I've had UC for four years. I'm allergic to all the ASA drugs and Remicade and Humira stopped working. I've been on prednisone for the whole time so I didn't really have any options left besides surgery. I had my colon removed in mid-March and currently have an ileostomy...it sucks! It's been the longest three months of my life!
I'm a cop and a pretty active guy and I really feel that this ileostomy holds me back from doing a lot...especially in the lady department...
Anyway, I have my J Pouch surgery on Monday, June 22 (tomorrow)...that's why I can't sleep tonight. I'm scared out of my mind. I just hope I don't end up in a diaper or something. I'm just eager to look normal besides a few scars. Admittedly, I haven't been myself since the first surgery and am hoping after I recover from this next one, I'll be less depressed and more outgoing. Best of all, no more prednisone.
If anyone else is having difficulties with their meds and feel surgery is the only option, I highly recommend Dr. Terdiman at UCSF. His wife is my surgeon, Dr. Varma and she has done a top-notch job.
22-year-old Male diagnosed with Ulcerative Colitis in September of 2005....in remission
Allergic to Sulfa-based drugs like Sulfasalazine, Asacol, and Canasa
Occaisional Pain Meds....mostly only when I have a bm or am about to....