Radidal Colectomy

I need answers for all of my problems
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Other meds that can help - 100.0%
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Suggestions for propholactic care - 0.0%

 
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Joyce Zucchini
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/26/2009 3:11 PM (GMT -6)   
 1 st surgery:I had a radical colectomy in several surgeries [2 1/2 years ago]. I was so diseased my colon literally fell apart when it was removed.2nd surgery: I had to wait for healing before my rectum was removed. [I had pan colitis]. I had really bad infection when my rectum was removed and an ileal "J" pouch was made and left dormant for 2 months in preparation for my reversal.
3rd surgery: I had to be put on a wound vac to heal my wound and infection. I had the wound vac for 5 1/2 weeks which caused post neural pain similar to diabetic neuropathy. I am on several medications as well as a pain patch for burning
 pain. I'm looking for some relief myself, painwise.4th and final surgery: reversal. And the fun began! 
I have many bathroom visits during the night due to bowel incontinence. I use Metimucil and Immodium prior to bedtime and have to
take sleep medication otherwise I wouldn't sleep at all.
I have to wear pads day and night as I sometimes leak. [Moreso at night] I don't get any warning at night.
I need help for this constant burning....does anyone have any remedies???? The meds that I take definately have taken a toll on my
body. Massager
 
 
 

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/26/2009 4:37 PM (GMT -6)   

The first line of defense for butt burn is Calmoseptine.  It can be purchased where you get ostomy supplies or at www.calmoseptineointment.com  You can also try eating metamucil wafers; supposedly they bind the acids and make for less burn on output.  For more tips go to www.j-pouch.org  There are not too many surgery folks here but over 6000 on the jpouch site.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Joyce Zucchini
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/26/2009 5:05 PM (GMT -6)   
I use calmoseptine on a daily basis at times, especially when I've eaten something and it causes me to be acidic. I've done the prednisone for 10 years which caused a lot of bone loss. I've done the special diet eating nothing but lactade free foods, stay away from
graveys heavy meats etc. it seems to help.
Thanks for the tips and the search engine for jpouch I think it will come in handy.
Massager wink

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/26/2009 7:07 PM (GMT -6)   

Okay, if calmoseptine doesn't help you then you need to pull out the big gun, Ilex.  Be sure to follow the application direction carefully.

Yikes, 10 years of pred use!!!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Joyce Zucchini
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/26/2009 9:24 PM (GMT -6)   
My j-pouch seems to be going well, I just have to enlarge my pouch by doing my excercises etc.
My problem is having to take Neurontin plus Hydro-Codone 3x per day for the burning pain [wound vac 5 1/2 weeks].
My night time bathroom visitation could be a little less, but, I think that hopefully will take care of itself with time.
Massager
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