Sue, I read where you were diagnosed with proctitis which is what I am suffering from. I have had this for almost eleven years and my flares are getting more frequent. Used to be every two years, then once a year, now suffering another flare after only seven months of remission.
I saw a GI surgeon last year following my hospitalization and he didn't think I was a candidate for the surgery. He said my condition is considered mild/moderate (hate to see severe cases). However, since my UC is located so close to the rectum it is in a spot that makes one most miserable. Luckily, my UC has not traveled further into the colon. The surgeon mentioned that the surgery isn't all it is cracked up to be (this coming from a very reputable surgeon too) and the quality of life afterward may not be as good as I have now. He also mentioned the list of complications that go along with the surgery.
If I could just get rid of this God awful pressure in the rectum. I moved my bowels only six times today (eating very little anyway) and didn't have a lot of blood, which is a blessing.
What exactly were your symptoms before deciding to go ahead with your surgery?
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.