Your symptoms sound similar to mine intially. I immediately had trouble after finishing a long course of abx (after the birth of my second child by c-section). I made an appt, but by the time I had it, things were getting better on their own. I was diagnosed with UC, which was a surprise to both me and the GI doc, by flex, then had a colonoscopy to see the full extent of the inflammation. But by the time I had the colonoscopy, I was back to normal. I was put on Colazal after the flex, but had trouble remembering and never felt it was helping much (I wasn't taking it regularly,so I never felt it was helping the symptoms-I was barely bleeding when I had the flex as it was, and I was definitely in denial about
the entire thing).
Anyway, I gave up taking it altogether that summer. But things got stressful when my husband was out of a job and such, and I started having problems again. I tried to go back on the colazal, but it didn't even make a dent. I tried managing it with natural remedies and such, but it just got worse and worse until I landed in the hospital the following spring. Now I am on Asacol (6/day) and Humira through a trial, and use suppositories for flares when needed. I will most likely be on these meds, or others similar, for the rest of my life. I thought it had gone away, and it did...for a little while. But when it came back, it came back with a vengance, and knocked me OUT.
I never miss my meds now, I can tell you that. What I find works for me, since I only take them 2 times/day, is that I have two of those pill containers-one in white and one is blue. I put my morning pills (I also take some vitamins and other supplements) in the white one, and the nighttime ones in the blue. I refill it once a week, and all I have to do is
open a little slot and grab my meds.
I would love to be able to manage my disease without all of these meds, and I still have a tiny glimmer of hope that somehow that will one day happen, but for now-meds it is. If I could go back, knowing what I know now, i would have been a lot more dilligent about
my meds. I am not sure it would have made the difference, but it would have been worth it if it had.
34 years old, stay at home mom of 2 girls, ages almost 4 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Off of canasa because of severe joint pain (side effect)