Does the bleeding ever stop?

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kygirl77
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 6/20/2009 12:14 AM (GMT -6)   
My mom started her flare up three weeks ago. Had a colonoscopy and for sure she was having a severe flare up. Doc prescribed Flagyl and Pred. She was only on pred for 8 days. She is still running to the bathroom every 2-3 hours. Not a lot of poo it's mostly blood. Will it ever stop????

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/20/2009 1:40 AM (GMT -6)   
If you're mom has UC flare up as you described, typically she would be placed on a longer regimen and then tapered down.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/20/2009 5:20 AM (GMT -6)   
     Eight days is not enough of prednisone for a severe flare.  What are her other meds?
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


kygirl77
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 6/20/2009 7:42 AM (GMT -6)   
When I called her GI the assistant even admitted she wasn't on the steroids long enough. Mom family doc wrote the prescription before leaving the hosiptal. The only other med she is on right now is asacol 2 - 3x daily. It bothers me her doc didn't go ahead and write her a new RX but instead make her wait till the office visit on Tuesday.

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/20/2009 8:41 AM (GMT -6)   
This past time, it took me 2.5 weeks of 60mg Prednisone to stop the heavy bleeding.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
30 mg Prednisone AM, 30 mg PM, Will begin tapering to 50mg on 6/19 and if not worse after 3-4 days, will taper to 40mg. I can't wait to be off Prednisone
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 6/20/2009 9:34 AM (GMT -6)   
Dnt worry bleeding will stop, its just a matter of time & finding right medication which suits your body. I have been bleeding since a long time now....lets see how much longer it takes. Take care of your mother diet as well..she needs to eat healthy! Hope she feels better soon.
UC forum : Dx Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks; 30May: LialdaX2 started on 30th may.
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May
Thyroid Forum: Dx in Dec'08, levothyroxine from 50mcg to 77 mcg in June'09 :-(


kygirl77
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 6/20/2009 10:36 AM (GMT -6)   
Thanks for the positive thoughts! This site has been so helpful. We still have a lot to learn about this yucky disease.

mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 6/20/2009 11:17 AM (GMT -6)   
kygirl77 said...
My mom started her flare up three weeks ago. Had a colonoscopy and for sure she was having a severe flare up. Doc prescribed Flagyl and Pred. She was only on pred for 8 days. She is still running to the bathroom every 2-3 hours. Not a lot of poo it's mostly blood. Will it ever stop????
No medications could stop my bleeding burt Sheldons vitamin E enema technique stopped my bleeding withing a day.

puffed rice
Regular Member


Date Joined Feb 2008
Total Posts : 495
   Posted 6/21/2009 6:49 AM (GMT -6)   
Definately try the vitamin E enemas they worked for me too.  When I use cortifoam as well I always lubricate the tip with vitamin e.  My bleeding stopped with the vitamin E within a week, its worth a try.

Diagnosed with Ulcerative Colitis 1995
Salofalk Tablets , salofalk suppositories or cortifoam nightly
Bio-K Probiotic daily
multivitamin
metamucil nightly


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/21/2009 8:34 AM (GMT -6)   
It will stop, then it will start, and stop, and start....... and it goes on and on, lol. Vit E enemas are definately a great alternative.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 6/21/2009 10:56 AM (GMT -6)   
kygirl77 said...
When I called her GI the assistant even admitted she wasn't on the steroids long enough. Mom family doc wrote the prescription before leaving the hosiptal. The only other med she is on right now is asacol 2 - 3x daily. It bothers me her doc didn't go ahead and write her a new RX but instead make her wait till the office visit on Tuesday.


Asacol may be making her bleed worse, see if the doctor will let her switch to Sulfasalazine instead if she isn't allergic to sulfa drugs, and see if things improve.

kygirl77
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 6/21/2009 2:30 PM (GMT -6)   
Since we're still new to all of this, can someone explain about the Vitamin E enema? I've read alittle about it, but still not too sure what it is.

puffed rice
Regular Member


Date Joined Feb 2008
Total Posts : 495
   Posted 6/21/2009 9:53 PM (GMT -6)   

The way I do the vitamin E enema is I use an empty  Hycort bottle that I have and take the vitamin E capsules and poke holes in them one at a time and empty it into the bottle.  I will add a little warm water to it then coat the tip with vitamin E and insert.  I retain it all night.  I will use at least 10 capsules per enema.  I'm not sure how the others do it but this is the way I have been doing it and I find it works great and is not irritating like some of the cotisone enemas that I have used.

I will still use the cotifoam during the day but I try to use the vitamin E in the evening.  It's worth trying.


Diagnosed with Ulcerative Colitis 1995
Salofalk Tablets  2pills -3xday
salofalk suppositories or cortifoam nightly when needed
Bio-K Probiotic (evening) ultimate flora critical care probiotic (morning)
multivitamin
metamucil nightly
cut out all wheat-finally in remission


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 6/21/2009 10:31 PM (GMT -6)   
kygirl77 said...
When I called her GI the assistant even admitted she wasn't on the steroids long enough. Mom family doc wrote the prescription before leaving the hosiptal. The only other med she is on right now is asacol 2 - 3x daily. It bothers me her doc didn't go ahead and write her a new RX but instead make her wait till the office visit on Tuesday.


Don't fell bothered. Prednisone is a potent drug. It's not prescribed lightly. My GI gave me Colazol until the inflammation subsided enough for him to do a partial sigmoidoscopy. He prescribed prednisone only after he was able to make a diagnosis.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 6/22/2009 2:28 AM (GMT -6)   
Actually, Joylu....way too many doctors prescribe pred far too quickly rather than introducing patients to the first-line meds. That's one thing I've noted while on the forum.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/22/2009 2:41 AM (GMT -6)   
     I've never tried the vitamin E enemas but willing to do so.  I am suffering with ulcerative proctitis and man is it ever stubborn.  My main problem is the pressure, not bleeding yet.  Do you purchase this at the drug store, over the counter?  Right now I am taking the Cort enemas in the evening and Canasa in the mornings as the Cort enema will not stay in.  I also have burning in the rectum.  Will the E enemas soothe this?
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.

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