Don't believe my serious reaction was from the remicade

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Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 6/17/2009 10:00 AM (GMT -6)   
Because it is 10 days after my 3rd dose and I had no side effects at all!

Looks like I am staying on Remicade and I wanted to update and let everyone know
because I may have scared some with what I thought was my reaction/hospitalization after the 2nd dose.

I now believe it was as the doctors said, an opportunistic infection that was just able to thrive due
to the steroids and possibly Remicade's immunosuppressant effects.
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, Remicade (3rd infusion 6/8/09)

Discontinued: Prednisone, 6MP

Post Edited (Shelliesv) : 6/17/2009 10:38:29 AM (GMT-6)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/17/2009 10:04 AM (GMT -6)   
Great! I'm sure that your body was terribly depleted, too, as you'd been flaring so badly, which also allowed the infection to thrive. I'm glad that it looks like Remicade will work well for you and hope you have many years of remission!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 6/17/2009 10:05 AM (GMT -6)   
Good to know Shelly. Glad you are feeling better!

Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/17/2009 1:38 PM (GMT -6)   
Good! Same thing happened to me- it's scary as heck getting that first infusion after the infection though, isn't it? I actually had my primacy care doc do labs just to see if the blood looked "funky" before I went for it! But that's great- glad it's working. Just be super pro-active about your infusions- any weird signs & reschedule for a week or so.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16724
   Posted 6/17/2009 4:55 PM (GMT -6)   
Great news! I hope the Remicade gets you to remission quickly.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...

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