I feel the same way, qazwsx12. I agree with Suebear in most respects and recognize that the odds are fairly good for success in surgery, but the fact remains that surgery is irreversible and Suebear's experience seems best case for a wide spectrum of responses to surgery. For this reason, even though I failed Remicade and now seem to be failing 2xdose Humira too, I am this week trying fecal infusions and after that, will try human whipworm before throwing in the towel. However, I am absolutely positively not going to try anything beyond that, if these two things don't work. For example, I have already ruled out antibiotic therapy and adding in more immune suppressants on top of the biologics. This is a crazy disease- some people claim they get magical remissions on macaroon
cookies or spinach and sunflowr seeds while others of us try everything and still end up headed for surgery- luck is a huge factor.
Pancolitis >20 years, allergic to all 5ASAs
(To pharma: enough already with the umpteen variants of Asacol!)
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up
Remicade Humira, lots of probiotics, entocort, tapering increasing pred again,
this year soon