OT - maybe? Toe cramps

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Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/18/2009 6:33 PM (GMT -6)   
I am in remission.  I have been feeling really good Uc wise.  For the longest time though I have been having these horrid toe cramps!  It strikes the two middle toes of my left foot and I can literally see them moving apart as they cramp.  And boy does it hurt!  I mentioned it to my doc once and she said it can be from the way I walk to the structure of my feet.  I am not low on any vitamins or minerals - I've been checked (including potassium).  I drink a lot of liquids such as water and ice tea (decaf).  Is there anything else I can do to help alleviate these "attacks"?  Also, can medications cause toe cramping?  Now mind you, I ONLY have it in the middle toes of my left foot and never anywhere else.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/18/2009 7:36 PM (GMT -6)   
Lomitil makes my feet cramp sometimes.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/18/2009 7:54 PM (GMT -6)   
My mom gets really bad cramps in her toes with this certain pair of shoes she wears. I'm guessing it's due to poor support in the shoes? When her toes cramp she has to immediately stop what she is doing and massage the toes. She said the toes hurt so bad and they stick straight UP. I hope you can find the cause.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Trying Applied Kinesiology & supplements.


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 6/18/2009 8:55 PM (GMT -6)   
Don't know how true it is but my mom always said when it happened she knew she needed more protein in her diet. That was her cue to have steak! I know when I have gotten it, if I eat red meat, it goes away.

--Mom of bratcat (18 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect! Living and loving life as a teenager should!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


lucasJ
Regular Member


Date Joined Apr 2009
Total Posts : 178
   Posted 6/18/2009 9:35 PM (GMT -6)   
just went through a similiar bout myself.  I think i was a little dehydrated.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16718
   Posted 6/18/2009 10:02 PM (GMT -6)   
That's funny, I get a lot of cramps in the arch of my foot.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 6/19/2009 12:59 AM (GMT -6)   
Hi Sherry...I've had that since I was a teenager...and yep, the pain is horrific. Have you recently changed to sandals?

I get it when I've been a bit more active and my feet/legs are overworked.

It could be the 6MP as well...I have a friend who had horrific pains from Imuran..so, possible for you too...but since it's just started, it could be simply myofacial pain.

You could ask your husband for a foot massage , massage them yourself and do some exercises to loosen them.

You could try this to stretch the toe muscles....put those toe separators on and then scrunch your toes like clenching. It'll hurt like crazy...but eventually will start to relax.

Oh...walking with those things on are a killer....but in a good kind of way. Your toes will look creepy when you take them off, however...unless your toes are creepy to start with, then it's hopeless for them to improve. bwahahahaaaaaaaaaa!!!

You might also need some support in your shoes. Do your feet have high arches? Do you wear any supports in your shoes already?
What about supportive sandals? Some brands have nice arch support in them (no, not fogy kind either).

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/19/2009 5:32 AM (GMT -6)   
Thanks everyone! :) These attacks are so random that I have been having a hard time pinning it down to one thing.

Heather, I have new sandals but these cramps happened even in my old shoes. This has been going on for about 2-3 years?? - somewhere around there. I'm not sure if I have a high arch or not. Never really knew the difference to tell the truth. But I may have to look into the toe seperators. You just wear them for the cramping right or is it something you wear all the time?

Oh and according to my hubby, I have pretty toes! lol
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 6/19/2009 7:22 AM (GMT -6)   
I was getting foot cramps when I was on prednisone a while back and I read somewhere that that's probably because of a lack of potassium in the body.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Asacol enema occasionally
Spinach & sunflower seed diet / Juicing spinach and carrots


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/19/2009 10:21 AM (GMT -6)   
If your hubby thinks your toes are pretty, then it should be easy to talk him into a massage! :)

That sounds really painful! Maybe see if you could get in to a podiatrist (I'm sure I spelled that wrong) to see if they can identify the cause.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/19/2009 11:41 AM (GMT -6)   
Yeah, I was thinking of a podiatrist too but truthfully I have been putting it off because I am sooooo sick of going to the doctors! I may have to break down though and go :(

I COULD get my hubby to massage my toes but he's never home when they hit! lol
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 6/19/2009 3:26 PM (GMT -6)   
Hi Sherry....the massage will do you good regardless of whether you're having pain or not. Keeping the foot flexible is a good thing, as well.

The toe separators...they're the ones that are used to paint toenails. No, don't use them all the time...people would talk or maybe see it as a new fad..lol! Of course, you could draw happy faces on the parts that stick out. Nice to hear you have pretty toes...but they'll still look wonky when you remove the separators...lol!

Sit, put them on and put your feet up and clench your toes a few times. I would think a few times a day would be good to use them...yes, Sherry...RELAX!!

The best way to put them on is to start with the small toe and work towards the big toe. There should be an extra separator alongside the small toe, not the big toe.

does this make sense?
just found this....wow...lots of choices and ones specifically for the stretches I mean.  But the regular kind will do.
 

q tongue
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 6/19/2009 2:32:41 PM (GMT-6)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 6/19/2009 3:33 PM (GMT -6)   
Also forgot to add....it could be partly because of your back...but your toes still are whats cramping..so that should be dealt with too...anytime!

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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