Mass. General Hospital?

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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/24/2009 5:11 PM (GMT -6)   
Hi folks! Anyone been there for either IBD treatment/consult or surgical consults? I live on Cape Cod, & have been to numerous surgical consults at Lahey Clinic in Burlington, MA. I was very happy with the doctor I met with, & my GI referred me to him for fistula repair also. But, it's like a 2 1/2 hour drive, where as MGH is only an hour or so- I know Dr. Bruce Sands is a bigwig at MGH IBD center, but am wondering if he is also a surgeon? I was initially referred to both him & the doctor at Lahey Clinic, & wound up at Lahey simply because they had more availabilty re. appointments. But I think I need to do something about this fistula. So any feedback on MGH would be great- thanks! I'm dreading even making the call, I SO do not want to deal with this & any of the treatments for it, but.... you know how it is!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


Liz3
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 6/24/2009 8:11 PM (GMT -6)   
I go to the Chron's Colitis Center associated with MGH, I see Dr. Korzenik and he is absolutely excellent. He works closesly with Dr. Sands--the two of them are the Co-Directors of the Chron's Colitis Center. The whole office is just really professional, they reply to you quickly. I was at MGH for about a week last month due to a flare (and pancreatitis caused by the imuran), and I was just really happy with my treatment. Very, very thorough. There was only one doctor that was doing rounds at MGH that works with Korzenik, that I did not like. Her name was Dr. Nguyen, but other than her, I liked everyone else in his office. Dr. Sands and Dr. Korzenik also do a ton of research on IBD. I just get the feeling that they know what they're doing. I've never had any surgeries, so I can't give you any insight there.

I hear Lahey is good too, but I personally am really happy with Dr. Korzenik and MGH.

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 6/25/2009 9:48 AM (GMT -6)   
Eva, about a yr to 15 months ago Beth75 did a lot of posting RE Mass. General when she was debating whether or not to schedule herself for appointment there. Maybe her 2008 thread(s) would have some helpful info for you-- because there were some members already seeing GIs there who replied/commented on specific docs, as I recall. / Old Hat (30 yrs with left-sided UC ... [etc.])

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/25/2009 12:45 PM (GMT -6)   
well as it stands now, I'm waiting to hear back from my PCP if he will approve the insurance referral request- apparently MGH is out of my network, & the insurer prefers that I go to an in-network surgeon. He can override it, my PCP, & I'm hoping he does- I don't mind going to another one of the Boston Hospitals, but I gather fistula repair is a fairly delicate surgery. I'd rather go to one of the places my own GI referred me to, which is Mass. General. Usually my PCP is really good about letting me do my own thing, so to speak, as far as UC docs go- he's not too hands-on when it comes to the UC, leaves the decisions up to my GI & myself.  PS- if it's not MGH Beth Israel is in-network- I would go there with no problems, I have already had a 2nd opinion consult there with the head of the GI Dept. & was very impressed. Either way, this thing is getting repaired! I'm done with it, totally.


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 

Post Edited (Eva Lou) : 6/25/2009 12:55:23 PM (GMT-6)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/26/2009 4:22 PM (GMT -6)   
so anyway, after 5000 phone calls, I did not get my referral to MGH- I did get a carte blanche referral to Beth Israel Deacones Med. Ctr. I have been there before for a GI consult & was very happy with their entire GI dept, which include colo-rectal surgery. So my GI called his buddies up there, & got me the names of 2 surgeons to arrange a consult with, for fistula repair. My PCP totally agreed with the decision to go to Boston, as the local hospital where I get my Remicade infusions is just that- a local, small town hospital. Yeah, they're fine for having a baby, or pneumonis, but not for this type of surgery! They don't even have a colo-rectal surgeon on staff, for gosh sakes! So come Monday AM, I'm back on the phone to arrange a surgical consult. Also- this has been sort of weighing on me- do you guys even want to hear about this? I'm like the only one on here with a fistula... I won't mind if the answer is a resounding "no!". God knows why my diagnosis of UC hasn't even been called into question, but that's another story. But please let me know- if it's of no interest, I won't post about it. But if the finer points of fistula repair interest any of you, do tell!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 6/26/2009 7:55 PM (GMT -6)   
Princesscolon posted a month or more ago about her recent fistula surgery. / Old Hat (30 yrs with left-sided UC ... [etc.])

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/28/2009 7:53 PM (GMT -6)   
Feel free to poke over to the crohns board too. Lots of people w/ fistulas there that could give you feedback.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

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