a big crack down the middle of it! LOL :)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 6/16/2009 10:19 PM (GMT -6)   
Congratulations, Blueclassring, on completing your pharmacy studies!!!!!!!!!! That's terrific news. RE stats on IBD: the increased use of endoscopy worldwide has likely led to a rise in diagnosis of UC & Crohn's. In the U.S. accurate stats on demography are still hard to compile because the country, unlike Canada, does not have national health insurance or reporting of patient info by location that goes with it. about Eisenhower: his health got publicity sporadically while he was in office, but at that time Crohn's was usually called "illeitis", and sometimes "regional enteritis". Ike must have had stricturing because he did require surgery at one point during his time as President, and I think it was referred to as "blockage" in the press. What really is distressing about contemporary trends in IBD reporting is the apparent increase in childhood onset of illness. When I was 1st diagnosed in 1980, IBD was still thought of as mainly diseases of young adult onset. Now if I mention to colleagues or acquaintences that young children are being diagnosed with UC or Crohn's, they really take notice and agree that IBD is truly worthy of research grants & govt.-funded initiatives. / Old Hat (30 yrs with left-sided UC ... [etc.])

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/17/2009 12:46 AM (GMT -6)   
I wonder if IBD has anything to do with the increasing consumption of processed foods, mainly high fructose corn syrup. Old Hat, you do raise some interesting points.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/17/2009 11:16 AM (GMT -6)   
blueclassring said...
I wonder if IBD has anything to do with the increasing consumption of processed foods, mainly high fructose corn syrup. Old Hat, you do raise some interesting points.

 

It certainly wouldn't surprise me if it does.

 

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 6/17/2009 10:03 PM (GMT -6)   
The increased use of antibiotics that have entered the food chain ... / Old Hat (30 yrs with left-sided UC ... [etc.])

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/18/2009 1:29 AM (GMT -6)   
Yes, the overuse of antibiotics may have contributed to bacterial overgrowth in the small and large intestine. It is problematic and is largely implicated in causing pseudomembraneous colitis.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 6/19/2009 5:42 PM (GMT -6)   
I totally agree with the antibiotic theory. Another article I read said they found a virus in the inflamed tissue of UCers causing the autoimmune reaction. This supposed virus has a similar structure to the herpes virus, also known to cause the immune system to flare and attack tissue and, also goes into remission. Stress also make herpes worse. Interesting, no?

Congrats on your success blueclassring!!

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/19/2009 7:56 PM (GMT -6)   
Thanks TPT. Wow, if you could reference that article I would love to read it.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 6/20/2009 4:33 AM (GMT -6)   

There is a huge increase in the number of IBD cases in South Africa. A few years back it mainly a 'jewish disease' in South Africa but these days it's spreading amongst both white and black South Africans. I had to wait 7 months for a colonoscopy.

The incidence of IBD is increasing in the big cities in South Africa but not in the rural areas. Maybe it's the fast food lifestyle in the big cities

 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 6/20/2009 5:10 AM (GMT -6)   
     This certainly is interesting.   As a child I was given antibiotics from our family doctor every time I even had the sniffles.  Little did we know huh?  My paternal grandmother died in 1952 with "cancer of the bowel".  Now I even wonder if she had cancer.  Her symptoms, as my mother described them to me years later, is what I am experiencing now.  Bleeding, diarrhea, etc..   Back then bowel issues were sort of shoved under the rug.  No one wanted to talk of such things.  Too think poor granny suffered so for two years.  I can still see her practically withering away in our back bedroom.  Scary.  My dad suffered for years from diverticulitis and was operated on for it in the early 90's.  He passed a few years later but his coloring was grey and I think he may have developed cancer of the colon but he never wanted to go to the doctor until the very end.  He was extremely stubborn.  Mom refused an autopsy, so I will never know the facts.
     I do think that our diet plays a huge role in this too.  Too many processed foods, all kinds of preservatives. 
     I'll tell you what.  Once I am able to pull myself out of this flare, I'm gonna watch my diet like a hawk!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 6/21/2009 5:55 PM (GMT -6)   
Hi Blueclassring,
I found a link to the article you were asking about.

http://simplyhealingclinic.com/articles/crohns-colitis.html

Best,
TPT

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 6/21/2009 9:15 PM (GMT -6)   
I had a look at the article-- written by a naturopath who says that 90% of UC cases are caused by CMV. The concept of viral cause for UC was kicked around on this forum a couple yrs ago, but I've not seen any references to medical research studies citing viral cause. It does seem like a possibility given the trouble that attacks of shingles can randomly cause, and the fact that UC looks like an interior rash when seen magnified thru a c-scope or flex-sig. This naturopath claims to be a microbiologist with a PH.D. / Old Hat (30 yrs with left-sided UC ... [etc.])

imedbone
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/24/2009 11:23 AM (GMT -6)   
blueclassring said...
I wonder if IBD has anything to do with the increasing consumption of processed foods, mainly high fructose corn syrup. Old Hat, you do raise some interesting points.



