Colitis and problems in the morning.

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Jstaats
New Member


Date Joined Mar 2009
Total Posts : 10
   Posted 6/16/2009 7:11 AM (GMT -6)   
Guys I have colitis and I seem to do pretty good with Asacol ( 9 a day) and Azasan ( spelling ?? take 150 mg a day).  I am having 6-7 bm's a day but I seem to be really bad in the morning.  I seem to go a lot from 7am-10am , 10am-noon ( better but usually 1-2).  After I eat in the afternoon I usually go maybe 1-2 until I go to bed at 10-11pm at night.  I just had a my doctor look again and said I look good but there is some irritation on the low portion of my colon.  I am overall happy but I find myself nervous in the morning and reading more about the lower portion I probably do have fears that I will soil myself.  I am in outside sales and I do my best with it but just looking for some advice or any one else out there with the same problem.  I try and not let it effect me but I constantly think about it and get really nervous in situations where I know there is not a bathroom not readily available.  Like I said in the afternoon I really do very well and the tension goes down alot. 
 
 
Thanks,
John

Blue5
Regular Member


Date Joined Jul 2008
Total Posts : 20
   Posted 6/16/2009 7:23 AM (GMT -6)   

John,

My BM's are less then yours but I too have issues in the morning. I talked to my doctor about it and she said she has heard this quite often and thinks it is because we are some what "backed up" so to speak while we are sleeping so tthen in the morning everythign becomes urgent. One of the things I do is after my first BM I drink a large glass of water...this seems to add pressure or I am not sure what but within an hour I have to go agian which helps because all of this takes place while I am still at home getting ready...then I seem to be okay for a couple of hours and then need to go again. My other question to you is 6-7 times a lot? My GI said that is too much because I am was going that many times too. She said remission is considered when your BM's are 3 or less a day...to me right now that is like wishful thinking, but I am soon to start Remicade...I have lost a lot of weight too so our situation may be different but just make sure you are actually in remission and not just somewhere in the middle...actual remission may help your urgency problems. Good luck.

Blue5 - 30 year old female


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/16/2009 7:55 AM (GMT -6)   
John, ask your doctor for a prescription for Lomotil. It has been a wonder for me when the Immodium quit working.
You can take up to 4 a day, but I have never needed more than 2 for a really long day out.
Ulcerative proctitis. On Asacol 3 3x a day,  Started Meslamine enemas nightly again.
  Doc now has me on prescription Pepcid, and  Questran.  Just started that 05/15, so will wait and see.
 Update: Questran made me worse, so I stopped taking it.
 
Urgency is still my biggest problem.  Blood is now gone.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/16/2009 8:29 AM (GMT -6)   
I get up 2 1/2 hours before I need to leave. Take a lomitil as soon as my feet hit the floor in the morning. Works well.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/16/2009 8:31 AM (GMT -6)   
i always go more during the night and in the morning
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
30 mg Prednisone AM, 30 mg PM
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Jstaats
New Member


Date Joined Mar 2009
Total Posts : 10
   Posted 6/16/2009 9:59 AM (GMT -6)   
The funny thing is its not diarreha its solid. I can sit down for 20 minutes and sit down for 2 minutes and it does not seem to matter. I pretty much do the BM and then I am feel great and empty but in 30min/ 1 hour later its like I held it all night long and the urgency is there. Some of them are just a small sample and then others are large sample. I do not remember a time in my life when I was normal going 1-3 BM's times a day. I might need to call him and get the lomitil. Thanks for the help and any other replies thank you in advance.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/16/2009 11:04 AM (GMT -6)   
Have you tried any rectal meds? I think a mesalamine enema could do a lot to heal up that lower portion of your colon.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 6/16/2009 12:01 PM (GMT -6)   
Sorry to hijack the thread--but I had no idea immodium could 'stop working.' Is that just for some people? After how long?
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 6/16/2009 12:04 PM (GMT -6)   
John--about your morning problems, I find the 'stress' of getting out of the house and getting to work (and dropping my kids off and packing lunches, etc etc) seems to be a big part of why my mornings are spent in the bathroom. I get up super early so I can take my time, and then I wear a diaper (I know!) at least until 1 pm. Having it on takes away a little of the anxiety of stressing about where the closest bathroom is and therefore I think it reduces the trips (by reducing the anxiety about it.) I hope that makes sense. It's not my preferred way to live of course. But we do what we can.
Good luck.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30411
   Posted 6/16/2009 12:24 PM (GMT -6)   
It's normal that once you wake-up, the rest of you does as well. The added pressure on the sigmoid will send the stool in there to the rectum.

