For me it was difficult if not impossible to gain weight without having my symptoms somewhat under control. I am 5'8 and my weight went from 125 (diagnosed) to 102 my lowest point to 140 (prednisone), now I am 120, currently im not completely in remission but I have finally found the right mix of drugs to get me in a better place.
At my lowest point, not only could I not keep food in but I had no appetite. I could go days without eating and not being hungry, when I did get hungry it took very little to fill me back up. I had very little energy, I developed severe anemia, avascular necrosis from the prednisone and take 5000 iud?(is that right) of vitamin D because I have a large deficiency. I suffered fractured hip bones from the prednisone hurt like h__L, had to have surgery. Nothing is worse than trying to hobble to the bathroom on crutches.
I have taken a variety of medications, asascol, prednisone, etc. Finally I was bumped up to Remicade, Immuran and colazal and nothing changed. I put myself on very low doses of predisone for 45 days, without my doctors consent (I worked my way from 25 to 1mg) and things were better (not in remission but my stool was solid, no bleeding, less frequent trips etc). When I stopped taking it things were good for a while but then I noticed when I would take colazal I would have to rush to the bathroom. 1 month ago, I stopped taking colozal and things are absolutely better, I still have urgency but for the most part I only go two or three times a day max.
Remicade, Imuran (was on colazal but I swear it made things worse)
Post Edited (kshalayj) : 6/29/2009 1:15:04 PM (GMT-6)