Princessa. any info on predigested meals for suffering with mod/severe ulcerative proctitis?

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Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 6/18/2009 11:45 AM (GMT -6)   
        Fruitgal said you may have some info on this subject.  Anything is appreciated.  I was going to try Ensure or Boost.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


fruitgirl
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Date Joined Feb 2009
Total Posts : 7150
   Posted 6/18/2009 12:04 PM (GMT -6)   
I'm bored, so did a quick search and found this info in a previous post of princesa's.

One option is Absorb Plus - a shake mix in three flavors - that is a total meal replacement. It gives you the nutrition your body needs while allowing bowel rest. Details are in Jini Patel Thompson's book The IBD Remission Diet.

There are other predigested products your doctor might recommend, too. It's a shame more docs don't at least try this route, which has been found to be as effective as steroids in some cases, without the side effects.

http://www.caramal.com/ibdrd/ibddescription.asp
http://www.imixnaturals.com/

Hope you don't mind I posted this, princesa!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 6/18/2009 12:28 PM (GMT -6)   
     Ok thanks a lot fruitgal.  I am trying my darndest to stay out of the hospital.  I'm not bleeding badly, only a bit but have terrible pressure in the rectum.  Guess a lot of us can relate to that.  My bowel movements (about five or six today) consist mostly of mucus.  I have been taking organic ground meal flaxseed in my rice cereal with Silk.  Think that is harmful?  It's labeled Red Mill organic 100% whole ground golden flaxseed meal.  It has 1 g of soluble fiber and 3 g of insoluble fiber.  I'm not up much on that stuff.  I went to a nutritionist last year after my hospitalization and she recommended this.  She also gave me a wonderful low residue diet to follow but even with that, I still have the pressure.  When I move my bowels it feels like my intestines are going to fall out.  Horrible disease huh?
     Good point you made about the GI doctor.  He always tells me it is NOT diet related and leaves it at that.  It's a wonder he even suggested the probiotics.  All they do is push meds.  He is just dying to get me started on Remicade.  I fought him tooth and nail six years ago when I finally gave in an started the 6MP.  Well, here I am, no better and on 75 mgm of the 6MP, 25 mgm of prednisone, Cort enemas and Canasa.  What a bunch of bull this is.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 6/18/2009 1:41 PM (GMT -6)   
Not a problem, fruitgirl. Glad you found the info.

Christine, Boost and Ensure are not predigested. They will give you extra nutrition, if weight loss is a problem, but they do not allow bowel rest. In addition, they are heavy on sugar and bad fats. Not really the route I'd want to go. If extra nutrition is what you're looking for, I'd suggest a quality protein or meal replacement shake mix - the kind bodybuilders use - as a healthier alternative.

Special liquid meals, called elemental diets, contain nutrients (in a predigested form) that are necessary for the body to function, including amino acids, some peptides, and special fats and carbohydrates. In this kind of diet, the body is nourished without taxing the digestive system. Depending upon your specific dietary needs, your your doctor might recommend a suitable liquid diet. Absorb Plus is the only product I know of offhand that you can purchase without a doctor's involvement, but there may be others.


Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 

Post Edited (princesa) : 6/18/2009 12:50:42 PM (GMT-6)


Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 6/18/2009 4:26 PM (GMT -6)   
     Thank you all for your help!  Very much appreciated.  I'll try the Absorb Plus.  However, my hubby ran out this afternoon and bought me a six pack of Ensure.....now I feel guilty.  That stuff is expensive.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 6/19/2009 3:15 PM (GMT -6)   
Just a quick suggestion should you go the absorb plus route - test the different flavors before ordering a large batch (you can obtain a sample pack). I really liked the berry and chocolate, but couldn't tolerate the vanilla flavor.
Diagnosed with UC in 1990.
Current Meds: Sulfasalizine (2 g) (1 g), Rowasa (now and then), Folic Acid (1 mg)
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.


Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 6/19/2009 3:51 PM (GMT -6)   
     I went to the Walgreen's Store today and they didn't have the Absorb Plus.  Do you have to go to a nutrition store??
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 6/19/2009 3:58 PM (GMT -6)   
You have to order online:
 
http://www.holistichealthshoppe.com/index.php#6
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/20/2009 5:28 AM (GMT -6)   
     Does this come ready to drink or do you have to add something?  I also see that you drink aloe vera juice.  I noticed it in Walmart but was afraid to drink it.  Sounds like yukky stuff but I remember using the aloe vera plant for a skin ailment years ago and it worked like a charm.  How is that stuff?
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 6/24/2009 10:38 AM (GMT -6)   
You mix it with water or fruit juice.

I wouldn't recommend any brand of aloe but George's. Other brands may not have the aloin component removed and if not, they can cause irritation and diarrhea. Aloe is very healing, both externally and internally. George's aloe is clear and tasteless. It's like drinking water.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 

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