Urgency even when not flaring?

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talliecat
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 6/26/2009 1:29 PM (GMT -6)   
Hi everyone.... I think that I am finally coming out of the flare that I have been in ( as i say this I will probably jinx myself). I am taking 4 Lialda a day and have been feeling better for the past 11 days. I feel as if even when I am not in a flare... when I gotta go, I gotta go. Does this mean I am still flaring? Does anyone else feel the same? I am only having 1 to 2 BMs a day.
2 Lialda a day, Generic Rowasa Enemas, Canasa, Lexapro ( 10 mgs), YAZ, Boswellia, Sesame Seed Capusules, L Glutamine, Geranium tincture, VSL 3


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/26/2009 1:33 PM (GMT -6)   
     I would say you are still flaring a bit.  When I am in remission I feel like a million bucks.  No urgency, no bleeding no pain.  But when flaring....all of it.  This flare started around Memorial Day and I am no better even with all the meds and watching my diet like a hawk.  Today I even saw some blood.  It is just so frustrating.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 6/26/2009 1:49 PM (GMT -6)   
well .. you could still be flaring, but you could also have IBS on top of your UC... like me
Kara, 22F Married.
Latest - Lialda 2 twice a day. Currently colonoscopy shows remission. Apparently my symptoms are from my IBS side of my issues.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed.
I am so sick of this disease!
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 6/26/2009 1:54 PM (GMT -6)   
Hi..are you still taking the enemas talliecat?

Urgency is a funny thing...since you were in a flare, I'd say things are still healing, so technically, you probably still have inflammation, even if it's a very small amount.

Then there's urgency where one has had an urge to go now probably because of gas or whatever, but no rectal feelings attached like in a flare.

If you have that with every bm, I'd say you're healing...well on your way since you've said you're doing much better.

Urgency can be the last thing to leave...or as some have reported, they always have urgency even when in remission...I think it can depend on what kind of urgency.
 
But again, since you're recently in a flare, I'd lean to that reason.
 
Why did you up the Lialda to 4?

quincy


*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 6/26/2009 1:19:42 PM (GMT-6)


talliecat
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 6/26/2009 2:16 PM (GMT -6)   
Thanks for your responses. The doctor decided to up the Lialda to 4 a day as sort of a last ditch effort before going on Imuran. I thought I could stop doing the rectal meds but I guess I will keep on keepin on! I am sure that my daily cup of coffee does not help with the urgency either! I really dread the enemas but when I am flaring I will keep doing them, I prefer the suppositories although I know they probably don't do as much work as the enemas.
2 Lialda a day, Generic Rowasa Enemas, Canasa, Lexapro ( 10 mgs), YAZ, Boswellia, Sesame Seed Capusules, L Glutamine, Geranium tincture, VSL 3


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 6/26/2009 2:25 PM (GMT -6)   
did you stop the enemas?

The daily cup of coffee, especially whatever time you normally have it, will trigger the download of stool from the sigmoid into the rectum....
I kind of depend on that and have coffee in the morning..or when I have breakfast/brunch....for that fact. But, in the event that I'm out for brunch, I have two or more glasses of water upon waking up and that as well will trigger the bm urge.

It's habit for me to go, and I heed that without really holding it in for a long time. To take advantage and get on with my day is the point. But, if I were in a flare, I'd have a seond urge, more so that the first...that would be expected.

I will sometimes have a bm in the evening..depending on what I've eaten the day before. It's more of quantity rather than the urge. Again, the type of urge may be the determiner...

Excess gas will cause more of a difficult time holding in bms.

Definitely stick with the enemas. I don't like using them either....and I do notice more of a need to go in the morning after...it is what it is, but between them, not the same, so partly can be the enemas and extra "slip" since the liquid of it isn't felt like a stool would be.

Maybe my butt is just aging...got to start the kegel exercises...that might help some..

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 6/26/2009 9:06 PM (GMT -6)   
Try weaning yourself to decaf coffee. In my experience, caffeine in beverages triggers urgency within 15 minutes. (It also keeps me awake into the wee hours if I consume it with supper!) / Old Hat (30 yrs with left-sided UC ... [etc.])

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 6/26/2009 11:31 PM (GMT -6)   
Yes. I feel the same way when I am in the early stages of remission. I still have issues with urgency, but no other symptoms. The urgency gradually gets better, and I'm able to hold the poo in for longer and longer. I think the reason there is still urgency is that it takes awhile for the colon to heal. So while the colon my not be flaring, it is still too weak to hold in the poo.

Coffee, cream, and sweeteners are all not good for flares. Try drinking water or herbal teas instead. I drink Tension Tamer from Celestial Seasonings. It's anti-inflammatory.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working

Post Edited (subdued) : 6/26/2009 10:34:32 PM (GMT-6)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 6/27/2009 11:08 AM (GMT -6)   
I feel like I am almost in remission but my last sympton is urgency too. I wonder if I will ever not have urgency. Of course this urgency is nothing like it was when I was in a bad flare. I don't have to RUN for the toilet but I can't wait an hour or two to go either. When I was a kid, I could hold it for hours! I wonder if I have IBS.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 6/27/2009 11:39 AM (GMT -6)   
Hi nososicklygirl,

Don't worry. I've been in remission for about six and a half months, and I was actually had to hold it in for a whole day once about a month? ago. It takes a long time for the colon to heal.

I forgot to mention that I had a colonoscopy done when I first got into remission with my second flare. My GI officially declared that I was in remission. He also said my colon was 98% healed and that my recovery was remarkable. Yet it still took months for the urgency to go away.

I have IBS when I eat/drink stuff that contains a lot of fructose. I will have massive bloating, gas, and diarrhea. I don't think urgency is a symptom of IBS, not unless you are having diarrhea and that's why you can't hold it in.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working

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