Blood Tests for UC and Crohn's

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jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1915
   Posted 6/23/2009 11:31 AM (GMT -6)   
Well, I got those Prometheus lab results back and boy were they interesting. They were positive for Crohn's disease.  I know these aren't terribly accurate, but nevertheless, I wanted to hear about others experience with such tests. My ASCA IgG was three times the cut off value. My doctor said I have diverticular colitis. I think I had colitis which caused constipation and then got the diverticular disease from all the constipation I had the past few years. It took a while for the colazal to work but things are going good for me right now (knock on wood.) Anybody else have experience with these tests? I'd love to hear about them. Thanks!
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta
good results w/ acupuncture


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/24/2009 10:28 AM (GMT -6)   
My diagnosis was in question for years. I had the test IBD Serology 7 test to make sure I had UC and not Crohn's. It came back UC. However, a CT revealed "thickening of the bowel wall" on the right side of my colon and inflammation pattern was sometimes sporadic... things not normal for UC. I finally quit obsessing about the dx. The things I do to manage my condition would be the same regardless.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 6/24/2009 11:24 AM (GMT -6)   
Mine came back extremely positive for UC but scope biopsies have been far less definite, with cross-over signs like princesa reports. Though it doesn't have a big impact on what therapies to use, it could be very important to know for sure if it comes to surgery- if one knew it was probably Crohn's Colitis and not UC, then one would opt for a permanent ileo rather than a j-pouch, to preserve the maximum amount of small gut in case it later spreads. It seems the wonderful, wacky world of auto-immunity often only spreads crohn's colitis into the small gut when there is no more convenient target (ie colon) to attack- you gotta love this DD. Anyway, the Prometheus IBD-7 test seems to have an EXTREMELY bad reputation amongst GI docs. I was surprised my insurance covered most of it- they turned down payment for the Remicade antibody test , also by Prometheus, on account of the test being considered "experimental."
Pancolitis >20 years, allergic to all 5ASAs
(To pharma: enough already with the umpteen variants of Asacol!)
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Remicade Humira, lots of probiotics, entocort, tapering increasing pred again,
maybe surgery this year soon
 
 


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1915
   Posted 6/24/2009 4:50 PM (GMT -6)   
Thanks for the dialogue. I was beginning to think I was the only one who ever had those tests. These diseases can evolve and I have also heard of people's diagnosis being changed. Right after my colonoscopy, my doc said he wasn't sure if I had crohn's or UC but that I had inflammation and diverticulitis. The inflammation was bad enough that he started me on colazal which has been working for me. But after the biopsy results came back he said it was diverticular colitis. Whatever! I guess it is academic. I will be interested to hear what my GI doc says when I see him the next time.
diagnosed 1/09 with "diverticular colitis" ??
 50?  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
 

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