6mp-Purinethol

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sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 6/26/2009 1:54 PM (GMT -6)   
My GI did my last flex sig on tuesday and gave me a prescription for 6mp on top of Rowasa and Lialda...

I read online and on the papers he gave me that mesalamine and 6mp don't mix... are there any other people on 6mp that are also on Lialda? or Rowasa?


I have the pills and I'm terrified of taking them!!!! I look at the bottle and I'm just like AHHHH. I don't want the side effects!
Kara, 22F Married.
Latest - Lialda 2 twice a day. Currently colonoscopy shows remission. Apparently my symptoms are from my IBS side of my issues.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed.
I am so sick of this disease!
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/26/2009 1:56 PM (GMT -6)   
     I'm on 75 mgm of 6MP (doc wants it upped to 100 but I am going to stay on 75 for a bit longer), 20 mgm of prednisone, Colazal (3 pills 3 x a day), Cort enemas and Canasa.  How's that for a sweet cocktail?  Great if it would work, but suffering this flare for a month now with NO change whatsoever.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/26/2009 1:59 PM (GMT -6)   
6mp, or a comparable immunosuppressant drug, is often prescribed along with ASAs. The ASAs are considered to be more helpful for mild to moderate cases of UC and/or to help maintain remission.
 
I'm curious as to why your doc is pulling out the big guns if your last scope indicates you're in remission?


Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 6/26/2009 2:04 PM (GMT -6)   
ah because that was a month ago... and i was in remission from the prednisone.. i got off pred two weeks ago.. and started flaring after a few days.. he did a flex sig on tuesday and it showed i'm inflamed 40cm... sorry just changed my signature..
Kara, 22F Married.
Latest - Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed, 6mp 50mg a day, Rowasa enemas.
I am so sick of this disease!
 
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 6/26/2009 2:14 PM (GMT -6)   
im still scared hahaha.. i dunno just all those side effects.
Kara, 22F Married.
Latest - Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed, 6mp 50mg a day, Rowasa enemas.
I am so sick of this disease!
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/26/2009 4:03 PM (GMT -6)   
Sorry to hear that. Yes, I found the side effects intolerable. And it didn't seem to help me either. One of the many reasons I continued to investigate alternative therapies.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/26/2009 4:49 PM (GMT -6)   

All you can really do is try!  For those who can take 6 MP, mesalamines, etc. they can help so much.  I tried and found I could not tolerate the mesalamines so went to prednisone and 6 MP.  You know prednisone gets you into remission while 6 MP is building up to keep you in remission.  Well, I was fine on 50 mg. but had flu-like side effects when going to 75 mg. after a few days.  Then the doctor sent me for a special Prometheus blood test that shows him if the doseage is theraputic.  In my case I cannot take a strong enough dose to do any good!  He more or less told me I could/should not go on anything like Humira or Remicade because of my age - 69!

So, the new specialist told me I would have to push rectal meds to get into remission.  He told me to stop 6 MP and taper prednisone - I am now on 5 mg.  I also have rectal UC up about 30 cm.  from last test.  I just got the Cortiform and Anusol today - wish me luck.

 


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works!
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/26/2009 4:56 PM (GMT -6)   
     Good luck Elaine.  How are you feeling over all?  I noticed some bleeding today..bummer.  Still have the pressure in the rectum too.  What I wouldn't do for a decent night of sleep.  Scared of now becoming dependent on sleeping pills.  One Ambien CR is NOT doing anything anymore.  Of course, it is only 6.5 mgm.  The night before last I took two and it did help.  When the pain gets bad in the rectum I resort to Hydrocodone but hesitate about that too.  I don't want to get like these celebrities and become a pill junky..lol.  Right now I look like a walking zombie and needless to say feel like one.  My husband said, "Why don't you just lie down and take a nap?"  He can fall asleep on the sofa pronto.  Oh how I envy that!  I lie down and just lie there...exhausted but sleep will not come. cry
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/26/2009 5:08 PM (GMT -6)   

Overall, Christine, feeling better.  Going off the 6 MP made me feel much better - less nausea, sweating, etc.  Tapering prednisone has given me back some better sleep but I always had trouble sleeping.  Xanax is my salvation with anxiety and sleeping.  I only take 1/2 every 4 to 6 hours but it works.

I hate doing the rectal meds but have to keep remembering how I felt before UC!!!  The Cortifoam looks like it will be easier to use - hope so!  I am still seeing blood but not every day like before.  Less urgency and less discomfort left side.  I know the Imodium is helping me most and will continue as I need it and remember it is not healing anything but helping me cope!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works!
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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