My name is Cheryl. I had the surgery in 1995 and life was great after getting reversed. Basically normal. I never suffered before like most people, my colitis was quick, short lived and I wound up having emergency surgery in NYC, not even knowing what was going on. I woke up one day with an ileostomy bag, 6 mos. later got reversed.
Anyway, long story short, since then I have been able to do everything, eat anything and you wouldn't have ever known I went thru all that. As of late though, the past 2 years things have changed. My stool became more liquid, the best it ever got was tooth paste like but my huge problem today is passing the air. Throughout the years I would have to lay on my stomach, roll around on my bed. It wasn't often and was fine. As of late though, I find that I am unable to pass that air (gas) and since my stool isn't as solid, I have to lay down on my stomach, basically roll around and use a wodd of paper towels because Im unsure of what is going to come out. Its turning into a major ordeal and getting very uncomfortable. I was considering getting reversed again and remaining that way since my quality of life is effected greatly. It almost feels like I have UC again. The whole bathroom deal, uncomfortable, noises in my stomach of liquids going thru my intestines.
So I guess my question to you is, is everything OK, any changes? I know nobody else can make this decision for me and its a major one. One for the rest of my life. I just had surgery last August 08. Small bowel resection because there was a narrowing where I was re connected. Once opened, there was 5 hours of scar tissue work along with rerouting instead of removal. After seeing my surgeon, that didn't work and I have exhausted all my surgical options. It's either live with it or get reversed. The last thing I am doing this week is trying dilation. In addition to widening the narrowed area (which isn't really the problem) they also empty my j pouch. Bottom line, the j pouch isn't doing working properly anymore and isn't emptying everything. So I will see how this goes and hopefully feel 100% if I have to make the decision for the reversal. It's about my quality of life. I'm 52 and struggling today. It gets exhausting, draining and depressing.
I was wondering if you had any thoughts on this or if you could tell me how you have been since your surgery. I was never on any long term meds since UC was so short lived.
Hope you are feeling well.
Looking forward to hearing from you