Trip to GI for colonoscopy results

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Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/24/2009 3:15 PM (GMT -6)   
So three weeks ago I had my colonoscopy and 11 biopsies, I also had a very large adenomatous polyp removed which was causing some blockage. I still continue to have the blood and mucous d, spasms, abdominal pain, arthritis, and gas, but even though there was visable swelling and inflammation, the biopsies came back normal, so no UC or Chron's. Very frustrating, that i didn't get a diagnosis, but because the polyp was precancerous, they want to do a scope on me every three years so at least if I continue with these problems, there is a chance of finding something eventually that could lead to a diagnosis.

The GI says IBS which I have been diagnosed with for 14 years. Never had these symptoms and antispasmodics and changes in diet do nothing to relieve my symptoms, the antispasmodic works for an hour or 2 and then I have to take another.

I am so fatigued. I am going to go back to my PCP and have lab work for thyroid, it's been over 15 months since I had it done last and it showed low/normal and the Dr said not enough to warrant drugs, but it may have changed, so worth checking since the fatigue is unbearable lately.

Also decided to do pre and probiotics and the GI said that wouldn't hurt, and suggested a bulk fiber suppliment as well to see if that helped any. *sigh* I feel like the colonoscopy was not a waste since I had the polyp and it was precancerous, I am only 29 so if I had waited, it could have been cancer, I am thankful for that. I will probably keep peeking in on this board at least until I am not bleeding anymore, but I guess I should go to the IBS board.

I joined the wellness center as this polyp has me motivated to lose my extra 45 pounds and get as healthy as possible. It was scary seeing that huge thing in the pictures and know it could have turned into cancer. Now I just need to find the energy to exercise.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 6/24/2009 3:29 PM (GMT -6)   
Oh wow...that is scary, but a good thing you had it removed.

Did the doc have you checked for microscopic colitis? If not, maybe the biopsies could still be checked for that?

I'm assuming all the biopsies were checked for precancer cells as well....which is a good thing all came back fine.

I would probably push to have a c-scope in a year...and if all comes back fine, do 3 years.

Where in the colon was the polyp?

Did the doc say that it was normal for there to still be bleeding?

Did the doc say that the polyp was bleeding...as to account for the bleeding you were having previously?

Have you seen a rhemuatologist as of yet? or an endocrinologist since you are having your thyroid checked? Either of them would check more in depth and more specific rather than your GI or GP doing the tests.
 
This site is also a great resource for IBS and other stuff...maybe someone with the same experience can help or give insight.
 
http://www.helpforibs.com/


I hope you continue to keep us posted.
quincy


*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/24/2009 3:43 PM (GMT -6)   
I saw a Rheumatologist because of the arthritis and SED rate being high, he told me to diet and lose weight. He did no tests (the ones from my GP were already 6 months old by the time I got in to see him) or even examine me, I drove 4 hours round trip to see him, and that was the first and last time I did that.

have not been to endocrinologist, but may do that if my thyroid is still on the low side.

GI said the symptoms (bleeding, mucous, gas, nausea, indigestion, and d) were from IBS. I will have to call and ask if they checked for microscopic colitis, but I think that the biopsies were for Chron's and Micro. Colitis, they were not expecting to find the polyp, that was a surprise as I have no family history of polyps or cancer, only of Chron's and UC.

He did say the polyp had a very large blood vessel feeding it, which is why it got so large and it had to be clamped after they removed the polyp so that could still be bleeding I guess, but it has been 3 weeks since it was removed. It was located 25 cm (close to 10 inches) into the colon.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 6/24/2009 3:52 PM (GMT -6)   
hmmm, well news report for the doctor....IBS does NOT cause bleeding!
Definitely call and enquire about the microscopic colitis. Please do the research to know there are 2 different kinds under the general term microscopic colitis. Lymphocytic and Collagenous. They cannot be "seen" visually except through a microscope...

It's definitely good the polyp was caught early...scary thought for many of us.

So...there is absolutely NO inflammation in the colon? even visually as being red/irritated, etc?

Did the doc say where he thought the blood was coming from exactly before you had the scope?

I definitely agree that now the bleeding could be from the polyp...have you done any research on if that's possible for it to be this long?

Are you bleeding with every bm, or intermittently...for example, a bm with no blood, then later blood? I could see that stool going over a raw area could increase it...

I would suggest you see an endocrinologist regardless...for a regular doc can miss or not do specific tests..especially if your thyroid is low.

Weight loss is difficult, I would think, if one is having many health problems at one time and NO answers. Keep looking till you find a doc who won't just see the obvious of one being overweight. Clouds the issues methinks.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/24/2009 3:55 PM (GMT -6)   
How frustrating. Glad they got that poyp removed. (I would love for my GI say they couldn't find any evidence of IBD tho!)
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Trying Applied Kinesiology & supplements.


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/24/2009 6:28 PM (GMT -6)   
In the beginning (before the scope) I was bleeding with every BM, for the last month, it has been intermittent, but I am using Immodium and Hyomax which I was not doing before. GI didn't know where the blood was coming from, that is why he wanted to do the scope. He did say he saw inflammation and swelling but no ulcerations.

I will have to ask about micro colitis.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 6/25/2009 2:37 AM (GMT -6)   
Well, UC can have inflammation and swelling but no ulcerations....right there is a clue that it's not just IBS.

How much imodium are you using?
I have a huge suggestion...when you call the doc's office, also ask for a copy of the colonoscopy pathology report.
 

quincy


*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 6/25/2009 4:18 AM (GMT -6)   
     Odd that your doctor wants you to wait three years before doing another colonoscopy with your history.  My GI doctor suggests one every year.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/25/2009 7:19 AM (GMT -6)   
"Well, UC can have inflammation and swelling but no ulcerations....right there is a clue that it's not just IBS."

Yeah that's what I thought as well. He said slightly swollen and inflamed, so I guess it's not bad, but I still don't feel well. Also a clue is I have lost 10- pounds in the last 2 months. Not complaining, since I have some extra to get rid of, but for 9 years of IBS I never lost weight (was not overweight then either) and then suddenly after my weight gain (pregnant with twins and gained 80 pounds in 7 months), I lost 50 immediately, gained some when I went on pred and need to lose about 40-45 lbs now but have had a lot of trouble getting the weight off despite diet and exercise, then along comes these nice new symptoms and I start losing weight pretty fast without trying to diet and exercise cause I feel like (parden the pun) poop...just seems like more than a coincidence to me.

"How much imodium are you using?"

As needed, 2 in the morning, and one later in the afternoon if I need it, but usually only take it if I am going out, sometimes if it is really bad in the morning, I will take it before work, but it makes me hurt, so I don't take it everyday.

"Odd that your doctor wants you to wait three years before doing another colonoscopy with your history. My GI doctor suggests one every year."

Maybe it is my age? I am only 29 (will be 30 on September 23rd).

"I have a huge suggestion...when you call the doc's office, also ask for a copy of the colonoscopy pathology report."

I am getting a copy of my records to take back to my PCP and to have in case I need to find a new GI Dr.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 6/25/2009 1:18 PM (GMT -6)   
sounds like a plan.

When you call, you should also ask him if you can try the rectal meds...5ASA will also help deal with "any " inflammation in the lower part of the colon.

Instead of the imodium, maybe you might consider adding a fibre supplement to bulk up the stool plus an antispasmodic to help with the urges to go.

Rectal meds and dicyclomine 10mg...the doc should at least give you something.

seems you might needing to find another GI...sad he's not at least given you any meds.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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