been a while...what now?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 6/27/2009 6:45 PM (GMT -6)   
Hello everyone,
 
I am checking in. It's been a while since I've typed anything, but I have read many of your posts. When I am not in a flare, I try my best to live life without thinking about it at all.
I was just diagnosed last december...pancolitis. I had prednisone and have been on pentasa for maintenance ever since. I have had the odd bad day, but overall been ok...not perfect, but happy and well.
WELL....last week I went away on vacation. I forgot all of the diet rules etc....big trouble. I am now on my 3rd day of a flare..it's really getting me down. The first flareup since I've been on meds. I almost forgot the feeling of running to the bathroom every hour or more...but now it's almost at that point.
What do you guys do when this happens? All the thoughts of how Pancolitis is the worst kind and thought of surgery are all storming back...pre-maturely I hope.
How do you guys handle flares...what do you eat differently. Can I get it back down on my own and continue the pentasa? How long before I should go see my GI?
Any help would be awesome! I'm always trying to stay positive...sure makes it difficult tho sometimes.
Thanks :-)

Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08 - pancolitis
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg tapering ... 5mg day - Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 6/27/2009 7:50 PM (GMT -6)   
For me, I normally go on a health binge. All fruits and veg. I did that last year and my flare went away by itself but with just the normal meds I was taking.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Canadian Chick
Regular Member


Date Joined May 2009
Total Posts : 60
   Posted 6/27/2009 8:28 PM (GMT -6)   
I usually end up eating the few fruits and veggies that don't bug me for days or weeks until I get teh flare under control. I also eat much less than normal (and am hungry for most of the day) as I feel resting the colon does help.

I would call your doctor as soon as possible. Even if he can't help now, he can tell you at what point you need to take different meds, etc. If he/she doesn't know your situation, he/she can't help you, should it get worse.

LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 6/27/2009 11:48 PM (GMT -6)   

Thanks for your answers CanadianChick and Sweetie. I'll try health binging for a couple of days and if things don't improve dramatically, I'll probably call the doctor. The reason I'm hesitant to call him is that some dont believe that diet affects colitis, and therefore I'm pretty sure he might push prednisone. I'm not afraid of it, but would like to avoid it when possible...especially if it can be fixed by diet.

Thanks again..always nice to talk to people in similar situations.


Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08 - pancolitis
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


lucasJ
Regular Member


Date Joined Apr 2009
Total Posts : 178
   Posted 6/28/2009 5:27 PM (GMT -6)   
hey, call your doc and ask for rowasa. It really helps i think for a lot of people. And don't stress. Seriously, I would not worry about losing my colon. If I could, i would get mine removed right now and go for a j pouch. I think most people who get it wish they had gotten it sooner. I'm not saying it is the first preference, but at least now adays, we don't have to live with a pouch on our sides for the rest of our lives. I believe relaxing, healthy eating and rectal mes will def help you out. Flares are gonna come with this stinking disease, and UC feeds on stress. Keep us all posted.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 9:01 AM (GMT -6)
There are a total of 3,005,831 posts in 329,268 threads.
View Active Threads


Who's Online
This forum has 161807 registered members. Please welcome our newest member, Wimp7755.
244 Guest(s), 10 Registered Member(s) are currently online.  Details
mirowpl, alltheway, mattamx, Kent M., BossJ, pasayten, browntrout, InTheShop, (Seashell), iPoop