My Final Post Here

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Cher
Regular Member


Date Joined Jan 2003
Total Posts : 119
   Posted 6/21/2009 3:07 PM (GMT -6)   
Hi All,
 
I've been a member here for several years, and during that time, the community here as been both resourceful and supportive, so thank you all for your contributions.
 
I was diagnosed with UC several years ago and after numerous medications failed me, it was determined surgery was the next best option.  For years, I refused to believe that I would end up needing to have my colon removed; I mean there are so many meds to try, one of them had to work, right?  Wrong.  The last flare I had was the final straw.  I had planned to spend the weekend in New York City, wanting to visit the MoMA for the first time and also get some shopping done.  Well, I spent most of the time in my hotel room because the flare didn't want to wait until I had come back from my trip
.
The initial surgery was November 18 of last year and take down was February 23 of this year.  Living with the ostomy for three months was exhausting but at the same time, I feared what life would be like after the second surgery.  Well, it turns out that immediately after the second surgery, my energy had regained and I felt normal again.  I am doing everything I was doing prior to the surgeries including working full-time, working out at the gym 5 days a week, going to school, and shopping.  The difference?  I am no longer taking colitis medications and I no longer worry about when the next flare will be.  The only trouble I have right now is waking up, sometimes several times, during the night to relieve myself.  I can hold it too, unlike during a flare.  I eat three meals a day, pretty much anything I want and as much as I want.  There are still consequences from eating food like peanuts and drinking alcohol; sometimes I notice blood in my stool but it doesn't last and is nothing like having colitis.
 
The bottom line is that it's been several months since I've had the surgeries, and I don't have an ounce of regret.
 
Best of luck to all of you!
 
Cher

AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/21/2009 3:42 PM (GMT -6)   
I'm so happy to hear your surgery was a success!
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Trying Applied Kinesiology & supplements.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 6/21/2009 7:01 PM (GMT -6)   
Awesome to hear how well you are doing Cher! Gives hope to all of us; thanks for the encouraging words. And thanks also for being such an incredible part of our forum all of these years. Good luck to you!
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/21/2009 7:53 PM (GMT -6)   

Congratulations on your surgery success!  I would encourage you to stay a part of this board.  At times people here have to contemplates surgery and it's great for them to hear success stories.  I'm sure you feel as I did; it's great to have your life back!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 6/21/2009 9:19 PM (GMT -6)   
Congrats Cher!!
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/21/2009 10:06 PM (GMT -6)   
Glad to hear you are doing so well! I agree that it would be nice for you to pop in from time to time. I really enjoy hearing from people who have had successful surgeries. It helps keep my mind at ease, knowing that if I have to have surgery, chances are very great that everything will be ok!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/21/2009 10:16 PM (GMT -6)   
Congrats Cher, so glad you have your life back, I also agree that it would be nice for you to pop in and share your experiances since from time to time people often ask about colostomies and such.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Y2K Bug
Regular Member


Date Joined Jul 2008
Total Posts : 114
   Posted 6/22/2009 12:50 AM (GMT -6)   
Hi Cher, glad your op went well. You must be feeling fit and well going to the gym 5 times a week!
 
I'm having the same problem, going to the loo 2-3 times a night, but even so, my energy levels are so much higher than they were before the op and having a life again makes it so worth it. This morning I relieved myself at around 7:45am and didn't go again until 15:00. You can do a lot in 7 hours! I'm hoping over time that the number of nighttime visits will reduce if not i'll bring it up with my surgeon next time i speak to him.
 
Surgery is a big decision, but there are a lot of success stories, so you owe it to yourself to consider it.
Peter
 
dx 1985
gave up on meds after infliximab (remicade), humira, salofalk (5-asa enema), entocort, Azathioprine, steroid emenas, abadacept and of course the steroids.
 
J-pouch operation completed early Mar 2009.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 6/22/2009 12:57 AM (GMT -6)   
Adam....geez.
Of course, we all deal differently....you probably would have a difficult time at first if you had to have your colon removed, but would learn to live with it through adjustment, support and a good doctor (I would hope).

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 6/22/2009 1:00 AM (GMT -6)   
Cher...thanks for giving us the update as to how you're doing. It's awesome your adjustment has gone so well.

I agree with suebear...do pop in, for there are many who could need support and encouragement from your experience.

Be well..
quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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