I've recently been diagnosed with pancolitis and the doctor put me on Entocort. I've been taking Entocort for 5 weeks now and I must say that this is a wonderful type of steroid to use with minimal side effects as it is nonsystemic, whereas prednisone is systemic.
After reading about prednisone and its side effects I was REALLY happy that he did not put me on that. After doing some research, Entocort is usually used for people who have Crohn's Disease and not UC; however, if you have pancolitis (right-sided colitis), this type of steroid works very well.
(P.S. - I am NOT a salesmen for Entocort... It has just been the only thing that has worked in the past 2 1/2 years)
Oddly, I've read that nicotine has induced remission in a lot of people battling with Ulcerative Colitis. I started chewing nicotine gum about 2 weeks after I started using Entocort and I felt like I was a completely normal/healthy adult. I stopped chewing the gum after a couple of weeks due to oral lichen planus that was starting to bother me in my mouth. I was diagnosed with oral lichen planus back in high school (I'm 29 years old now) from smoking cigarettes occasionally. I've read that UC and oral lichen planus can be related as oral lichen planus is an auto-immune disease of your cells in the mouth. I am currently looking into whether or not my health insurance will cover the nicotine patch as I think the nictoine really helped my symptoms subside.
Lastly... a few questions for people on Entocort. I have had minimal side effects, however, there are some that I would like to mention to see if people were having the same...
1) Weight gain (granted, I was in such a BAD flare up that my body was very malnourished and I was probably 15 lbs underweight)
3) Frequent urination at night
4) Sometimes a feeling of malaise or being out of it (but that could be from other things, i.e. work, stress, lack of sleep, etc...)
Hope to hear from some folks...