Well, I made it to Albany and back. Dr. MacDermott made quite an impression on me. He has about 30 years experience with Crohns and UC. He had my records (except last blood tests) from my gastro here. I first saw his "fellow" assistant doctor. She ask me many questions and my history, etc. I explained about my not tolerating 5ASAs, 75mg. 6 MP and what I had tried for over a year. He saw the results of the three scopes I had had in the last 14 months. He agreed on mild to moderate UC - mostly proctitis - leftside 30 cm. (which he stated was "not far". We also discussed my IBS, GERD and hiatal hernia.
SOOO! You will love this "quincy"! His recommendation was STOP the 6 MP because my blood work showed that I cannot tolerate a strong enough dose to help. He also stated that since my white count, etc. stayed normal with no anemia to NOT worry about the blood unless it got a lot worse!!
Best part - he is having me PUSH the rectal meds - treat the UC topically - only thing he recommended. Cortifoam followed by Anusol suppository to cover more area - THREE times a day to start - when better go to twice, etc. Also, tapering the oral prednisone 2.5 mg every week until gone. I am now on 7.5mg. for this week. I have to get my Coritfoam tomorrow so have not started that yet.
He told me because of my age (I am 69) Humira, Remicade, etc. was not a good option and too much risk of infection and other side effects.
Because of my IBS he gave me sheets of instructions of what to eat or not - depending on what affects me. Most of this I knew from years of IBS. As we all pretty much know - what you eat does not cause UC or cause a flare but can affect how fast we heal, etc. He wants to see me in 3 months. I may go back to Albany. BUT - if this works, I will stay with my doc here.
Please wish me luck. I took Imodium some while traveling and everything went ok. I reserved a "roomette" on Amtrak and would highly recommend it as you have your own toilet and sink in the roomette - even if you don't plan on a long trip to sleep. Our trip was 3 hours but nice to have the toilet right there.
Any questions? Think I got everything. Wish I had more time to ask him more about causes - treatments in the future, etc. He certainly would be the one to ask.