Since being diagnosed with UC about a year ago, this has been one of my main contentions as well. I am near certain that all of the crap foods that are available to us to eat (they're practically all there is now) in western countries is killing us slowly. I immediately started the SCD diet and this is what brings it to your attention that "good food" is so hard to find. It is sadly amazing that nearly every food item of the thousands on all those shelves in the grocery store has some sort of laboratory concocted additive in it. Luckily I live in a big city in SoCal so we have more and more healthy food stores to choose from- for a cost of course (expensive!).

Even the foods that I don't eat like breads, I still read the ingredients since my wife and kid eat them. It amazes me that almost every bag of bread now has HFCS in it, as well as all that other crap that doesn't need to be in bread. I can't help but wonder what the prevalence of IBD was pre 1970's when HFCS started coming into mass use, or what the prevalence was pre-WW2 before we started developing all these "advanced" foods.

I watched the documentary "The Future of Food" on Hulu.com the other day and it is a GOOD SHOW. It noted that 97% of the worlds edible plants/veggies were extinct by around 1900! Has anyone else heard of this claim? Heard the new movie "Food Inc" is coming out too, which is supposed to be full of great info as well...

Too bad none of us were into reading food ingredients before we got sick aye?! (of course the people who did knowledgeably read food ingredients aren't sick with IBD either are they)
Diagnosed UC 9/2008. Not a smoker, not a drinker and led an active lifestyle (on my feet 12hrs/day) prior to diagnosis. Prescribed antibiotics 2x in the 6 months preceeding first flare for other issues, unfortunately with no knowledge of their side effect to cause dysbiosis. Ate processed and fast food a lot in the time preceeding first flare. Ate few fresh & raw foods preceeding first flare. Asacol actually "brought on" first bloody flare- was only loose stool that tested for blood occult before that. Prednisone cleared up bad flares in under 2 weeks along with SCD diet. Seems to me now that the root cause of all UC is some type of bacterial overgrowth (whether good or bad bacteria or yeast).


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/24/2009 11:42 AM (GMT -6)   
There's a lot of crap in the food chain, and a lot of good reasons to eat well, but personally I doubt HFCS is a cause of uc. (It may add to the irritation of a flare.) I don't follow the SCD but I don't eat much HFCS either. Mostly vegetarian, cook with "real food" almost every day, still have uc.

If HFCS were the culprit you'd see a rise in IBD since its invention and widespread distribution, and the numbers don't really show that. Instead the numbers have risen from the 30s and stayed fairly steady. One may be more aware of it, but that's likely attributed to more information availablity.

HFCS is definitely a symptom of a society uninterested in what it eats, a society that wants things to be cheap, a society removed from the realities of food production, and a society very much willing to let farm subsidies drive its consumption, but I don't think HFCS can be pegged to a rise in IBD.

I mean, it suddenly seems like people are having eight kids or more!

imedbone
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/24/2009 11:56 AM (GMT -6)   
Old Hat said...
I had a look at the article-- written by a naturopath who says that 90% of UC cases are caused by CMV. The concept of viral cause for UC was kicked around on this forum a couple yrs ago, but I've not seen any references to medical research studies citing viral cause. It does seem like a possibility given the trouble that attacks of shingles can randomly cause, and the fact that UC looks like an interior rash when seen magnified thru a c-scope or flex-sig. This naturopath claims to be a microbiologist with a PH.D. / Old Hat (30 yrs with left-sided UC ... [etc.])


I've also questioned this as well. It seems highly likely that CMV/Herpes-family can be a cause given simply given it's known numbers. Maybe taking antibiotics kills our immune system and allows CMV to take over?

Interesting that the NY Department of Health says of it; "Anyone can become infected with CMV. Almost all people have been exposed to CMV by the time they reach adulthood." I wonder how many people with UC actually have some type of Herpes-family virus? I wonder how it would get in the gut though? How many have performed oral sex prior to UC? How many have been served food by a recently foreign born/raised food worker? How many have been served food by preparers that didn't wash their hands or wear gloves. Just a bunch of questions/data that need to be ruled out...

