I am on 6MP and have been for the past six years. I love the sun but only stay out about half an hour. If longer than that, my skin starts to look like alligator skin. I am olive skinned and never had a problem with sun exposure in the past. I do use Factor 8. Basically, I could use the vitamin D.
At my age, almost 63, I am somewhat concerned, but not paranoid about the long term effects of this drug. I just want to feel well. Right now I am in a flare again only after a seven month remission. I am not bleeding but have terrible pressure in the rectum.
Don't let any doctor tell you this is not diet related. My GI says that all the time. BALONEY. I know certain foods will cause my ulcerative proctitis to flare. Have to admit I cheat and then I pay the piper. Odd thing is that when in remission, I feel so darn great!!!
Right now all I eat for breakfast is rice cereal with Silk. I place 1T of ground flaxseed meal on top and sweeten it a tad with honey. I drink green tea, no caffeine while flaring. For lunch I have been eating either Activia yogurt or Ensure (vanilla flavored). For dinner, stewed chicken with mushy carrots and baked sweet potato (skinless). Snacking consists of saltless saltine crackers, frozen yogurt or jello. This is the third week I am in this flare with no worsening or improvement. Just limbo. Had a sigmoidoscope three weeks ago while in the beginning of the flare (which really didn't help matters). I see my GI doctor on Tuesday for the results of the biopsy. He did start me at 20 mgm of prednisone, which did nada, so I upped it to 30 (still did nada) but I am now tapered down to 20. All my other meds are listed below.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.