question for kazygirl

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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/24/2009 9:13 AM (GMT -6)   
Hi kazygirl,
 
I noticed on your posts you say diet doesent effect your UC. im interested in how you know this. What have you tried. Its only because I am experimenting with things and I don't know if they will work or not work. So Im interested in what you have tried.
 
let me know if you want to. Thanks
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 6/24/2009 7:47 PM (GMT -6)   
hello hellokitty!

well, i had a very very very severe flare back in 06/07 that lasted for a year and a half.
i was hospitalised and everything. very horrible and painful. lost heaps of weight. (i weighed 95lbs at end of it)

full on flare from hell!

so i went to a dietician.
we tried the low residue diet for months.
liquid diet for months.
elimination diet.
every diet you can think of.
even practically fasting and starting over again.
we had diaries and recorded everything.

not a single thing made a difference.
the liquid diet did help only in the fact that my colon had a chance to rest as no solids went through it.
but there was still blood EVERY SINGLE time and pain and the howling, cramping and horribleness that went with it whenever i pooped.

blood and pain and diarrehea (if you can call it that, since it was mostly blood and bits) everytime i went to the toilet (16+ times a day, up to 30).
i would say that diet didnt matter in my case.
doctor and dietician agreed.

so i went back to eating whatever i wanted with the same effect.
and i got better too when i stopped the diet thing and didnt care.

i will say, that things like refried beans, that gave me gas did cause extra discomfort.
sesame seeds hurt as well. it didnt 'trigger' anything as i was in a flare anyway, but it was more painful on its way out while i was sitting on toilet and about an hour or 2 before. when its moving through.

but with a raw, ulcerated, bloody, tender colon, ANYTHING will hurt .

a lot of people swear by diet. everyone is different with this disease and what works for them.
i spent a small fortune that year and a half trying to fix myself. some people are fixed by aloe elite and other 'miracle' products. i was not.
i gave it all a go to try it and see, but it didnt work.

the only REAL answer is try it out yourself. test and measure. see what works for YOU.
what works for one doesnt work for all.
so diet may work for you.

and i will say.. that when i am in remission, i can eat anything! and i mean anything. nothing that goes in my mouth will 'trigger' a flare.
for me it is purely stress related or like this time, when i quit smoking.
so diet is not a factor for ME.
steph - 33 - female - gold coast australia - UC since 2000
was in remission until i quit smoking 5 weeks ago  o.O  now im flaring like a solar flare!
waiting for blood test to see if i can start imuran
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
just finished 3 months of prednisolone (worked) and now back on 40mg a day (ick)
quercertin tablets, tumeric capsules, vitamin d3, enteric coated fish oil
pre-conception vitamins and minerals (cuz we trying to make a baby)
oxycontin for pain every 4 hours.  plastic bags in the loo from the involuntary puking.
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/24/2009 8:39 PM (GMT -6)   
So far, food doesn't seem to affect me, either. I've only been in remission for a little while, though, but I've eaten a pretty wide range of stuff. I mean, I still poo more if I eat something like beans a couple of days in a row, but that's just a normal thing for anyone. I mean, you stick that much fiber in your system and it's just going to happen, UC or not.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).

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