I wonder who has the most comprehensive historical data on UC (ideally pre-WW2)? I am very interested in finding the history of this "disease". Maybe the military, hospital, or doctors organizations have it?
Diagnosed UC 9/2008. Not a smoker, not a drinker and led an active lifestyle (on my feet 12hrs/day) prior to diagnosis. Prescribed antibiotics 2x in the 6 months preceeding first flare for other issues, unfortunately with no knowledge of their side effect to cause dysbiosis. Ate processed and fast food a lot in the time preceeding first flare. Ate few fresh & raw foods preceeding first flare. Asacol actually "brought on" first bloody flare- was only loose stool that tested for blood occult before that. Prednisone cleared up bad flares in under 2 weeks along with SCD diet. Seems obvious to me that the root cause of all UC is some type of bacterial/organism overgrowth (whether good or bad bacteria, yeast, etc).

I wish there were an open, public, online, lifestyle/demographic questionaire that could log/categorize/post UC patient's answers to (previous)lifestyle questions so that we can truly figure out the ROOT CAUSES of this thing out OURSELVES. Just seemingly miniscule random stuff like "what you ate", "your age", "how close you live to a major roadway", "your zip code", "drugs taken prior to UC"... we need the big picture data for ourselves to analyze with no industry (food/drug/medical/etc) interference. Anybody knowledgeable and interested in how to do this please let me know- I want to do this, and it seems it would be so simple for someone who is familiar with website creation...


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/24/2009 12:18 PM (GMT -6)   
What is going on here? HFCS in our breads. 99.9% of the foods in the local grocery store I can't eat because of this one additive. It will be interesting to see where this goes in the coming years.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/24/2009 12:51 PM (GMT -6)   
HFCS is cheap...that's why it's used instead of sugar in products that need a sweetner. I agree with everything seconder said about it. I like to avoid it, but not because I think it causes UC. I just prefer to use sugar or honey to sweeten my foods.

Part of the reason DH and I make our own bread is to avoid HFCS and the preservatives that are in store-bought bread (I personally think it's disgusting how long store-bought bread remains mold-free). We have a bread machine, so it really doesn't take any additional time.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


imedbone
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/24/2009 7:52 PM (GMT -6)   
fruitgirl said...
HFCS is cheap...that's why it's used instead of sugar in products that need a sweetner. I agree with everything seconder said about it. I like to avoid it, but not because I think it causes UC. I just prefer to use sugar or honey to sweeten my foods.

Part of the reason DH and I make our own bread is to avoid HFCS and the preservatives that are in store-bought bread (I personally think it's disgusting how long store-bought bread remains mold-free). We have a bread machine, so it really doesn't take any additional time.


I still believe that HFCS only contributes to the decline of human health. Here's a good article on it:
http://www.westonaprice.org/modernfood/highfructose.html[url]
and this one on processed foods:
http://www.mcvitamins.com/Health%20Opponents/processed_foods.htm[url]

Also maybe look into old world fermented breads such as these I found:
http://grindstonebakery.com/organicwholegrains.htm
[url]
Diagnosed UC 9/2008. Not a smoker, not a drinker and led an active lifestyle (on my feet 12hrs/day) prior to diagnosis. Prescribed antibiotics 2x in the 6 months preceeding first flare for other issues, unfortunately with no knowledge of their side effect to cause dysbiosis. Ate processed and fast food a lot in the time preceeding first flare. Ate few fresh & raw foods preceeding first flare. Asacol actually "brought on" first bloody flare- was only loose stool that tested for blood occult before that. Prednisone cleared up bad flares in under 2 weeks along with SCD diet. Seems obvious to me that the root cause of all UC is some type of bacterial/organism overgrowth (whether good or bad bacteria, yeast, etc).

I wish there were an open, public, online, lifestyle/demographic questionaire that could log/categorize/post UC patient's answers to (previous)lifestyle questions so that we can truly figure out the ROOT CAUSES of this thing out OURSELVES. Just seemingly miniscule random stuff like "what you ate", "your age", "how close you live to a major roadway", "your zip code", "drugs taken prior to UC"... we need the big picture data for ourselves to analyze with no industry (food/drug/medical/etc) interference. Anybody knowledgeable and interested in how to do this please let me know- I want to do this, and it seems it would be so simple for someone who is familiar with website creation...


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/24/2009 9:08 PM (GMT -6)   
I'm in agreement that HFCS is detremental to our health. It's artificial(ie generated in a laboratory), and the human body has never been exposed to it. My disease is in fact traceable to eating rice, soy sauce, potatoes, or any complex carbohydrates. I'm doing fine as we speak since I've gone back on the SCD.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 6/24/2009 11:49 PM (GMT -6)   
Yeah it seems more people are coming down with this, but I wouldn't believe it until I saw some numbers.

Age: 31
Location: Missouri
Diagnosed with UC in 1997.
Medications: Mesalamine rectal meds, back on 100 mg Azathioprine, Lialda increased cramping & bms no longer taking
 
 
 
 

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