do any of you have a hard time gaining weight with this disease?

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cyn555
Regular Member


Date Joined Aug 2008
Total Posts : 308
   Posted 6/28/2009 2:28 PM (GMT -6)   
do any of you guys have a hard time gaining weight with this disease? i tried for a while drinking boost drinks with my meals and it worked for a while but its pretty expensive buying them so i stopped and my weight went back to what it was before. do any of you guys have any tricks to gaining weight?
 
- 23 year old female, Gatineau, Quebec
 -diagnosed with UC june 2007 panacolitis
- Asacol (6 daily)800mg
- Salofalk (1 at bedtime) 1000mg


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/28/2009 4:19 PM (GMT -6)   
Yes, particularly if you're a natural ectomorph - thin and small boned.

There is no magic pill. Eating a balanced, healthy diet with plenty of protein and healthy fat, combined with a weight training program will help put healty weight back on. Bodybuilding protein shakes or meal replacement shakes are a healither choice than Boost or Ensure, which contain alot of sugar and bad fats.

The use of probiotics and healing supplements to reduce inflammation will help heal the digestive tract. Digestive enzymes can help you digest the food you eat more completely. Both of these things will contribute to better absorption and easier weight gain.

What they told is in elementary school is wrong: It's not "You are what you eat," but rather "You are what you can properly digest and assimilate."
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 6/29/2009 6:49 AM (GMT -6)   
Funny, I seem to get bigger with UC, when flaring or suffering from heavy D. Abdominal bloating is a big part of it, and an overall sense of retaining fluids or something. When in remission, I seem to lose weight.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 6/29/2009 10:00 AM (GMT -6)   
I gain weight when flaring and then loose it afterward. I think its because I get weak when flaring from loosing so much blood. I have to eat more to get my strength back.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/29/2009 11:48 AM (GMT -6)   
supersaw said...
....so I dont know how its possible that people have a hard time gaining weight with UC

A lot of people suffer from weight loss and malnutrition because motility is increased and absorption is usually impaired.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 6/29/2009 11:53 AM (GMT -6)   
If I cut out sugar and carbs my weight drops about 20 pounds, which is what I have been doing to help my illness. According to the charts I am at perfect wieght for my build right now, but everyone thinks I am too skinny. It can take months to put weight back on again from past diets.

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/29/2009 12:16 PM (GMT -6)   
Yes, I do have a hard time gaining weight- my weight goes up & down about 3-5 lbs, that's it. I weigh 115 now, and am about 5'5". Which is pretty slim- after being really sick for a year or so, I was down to about 95 lbs. & looked horrible. I managed to put on weight to where I am now, but can't put on any more. I get tired of the snide comments- today someone at work said "Have you ever eaten a donut in your whole life?". As I was grabbing one. Part of what makes it hard to gain is that UC is a catabolic disease- your body's metabolism rises during inflammation, having to fight constant inflammation burns more calories than a healthy person. So if you are always flaring, to some degreee, your metabolism is going to be higher. I eat a lot, I think, & still don't put much on.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2105
   Posted 6/29/2009 12:41 PM (GMT -6)   
While flaring I lost a fair bit of weight, but I had a lot to lose so never looked gaunt at all. The minute I went into remission the weight came back FAST, so now I am back to my usual struggle to lose weight in a healthy way.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


kshalayj
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/29/2009 12:47 PM (GMT -6)   

For me it was difficult if not impossible to gain weight without having my symptoms somewhat under control. I am 5'8 and my weight went from 125 (diagnosed) to 102 my lowest point to 140 (prednisone), now I am 120, currently im not completely in remission but I have finally found the right mix of drugs to get me in a better place.

At my lowest point, not only could I not keep food in but I had no appetite. I could go days without eating and not being hungry, when I did get hungry it took very little to fill me back up. I had very little energy, I developed severe anemia, avascular necrosis from the prednisone and take 5000 iud?(is that right) of vitamin D because I have a large deficiency.  I suffered fractured hip bones from the prednisone hurt like h__L, had to have surgery. Nothing is worse than trying to hobble to the bathroom on crutches.

