Hello all! I read the posts daily and think about
everyone all the time. I'm glad many of you are feeling well. I hope those that are struggling for remission find it soon.
Bratcat is doing great. She graduated from high school on Thursday! Graduation was beautiful. Can you believe it is almost a year since her surgery? For her, it was the best decision. She had an absolutely fabulous senior year. She started school with an ostomy and had her reversal in November. She just blossomed this year. The peacefulness on her face was wonderful to see. Many of her teachers really got a chance to see the "real" her after knowing her through UC. Many times during the school year I would watch her during a concert or a ceremony interacting with her friends and just glowing. Partly because she had the "senior mentality" (I'm gonna make this the best year ever) and partly because she didn't have to worry about getting sick again.
She got into the college that she wanted. She's going to live at home (we make it way to good for any of the kids to ever move out). She wants to be an elementary educator.
She has her one year pouchoscopy on Monday. The only prep she has is to take an enema that morning. The surgeon's office called us this week. The surgeon no longer accepts my husband's insurance. I checked to see if he would accept my job's insurance because I would have put her on it but he doesn't. The out of pocket cost for us will be $200 (an existing patient bargain). Not happy about it but what can we do. If all goes well, she'll only have to see him once a year. In the back of my mind, I still worry about what happens if she needs him for something more, but we'll cross that bridge down the road. We love him and really don't want to find someone else now.
Her brother, nonamejames, is doing well too. His Crohns seems to be holding. He didn't have insurance for awhile so he hasn't seen the doctor recently. He needed a refill on his 6-mp during that time and it was the first time we could really "appreciate" what many of you go through without insurance. We got him a one month supply for $55. Just before his 63 day grace period was about up and we were going to try to get him on HealthyNY, my job switched from working full time at home (without any benefits) to full time at the office. Luckily my health insurance covers dependents up to 28 with or without being in school! He got his renewal for his 6-mp under my insurance (the pharmacy didn't even count the one month supply towards his number of renewals). I think I paid $45 for 3 months. The pharmacist showed me the bill if we didn't have insurance ($1317!). He has to go for bloodwork (my only regret during all this time) and set up to see the doctor. Nonamejames graduated from community college in December, had his ceremony in May, and is going back there in September for another associate's degree.
Their younger brother (I think I'll call him TboneBoy cause he's a great trombone player) graduated from middle school on Thursday also. Three graduations in less than a month! It's been great but exhausting.
Not sure if there was a thread here about making Facebook friends (I know the Ostomies forum has one). If anyone wants to friend me, email me and we can "meet".
I'll keep reading how everyone is doing, posting when I feel I can contribute.
Thanks again to all of you. You have been (and always will be) our strength through some of the darkest times in our life and have been there to share many of the joys.
--Mom of bratcat (18 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect! Living and loving life as a teenager should!
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp