questions for christine1946

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lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 6/26/2009 1:04 PM (GMT -6)   
I have noticed you have alot of the same issues as I have and had a couple questions for you. I have been taking asacol which does nothing for me. I am also on prednisone and proctifoam and the prednisone is the only thing that works but been on it for quite a while and they want me off of it asap. My dr prescribed me colazal (3 pills 3x per day) my insurance will not cover it because they say that because of statistics it will probably not work because of the mesalamines not working.  So my question is....Did you try asacol/pentasa before the colazal? Does the colazal work for you?  The dr says if the colazal fails then he wants to do remicade but I am not willing to try that yet.  I am appealing getting colazal covered and my dr is fighting it for me. I cant afford to pay 90 dollars a month plus all the other meds im on right now. So if anyone has any success with colazal that didn't have any on asacol/pentasa let me know. Im just trying to figure out if its worth jumping through the hoops to get the prescription covered or if i should just forget it.
Colonoscopy on 4/23-diagnosed with severe ulcerative proctitus
 Meds:
12 Asacol/day - don't think it actually is working
proctofoam at night
prednisone (5 mg) - getting off pred at end of June
Vitamin D
Calcium
Azathioprine (50 mg)   severe reaction 
pentasa  didn't work
canasa   didn't work
 
 
Waiting to feel healthy again and waiting on the next plan of action since can't take azathioprine....
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/26/2009 4:03 PM (GMT -6)   

I am not Christine - however, we have decided we have similar conditions/problems also.  I am 69.  The only thing is that I cannot tolerate mesalamines - tried Asacol, LIalda and Colozal but not at high enough doses to help I get flu-like side effects so had to quit.

I went on prednisone in February and it almost got me into remission (seemed to be when starting anyway).  My doctor put me on 6MP so I could taper the prednisone.  Blood tests showed that 50mg. and for a short time 75 mg. was not therapeutic and I get those same side effects so no use taking it.

I went to a new specialist - with 30 years experience - he stopped the 6MP and I am tapering the prednisone (now on 5mg.) and finish in three weeks.  He said because of my age he would not consider Remicade or similar - too risky was his words!  He said I would have to fight it topically - pushing rectal meds.  Now starting tonight Cortifoam (stronger than Proctofoam) followed by a Anusol suppository.  This I will do three times a day (as many days as I can -hard when going out for the day).  He told me when I get in remission I can decrease the rectal meds gradually!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works!
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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