This is my first time posting. I am so confused. Here is my story.
My family on my father's side had a bad history of digestive disease. Dad died of esophogal cancer at age 64 and his father and sister both died of colon cancer.
I had a colonospcoy in April 2008 at age 47 due to having increased frequency of BMs and change in consistency of BMs and also a little blood.
The colonospcopy showed no cancer so that was a huge relief. The found some ulceration in the rectal area and the GI really played it down saying it could be Chrons but that is not where they usually see it but was likely from stool sitting there rubbing against it, what?
Is answer to everything was eat more fiber.
I had a couple of other episodes of bleeding but no pain or anything and figured it was IBS and after two follow ups where I got nothing but eat more fiber I gave up on him.
I was trucking along fine until this past February when I apparently set myself up for a huge flare by going off my antidepressant (Lexaparo) and taking a antibiotic for a not even bad sinus infection.
I immediately got D upon taking the anti and then very very severe nauseua and abodominal pains. The pains were scary because that was brand new. My regular internist wasn't available so the PA thought I had C-diff but only did one stool sample which came back negative.
It took me about 4 weeks to get back to somewhat normal. I then went on the South Beach diet and was feeling great and was just ready to start exercising when I ate a can of LaChoy Chinese food on May 19 and I'm still in the flare from that. The next day I was so sick and then I had the D and excuse the TMI but the WHOLE CAN of veggs came out undigested and scrapped the hell out of my rectum apparently creating a fissure.
So, still not releasing I had UC, I did go to another GI recommended as good by internist. He listened to symptons and looked at the prior colonsopy and pronounced UC and said he was very surprised the prior GI hadn't treated, Ya think??
So, here I am. Had 10 days of Flagyl which dispite the horror stories I had no nauseau but it made me very depressed and weak as a kitten and I'm a large lady.
On last two weeks of a month of Rowasa.
I have been all over the Internet looking at info and forums.
To me it seems like mine is in the rectum but will it stay there or move up?
My biggest problem is rectal pain. I think the Flagly and Rowasa are helping but I also had to ask for a suppository for night time for the pain, I forget the name and I have analpram cream for the day.
A huge help, which I have not seen mentioned before, is using mineral oil. I keeping the area well lubricated.
Also, I had no idea how I was going to use the Rowasa as I was that swollen. The GI said use the analpram 10 minutes prior. Obviously he does not have the problem himself as that was a no go. What has really really helped is TONS of K-Y jelly to lube the tube.
The reason I am confused is all the conflicting info I've read especially about diet. When I asked the GI if I needed a special diet he said it made no difference.
Hello? It sure seems to with me. Also, the fiber yes fiber no is really confusing.
I can deal with the urgency and the frequency but what is really killing me is the food that doesn't digest which irriates the fissue and/or ulcers. Any suggestions?
Also, I have never had a rectal exam, only the one colonoscopy? Is this normal?
I have my follow up July 1 so what should I ask?
Thanks so much,