Prednisone Question - Scope Over

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JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 6/24/2009 11:58 AM (GMT -6)   
He did great. The UC is the worst for the first 40 cm. Primarily left sided, but evidence of disease throughout. TI looked good. Still looks like UC.

Doctor wants to do a week of flagyl and wants to start son on 40mg of Prednisone for a week, then 30 for a weeks, then 20...

My big questions is in the past son has split his pred dose 20mg am and 20mg pm. Doctor said take all 40 in the am. Yikes!! What are the pros and cons of doing it this way? Why would we do it this way?

Son is totally heartbroken about it all - having UC, having to take prednisone, etc. How do you comfort them? How do you live knowing that this monster will always be there?
Julie

Mom of Son 17 UC dx 07/02, Lailda 2 am & 2 pm, Azasan 75mg, Cortafoam (when flaring), folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Colazal 750mg x 4, 6MP 25mg, Iron, Vit/Min., Culturelle


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/24/2009 12:27 PM (GMT -6)   
If I'm not mistaken, docs prescribe one dose in the a.m. to keep from disturbing sleep.

It's best to focus on the positive things you can do to manage the disease. In my experience, we are not as helpless and without hope as many doctors would have us believe.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/24/2009 12:44 PM (GMT -6)   
Well, I'm glad that the c-scope went well. I'm not sure what advice to give regarding your son's emotions. I guess just hug him as much as he'll let you, and try to remind him that there are worse things to be living with. That's what I tell myself, anyway. I'm also comforted by the knowledge that I can have surgery and be done with it all if it gets bad enough, but I know not all people see that the way I do.

When I did my course of pred and was on 40 mg, I took 10 mg at breakfast, lunch, dinner, and bedtime. As I tapered, I dropped the latest dose each time, until I was only taking it with breakfast. Many people on here disagreed with what my doc prescribed, but it worked quite well for me and I didn't have any problems with insomnia. But, many doctors say to take it all in the AM to help with insomnia.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/24/2009 2:20 PM (GMT -6)   
When I first started Prednisone, my doctor had me take it all at once because he said it lessens the chances of becoming dependent on it. I don't know if that's at all true, and I ended up needing it twice a day after a while anyway
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
20 mg Prednisone AM, 20 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/24/2009 4:30 PM (GMT -6)   
     I take my 20 mgm in the morning and I still have insomnia.  However, I am also on 6MP, Cort enemas, Colazal and Canasa.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 6/25/2009 9:54 PM (GMT -6)   
I dunno, he's a teenager. Try not to coddle him toooo much. Although he may be different than I was. I kind of... stoic I guess. Help him, fer sure, and be accomodating, but don't crowd him. Guess that's all I can offer.

Why is he being put on Flagyl? I was first put on Prednisone and Asacol, then when I began flaring after ending Prednisone, they tried Flagyl just in case it was an infection (it wasn't). Just curious. Good luck!
19yr old female
Diagnosed with UC (pancolitis) in 2005 at age 15
2.5 tabs of Azathioprine 1xday / 2000mg Fish Oil 1xday
Arthritis in both knees (thanks UC)
Also: asthma, acid reflux, and Reynaud's Syndrome


Liz3
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 6/26/2009 4:38 PM (GMT -6)   
I've always taken all the prednisone first thing in the morning with breakfast, whether the dose was 60mg or 5 mg. Part of the reason you take it first thing in the morning is because cortisol levels in the body are naturally highest early in the morning, and then lowest around midnight or a few hours after falling asleep--so taking the pred early in the morning is a way of attempting to sync it with how your body would naturally act. Prednisone definately gives me insomnia.

I'm not sure I understand the Flagyl either. Is there inflammation in his small bowels? Flagyl (and Cipro) are two antibiotics that they use wth Chron's but not typical with UC as they are not usually effective.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/26/2009 4:48 PM (GMT -6)   
     Last year, while hospitalized, the doctor had me on Cipro but he always puts me on Flagyl along with it.  I am now flaring, been so for a month, but no Flagyl or Cipro.  Guess he feels it doesn't warrant it for some reason.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 6/26/2009 5:20 PM (GMT -6)   
Son has frequently been Rx's flagyl in hopes it helps out a bit. His last doctor often had him take it long term and sometime two weeks on two weeks off. He tolerates it well.

I know when son was very first dx with UC he also cultured positve for staph aureus and that was the first time he was rx'd flagyl.
Julie

Mom of Son 17 UC dx 07/02, Prednisone 40mg, Lailda 2 am & 2 pm, Azasan 75mg, Cortafoam (when flaring), folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 20mg am & 20mg pm, Colazal 750mg x 4, 6MP 25mg, Iron, Vit/Min., Culturelle

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