Oh my...it's still good news that things haven't gotten worse...but I do understand that the last few inches are really a PTIA to get healed sometimes.
I would strongly suggest you possibly try to incorporate probiotics and fibre supplements.
The Rowasa..maybe you can insert it a bit differently and sit up or lay on your back after using it rather than concentrating the med as high as it can go.
I do hope you're able to improve over the next few months....or that you're able to last as comfortable as possible until you do have to have the surgery.
Thanks for the update!
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!