Starting Humira Friday, any advice?

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tooler14
Regular Member


Date Joined Jan 2004
Total Posts : 59
   Posted 6/23/2009 3:54 PM (GMT -6)   
I have had UC for eight years. I'm allergic to any sulfur-based medicine.   I was steroid dependent for many years and then was only able to get off prednisone when I started Remicade.  I was on Remicade for two and half years and it was very successful - then it stopped working.  I had no anti-bodies but it just stopped.  Then we started 6mp but I could not take all the side effects, especially the sun sensitivity.  So now we are left with Humira.  I'm excited to try it to find some relief.  I would just like to be living some sort of  normal life.  I don't take any probiotics or supplements on a regular basis.    So I would love to hear any experience anyone has with starting Humira. I would love for this to be successful.  Any help would be great, thanks. :-)

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/23/2009 4:53 PM (GMT -6)   
Good luck!!!
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


qazwsx12
Regular Member


Date Joined Nov 2008
Total Posts : 63
   Posted 6/23/2009 6:41 PM (GMT -6)   
Yes wait 20-30 minutes so the liquid is room temp and will hurt less. I find the thigh to be less painful than the stomach. The actual insertion of the needle doesn't hurt but it's the injection of the medication that stings, not really too bad though.

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/23/2009 6:48 PM (GMT -6)   
I see a lot of people talking about this drug, but my GI doctor told me it's not approved for UC and that it's for Crohn's, which is why he said I had to try Remicade, as it was would be my only other option but that, hopefully soon this drug would be approved for UC and maybe I could try that later. Obviously this isn't the case since so many of you are taking it. Maybe he means the insurance wouldn't cover it for UC? I'm just confused.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
20 mg Prednisone AM, 20 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Liz3
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 6/23/2009 8:35 PM (GMT -6)   
humira is not FDA approved for UC, so often times insurance will fight not to cover. However, your doctor maybe able to get around it and as my doctor put it, "squint their eyes and call it Chron's". We didn't go down that road, b/c the Remicade didn't work ever for me and I had a bad reaction, so my doc didn't think Humira would help either. We've moved on to methotrexate, also an injection. These injections aren't as bad as I thought they would be, but I don't know how it compares to the Humira shots.

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 6/23/2009 10:07 PM (GMT -6)   
Apparently in a few months Humira will be fully approved for UC. In the meantime, if you fail Remi, many insurance plans will cover it for UC. I seem to have failed Humira too though- works a teeny bit still but not much even at 2x normal frequency. Hope you get better mileage.
Pancolitis >20 years, allergic to all 5ASAs
(To pharma: enough already with the umpteen variants of Asacol!)
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Remicade Humira, lots of probiotics, entocort, tapering increasing pred again,
maybe surgery this year soon
 
 


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 6/24/2009 9:16 AM (GMT -6)   
Good luck on the Humira!!! I agree letting it warm up a bit takes a bit of the sting away. I don't tend to have any major issue with injection pain though-maybe because I have plenty of padding, lol.

I don't take a probiotic right now either, and otherwise, I take a daily vitamin and I take milk thistle because I have heard these meds are tough on the liver. I have been on Humira through a trial for a little over a year now, and with the exception of a mini flare a couple of months ago (my problem time of year, it seems), it has worked amazingly well for me. Very few side effects that I can tell, and since I am in a trial, I have monthly blood draws and tests, so I assume if there was a problem or anything was coming back abnormal, I would know.

I am really hoping it is approved soon. It has been such a huge help to me, and while I know it wont help everyone, I know that it will help a lot of people. And selfishly, it will open up options to me for my husband and I to discuss having more children, since as it stands now, if I wanted to go ahead with that I would no longer be able to get the Humira.

I hope it helps you as much as it has me! The benefit is worth any injection pain I might experience, without a doubt!
Laura
 
34 years old, stay at home mom of 2 girls, ages almost 4 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Off of canasa because of severe joint pain (side effect)


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 6/24/2009 9:19 AM (GMT -6)   
I've been taking Humira for over 2 years, it's working wonders for me. It takes a couple of months for it to get into your system, but it totally works for me. Good Luck!
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/24/2009 10:05 AM (GMT -6)   
I start Humira tomorrow, good luck!

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/24/2009 2:22 PM (GMT -6)   
Ahh, thanks for the explanations. It makes sense now
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
20 mg Prednisone AM, 20 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


diaper man
Regular Member


Date Joined May 2009
Total Posts : 122
   Posted 6/24/2009 8:02 PM (GMT -6)   
I used to take Humira and I don't think you should let it sit out for 20 minutes before injecting. It believe it is kept refrigerated for a reason. I really could not tell the difference in pain during injections and the injections were not that bad. I wish you good luck.
Diagnosed Crohns/Colitis Jan 2007 changed to UC June 09.  Allergic to 5sa. Currently taking Humira Hydrocortisone suppositories, Canasa suppositories  started Remicade 06/23/09,  Budesonide. Colitis in last part of Colon.  Currently bleeding every bowel movement. 


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/24/2009 8:31 PM (GMT -6)   
OMG!! I had my doctor friend do the first round of injections... four in one day! It was so painful. I have tattoos and piercings and I have to tell you, I just did not expect that!! I even got bruised on my belly where we did the last one. It was not fun.

I was lucky enough to go into the hospital the week I started Humira and got my colon removed, finally! So, I don't have to take the second round.

Good luck and really, expect a pain for what the 20 seconds you have to hold it! I'm sorry it came to this. I became resistant to everything too. I was told to start Humira with the expectation of surgery in the next year or so.

Be strong.
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 6/24/2009 8:49 PM (GMT -6)   
Yeah the first 4 injections a a few afterward will totally catch you off guard. It took me a while to get used to it.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


tooler14
Regular Member


Date Joined Jan 2004
Total Posts : 59
   Posted 6/24/2009 9:01 PM (GMT -6)   
Thank you all so much for your input. I  will try to keep you updated on the progress of the drug.  I'm not looking forward to the four injections on Friday - We'll see.....

qazwsx12
Regular Member


Date Joined Nov 2008
Total Posts : 63
   Posted 6/24/2009 11:08 PM (GMT -6)   
The Humira directions say to leave it out 15-20 minutes before injecting.

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/25/2009 11:36 AM (GMT -6)   
Hey, tooler!

I just got back from my GI and my first installment of the HUMIRA. I will be honest, it wasn't bad at all. I did two injections in eacch leg. I didn't even feel the needle go in. I am sure you will be ok.
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