I have taken a variety of medications, asascol, prednisone, etc.  Finally I was bumped up to Remicade, Immuran and colazal and nothing changed. I put myself on very low doses of predisone for 45 days, without my doctors consent (I worked my way from 25 to 1mg) and things were better (not in remission but my stool was solid, no bleeding, less frequent trips etc). When I stopped taking it things were good for a while but then I noticed when I would take colazal I would have to rush to the bathroom.  1 month ago, I stopped taking colozal and things are absolutely better, I still have urgency but for the most part I only go two or three times a day max.

 

Remicade, Imuran (was on colazal but I swear it made things worse)


Post Edited (kshalayj) : 6/29/2009 1:15:04 PM (GMT-6)


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 6/29/2009 1:06 PM (GMT -6)   
I am also one who wished I was in the category of not being able to gain! I am very overweight-more so than ever before. I gained 50 pounds in 3 months on pred, and haven't take much of that off (I am starting a new 90 day program, so hopefully that will change!). Before the pred, I was still overweight, so I have a long way to go.

I will say that when I was flaring badly I lost 35 pounds. It was just before being hospitalized, so I guess the upside is that even with the pred weight, that put me at 15 pounds over my heaviest weight. Still not good. It was sad though that people were telling me how great I was looking, etc, and I was at my absolute sickest.

I can definitely see how people in a flare would struggle to keep weight on. I guess I just have a much bigger buffer than most!!! (but hopefully not for long!!)

If I could, I would HAPPILY send some of my excess your way!
Laura
 
34 years old, stay at home mom of 2 girls, ages almost 4 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Off of canasa because of severe joint pain (side effect)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 6/29/2009 4:33 PM (GMT -6)   
When I flare, even if it's minor, I lose a ton of weight really quickly. A few weeks ago I had a relapse and I felt skinny. Now I feel better and I seem to be average. When I was sick, a few months back, I weighed 100 and I couldn't put on a pound. I couldn't be bothered eating because the more I ate, the more I crapped. Interestingly enough, even if I didn't eat, I still crapped constantly but half the time barely anything would come out. I never understood how I was crapping when I didn't eat anything. I would starve myself all day to try to make it through work without crapping myself then pig out at night and spend the whole evening running to the toilet. nice life, huh?
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/29/2009 5:30 PM (GMT -6)   
You hit the nail on the head, notsosicklygirl- not eating all day to get thru work, then running to the can all night after eating dinner! Yeah, adjusting is key..... I haven't enjoyed bars in ages- I do like a nice dinner and a few drinks, & when I actually do drag my butt to a bar I generally have a good time. But's it's so infrequent nowadays. There's always that worry about a bathroom line, or something like that. I much prefer a nice cocktail or 2 on my porch these days! And heading off to bed by around 9:00!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 6/29/2009 7:43 PM (GMT -6)   
what do you do until 2am? I am in bed at 10 or 11 usually. I like getting up at 7 so I have to go to bed early.
 
Sorry I was being so negative before. I am just upset because I put on a few pounds right before the summer and I look like ass in a bathing suit. I am pretty sure I have cellulite and/or loose skin. I am not used to this kind of crap even though I am old. I know people deal with a lot worse but most aren't also contending with Colitis. tongue   It is always something. I laugh at myself for feeling this way but at the same time, it's not funny. I have a negative self image and nothing will change it. I am going to be old and alone with colitis. I have to laugh at myself. I don't really care, old and alone isn't so bad - colitis, that's another story. I drink like a fish but tonight I am drinking at home, tomorrow, perhaps the bar will suit me. Lately I've been feeling good but I am still down about the cellulite. like I said, it's always something! If it weren't the cellulite, it would be the lack of a job or the fact that i'm a loser, maybe being uninsured, single? who knows, I always find something to obsess over. I am down in the dumps though, surprising that I am obsessing over a little cellulite on my backside when I have real issues.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 6/30/2009 12:53 AM (GMT -6)   
I've had this disease for 10 years and most of it I've had a heavy weight at about 180-190 lbs. Since January of this year I've cut out a ton of junk food and carbs (bugged my colon anyways), and I've gone down to about 163 lbs. At 6'0 I'm happy with this weight because I'm a workout freak. I figure if I lose any more weight and keep it off, I'll try to eat more than I'm comfortable eating.
Age: 31
Location: Missouri
Diagnosed with UC in 1997.
Medications: Mesalamine rectal meds, back on 100 mg Azathioprine
 
 
 

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