Yeah, it's a dilema regarding all the meds...what works, what doesn't...etc.
I think one thing you must do is insist on stool samples done as well, for he might have a gut bug as well....
Awesome that he's not fighting you on taking the meds and has gone back to the rectals...
Yes, it can take a while....
I had a stint a few years ago that all my stools were almost diarrhea with some urgency...I ended up increasing the Asacol and the enemas to nightly..and when I saw the doc (about
a month later), he had me do stool samples. Nothing came back...and I continued with the 8 Asacol and enemas nightly for about
4 months..and eventually was able to start tapering.
It was NO pain as in a flare, but the doc "chocked" it up to UC related. I did, however, add Metamucil smooth twice a day, and at least that gave me some relief from the frequency.
I haven't had that since...still don't know what it was.
The fact that your son's UC has improved a LOT says the meds are working...but it is interesting regarding the difference in meds and other body symptoms.
Between a rock and a hard place sometimes....but it's definitely good for you to pursue the Habba syndrome or gallbladder aspect.
Let me know what the outcome of the phonecall is.
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!