hello ! (jpouch)

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New Member

Date Joined Jun 2009
Total Posts : 4
   Posted 6/17/2009 7:17 PM (GMT -6)   
jus joined this forum , i got ulceritive collitus couple years ago without warning, ended up in hospital undiagnosed until bein in for bout 3 days, had emergency operation to get the bag an large intestine removed, have semi recently been back in hospital to get the pouch an jus waitin on the final part of the reversal be couple months frm now, if anyone wants to ask me any questions ill be glad to answer them (i know everyones cases wont be the same as mine!) is anyone on here waitin for the final part of the reversal ? or has had it done id be intrested to hear some answers to a couple questions i have!

Post Edited By Moderator (Lonielane) : 6/18/2009 7:29:56 AM (GMT-6)

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 6/18/2009 8:29 AM (GMT -6)   
Hi a_lad, and welcome to HealingWell! Most of us on this forum are still battling UC, but there are many who have had UC and have gone on to have the jpouch surgery with much success, and they still pop in from time to time to let us know how they are doing. Check out HealingWell's Ostomy forum or www.jpouch.org because I'm sure they will be very helpful in answering any of your questions. Thanks for taking the time to help us on the UC forum by answering our questions...we tend to have many since there is a chance we could be headed in the same direction. Take care, and again...welcome!


Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
Co-Moderator for the UC Forum

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 6/18/2009 8:54 AM (GMT -6)   
I had jpouch surgery 8 years ago. I love my jpouch! Carol's recommendation on visiting the jpouch site is great. You'll find a wealth of knowledge and support on that site.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

New Member

Date Joined Jun 2009
Total Posts : 4
   Posted 6/21/2009 9:00 PM (GMT -6)   
ive jus looked thru this forum an didnt find my post, until know, its not the end of the world if you do have thart massive flare up! i know people doin the steroid treatment hope it never happens but its really not that bad! hospital time is crap granted but you will feel sooo much better after it, prbly not the answer ur lookin for.. if u actually hav the op that will be a year or so till u hopefully leave it behind, wots a year or two within ur life? if u can live the rest of it fairly normally??

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 6/22/2009 6:43 AM (GMT -6)   
You're welcome to come and join us on the Ostomy Forum of this site :)


I'm not a complete idiot - some parts of me are missing!

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