Have UC and additional illnesses - feeling like no one understands!

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New Member

Date Joined Jun 2009
Total Posts : 10
   Posted 6/27/2009 5:44 AM (GMT -6)   
cry  Hi, I have had UC for about a year and a half now.  I'm on 2 Humira pens every 2 weeks, 150mg Imuran, Lialda, and starting to ween off Prednisone after being on it for over a year.  Needless to say, this has been a long road to getting better and lots of side effects.  I was also just diagnosed with acoustic neuroma - a rare benign brain tumor that has damaged my hearing.  I also lost my Dad a year and a half ago to cancer and my husband divorced me in May giving no specific reason why.  Welp, I'm pretty depressed ladies and gents.  I feel very alone and that my friends are sick of dealing with me, although I try hard not to complain.  I'm really just looking for any advice on how people deal with chronic illnesses and side effects and remain happy and part of "regular" society.  I would love to join a support group in my area, but there isn't any.  Any advice would greatly be appreciated.  Hope you all are well today! :)

Veteran Member

Date Joined Mar 2008
Total Posts : 678
   Posted 6/27/2009 6:41 AM (GMT -6)   
I've recently started taking Effexor, it has helped me not to feel so overwhelmed with having UC.
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Trying Applied Kinesiology & supplements.

New Member

Date Joined Jun 2009
Total Posts : 10
   Posted 6/27/2009 7:10 AM (GMT -6)   
Thank you very much for your response.  I have been on Effexor in the past.  Just a FYI, if you ever decide to come off it, please make sure you do it very slowly in small amounts.  Thanks again! :)

Female, age 34
Diagnoses: UC, Depression, Acoustic Neuroma
Meds: Humira 2 pens every 2 weeks, Lialda, Imuran 150mg, Cymbalta, Prednisone

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 6/27/2009 8:14 AM (GMT -6)   
When I was still going 15 times a day even with steroids, my pcp told me I had type 2 diabetes, probably from long-term steroids. I completely broke down right there in her office. We talked, she started me on Zoloft, and within a couple of weeks I started to feel much better.

A huge percentage of people with chronic illness have depression. And you've had some serious losses recently. You have every right to feel depressed, and every right to feel better. Please talk to your doctor about this.
Ulcerative colitis forum co-moderator
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"

Regular Member

Date Joined Jun 2009
Total Posts : 82
   Posted 6/27/2009 8:45 AM (GMT -6)   
Oh wow... What a lot to have to deal with in a very short time. I'm really sorry to hear about all of your recent troubles.

It might be helpful to look into your anti-depressant options as others have already suggested, but I think you might want some short-term counseling to help you through the grieving process. Some therapists act like therapy is forever, but many will help you with selective problem solving and helping you feel more integrated with daily life. You seem to have some particular goals, so I think it would be especially helpful to you to let a professional help you meet them.

Good luck (and I hope you feel better soon).
28 year old American in South Korea.
Diagnosed with Mild UC May 2009.
Currently on Asacol 2 pills/3 times a day and nightly suppositories of the same.
Stage One:  Food Journalling and Research about UC
Preparing to begin Vegan Healing Diet

Regular Member

Date Joined Sep 2007
Total Posts : 365
   Posted 6/27/2009 11:39 AM (GMT -6)   
I am currently on paxil...I have had UC for 15 years....Paxil has really taken the anxiety edge off....

I also had a tumor in my brain region... I had a non-cancerous pituitary tumor removed through endonasal surgery... If you are close to Pittsburgh, I highly recommend Dr. Amin Kassam - he is amazing and has developed many procedures in operating on brain tumors.
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Left sided UC, most recent scope 5/20/09 UPMC Pittsburgh Presbeterian
Medications:No longer on Pred as of 6/15/09, 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections monthly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"

New Member

Date Joined Jun 2009
Total Posts : 10
   Posted 6/27/2009 12:02 PM (GMT -6)   
Thank you all SO much for your responses and suggestions.  You have no idea what the kindness of strangers means to me. 

Female, age 34
Diagnoses: UC, Depression, Acoustic Neuroma
Meds: Humira 2 pens every 2 weeks, Lialda, Imuran 150mg, Cymbalta, Prednisone

Veteran Member

Date Joined Mar 2008
Total Posts : 1580
   Posted 6/27/2009 12:04 PM (GMT -6)   

Sorry about your illnesses.

So many people are walking around with multiple things wrong, some quite serious yet somehow we seem to manage. I see, read and hear of others who are even in worse shape so I'm thankful I've "only" got what I have. Hope you feel better soon : )

Veteran Member

Date Joined Jul 2008
Total Posts : 748
   Posted 6/27/2009 12:31 PM (GMT -6)   

I am so sorry that life has dealt you such a challenging hand, YJane. And glad you found us for some support.

I very much agree with Diana about finding a therapist. I only have the UC and an alcoholic father on my plate, and I am currently searching for a therapist to start seeing. ITU (I totally understand-sorry, I am so used to typing in abbreviations it is second nature now!) how you feel about friends getting tired of hearing it. I imagine they are not tired of hearing about your problems, but rather feel somewhat helpless to being able to offer you much help in dealing with everything. No doubt, those close to you want you to feel comfortable coming to them, but most people in our lives are not equipped to deal with just the UC, let along brain tumors, the death of a parent and a divorce all at the same time. In that way, I think it would really benefit you to find someone you could talk to who could not only help you, but whom you know will be there to listen and support you when you don't want to turn to your loved ones, you know?

Life is hard-and life with everything you have been dealt could be a dealbreaker for a lot of folks. But here you are, fighting to get your life back together, asking for support and seeking out help. You are obviously a very strong woman, so keep your head held high, and lean on people here anytime. That is what we are here for.
34 years old, stay at home mom of 2 girls, ages almost 4 and 2.5
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Off of canasa because of severe joint pain (side effect)

Regular Member

Date Joined Jun 2008
Total Posts : 419
   Posted 6/27/2009 1:38 PM (GMT -6)   
Do have a church or religious affiliation that you could turn to for support? Have you thought about starting a support group in your area? Maybe contacting CCFA would help. They can probably give you advice and resources on how to start a support group. Helping others usually help us and give us a distraction from our disease. Good Luck!

Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4

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