Thanks for all the great suggestions- I am
open to any and all. To frombc- I was doing my own home version of the Australian/Borody protocol. I never worked with that clinic and was simply using my girlfriend's feces. I did get her tested for a wide range of pathogens beforehand. But anyway, I gave up on it because I developed a mini-flare each time I tried it- however with all the hardware (medical enema bags with tubing, bags of saline, etc) that i gathered for my fecal infusion plans, and my practice, i feel better set to embark on some other kinds of enemas (probiotics, vit E, phosphotydilcholine, etc). Heck, a gentle irrigation (not a colonic ina true sense, but simply a gentle vetting out of the signoid and below with water using a gravity fed enema bag) seemed, from experience, to reduce gut pain afterwards had I not replaced it with more feces... so I wll start experimenting again.
One of the things I quickly learned about doing enemas is that patience and slowness is the key. Eg if using a gravity fed enema bag, just let a bit at a time go in, e.g. do it over a period of 30 minutes or so. As for renention, the Borody clinic did recommend using immodium, which i am not keen on doing to say the least. But in the fecal infusions, you are normally using a donor's morning stool and are expected to hold it in all day (!) which is surely harder than doing say a probiotic enema at bedtime and holding it in during the night.
Pancolitis >20 years, allergic to all 5ASAs
(To pharma: enough already with the umpteen variants of Asacol!)
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up
Remicade Humira, lots of probiotics, entocort, tapering increasing pred again,
this year soon
Post Edited (Probiotic) : 6/25/2009 7:41:55 AM (GMT-6)