Now, the issue of having to go more often .... you're flaring. You should be on rectal meds for sure...and I would say the word for description should be inflammation..not "irritation".

You can consider to take fibre supplements to bulk and soften the stool as well as to "exercise the colon"....that will help get back the rhythm of peristalsis.

As well...rather than imodium or lomotil, ask the doc for a much milder antispasmodic such as dicyclomine...low dosage of 10mg at night will help somewhat.

Rectal meds...and the fact that you're still flaring, expect to have urgency. It is what it is....

Taking colonic imobilisers will only give you a false sense of having things controlled...but it'll do nothing for the inflammation.

You can also consider to take probiotics. No, don't consider...do start to take them.

Hope you feel better soon.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/16/2009 1:57 PM (GMT -6)   
For myself, regardless of my flare being milder, moderate or severe and even with taking probiotics and fibre supplements my issues are still the worst in the am...before I got sick I never had to have a bowel movement as soon as I woke up, I usually didn't have one til around noon or later in the day and I never ate breakfast then either so going at noon had nothing to do with eating breakfast...having the worst urgency in the am seems to be the norm for the majority of IBDers for the most part, chalking it up to it being the nature of the beast.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 6/16/2009 6:14 PM (GMT -6)   
most of my issues with the toilet are at night, during night/sleeping and in the morning for sure.

not so much during middle of day.
nights and mornings.
steph - 33 - female - gold coast australia - UC since 2000
was in remission until i quit smoking 5 weeks ago  o.O  now im flaring like a solar flare!
waiting for blood test to see if i can start imuran
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
just finished 3 months of prednisolone (worked) and now back on 40mg a day (ick)
quercertin tablets, tumeric capsules, vitamin d3, enteric coated fish oil
pre-conception vitamins and minerals (cuz we trying to make a baby)
oxycontin for pain every 4 hours.  plastic bags in the loo from the involuntary puking.
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.
 
 
 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 6/16/2009 7:22 PM (GMT -6)   
My colon is especially unhappy in the morning....I go a few times after waking up, then no matter what, as soon as I get ready to leave I have to go again...sometimes at Sheetz while getting coffee...sometimes in the woods just a few hundred yards from work...most of the time I make it though...

I can empathize with the outside sales - I did it for a few years and it was a challenge.. I did the same as others do - wake up early and get my colon settled...but you always have to watch what you eat the night before, etc...very tough game...

Keep a plastic bag, or small box or something to squat on in case of a severe emergency...sounds drastic but it sure beats loading your drawers...
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Left sided UC, most recent scope 5/20/09 UPMC Pittsburgh Presbeterian
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 6/16/2009 7:36 PM (GMT -6)   
Even when I'm not actually flaring, I seem to go once or twice in the morning, usually just after I get up or eat breakfast.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently in remission
Currently taking Asacol (3x/day) and Calcium/D supplements


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5169
   Posted 6/17/2009 9:28 PM (GMT -6)   
Yup, the colon hates to get up in the AM-- so it takes out plenty of spite on us! It's best to put on disposable underwear like Depends if/when you absolutely HAVE to leave home feeling like more bms are on their way down. They not only reduce anxiety, but they also keep your clothes from getting seriously messed! Make yourself an emergency take-along kit with some wet-wipes & a change of underwear, too, which should help to calm your fear of "accidents". Hang in there! We all go thru these AM blues, especially when flaring. / Old Hat (30 yrs with left-sided UC ... [etc.])

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 6/17/2009 9:57 PM (GMT -6)   
I have read that the circadian rhythm could be responsible for the early morning being the most difficult time for many people with colitis. The circadian rhythm influences a host of body processes that vary over the course of a day. Apparently, our daily schedules are controlled by an intricate family of hormones, which causes diseases and chronic conditions such as colitis, rheumatoid arthritis, and asthma to be at their worse during the early morning.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working


mumbles
Regular Member


Date Joined Dec 2008
Total Posts : 199
   Posted 6/17/2009 11:11 PM (GMT -6)   
subdued said...
I have read that the circadian rhythm could be responsible for the early morning being the most difficult time for many people with colitis. The circadian rhythm influences a host of body processes that vary over the course of a day. Apparently, our daily schedules are controlled by an intricate family of hormones, which causes diseases and chronic conditions such as colitis, rheumatoid arthritis, and asthma to be at their worse during the early morning.


I can believe that. My circadian rhythm is horrible i go to bed way too late... or should I say early.
Asacol-12 a day
1 Culturelle
1 Canasa
5g Fish oil supplements
1 Vitamin
1 Haldi Drink
Gluten-free and lactose-free diet

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