what defines a flare

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 6/29/2009 6:59 PM (GMT -6)   
I have been taking Entocort and Asacol and the bleeding seems to have stopped.  I still have cramping, frequency and mucous.  So, remission or flare?  Thanks.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 6/29/2009 7:06 PM (GMT -6)   
improving from a flare. It's not all or nothing...it's a process of inflammation starting, increasing, treating, decreasing..etc.

You state that Entocort failed (in your signature)..is that not true at this point?

In your question of this thread..are you on the oral or rectal entocort?

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 6/29/2009 7:26 PM (GMT -6)   
Oral entocout. I took it for 6 weeks with no improvement, then had a scope. Doctor said give it up it isn't working. Asacol also made me worse some time ago. Recently, doc said he wanted to give that combination another try. It has been several weeks. I have noticed no improvement except that I am not passing blood, but that has always been an off and on thing with me. I may pass quite a bit of blood for several days...then no blood, then another random day of bleeding during a flare.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 6/29/2009 7:32 PM (GMT -6)   
ok....well, you should be on rectal meds as well...something to seriously discuss with your doctor. That could be a huge why you weren't having success with the oral med process.

Consider UC starts at the lowest point of the rectum....what oral meds will get there?

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 6/29/2009 7:36 PM (GMT -6)   
strangely, my doctor did prescribe rectal meds, then within 24 hours (hadn't filled the prescription) I ended up hospitalized for three days because of the flare. Before discharge he told me to not use the rectal meds and I never really questioned why. I guess that would be a good question for my next visit. Thanks.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 6/29/2009 7:40 PM (GMT -6)   
Dont wait for the visit...call the doctor and ask why.

Which rectal meds did he prescribe for you?

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 6/29/2009 7:48 PM (GMT -6)   
Rowesa. I think that the concern over rectal meds was the extent of the diverticular disease I had as well. So, they may not be an option for me, but you are right, it can't hurt to ask.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 6/29/2009 7:53 PM (GMT -6)   
I can't see that a 5ASA med would be bad for diverticular disease when in conjunction with UC....but haven't done any research on it. You might want to do it since you have both....knowledge is power and at least you know what you'll be asking about.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 6/29/2009 8:48 PM (GMT -6)   
sounds to me like you have had slight improvement but not remission. I have seen people here who consider themselves flaring and don't have blood. Lack of blood alone is not enough to say you're healed. For me, when the blood stopped, things progressed quickly to feeling better. My first symptom was blood and it was continuous for over a year but I didn't have any other serious symptoms until much later. I agree that rectal meds may help. It's worth a try. goodluck!
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 6/30/2009 2:37 AM (GMT -6)   
if you have any symptom at all you are flaring.
its when you are clear of everything and poo normally with no pain, blood, mucous, cramps (not normal ones anyway), D, etc...

even if you have mild symptoms and few of them, you are still technically in a flare.
flares can last days, weeks, months, years.

if you are completely symptom free, then you are in remission.
period!
steph - 33 - female - gold coast australia - UC since 2000
was in remission until i quit smoking 5 weeks ago  o.O  now im flaring like a solar flare!
waiting for blood test to see if i can start imuran
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
just finished 3 months of prednisolone (worked) and now back on 40mg a day (ick)
quercertin tablets, tumeric capsules, vitamin d3, enteric coated fish oil
pre-conception vitamins and minerals (cuz we trying to make a baby)
oxycontin for pain every 4 hours.  plastic bags in the loo from the involuntary puking.
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.
 
 
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 6/30/2009 10:22 AM (GMT -6)   
I think it is crazy that this disease is so hard to manage. For the last few years, I think I must be in some kind of constant flare. I do have periods of feeling much better, but the never last more than a few weeks at the long end. For me it is much more a day by day thing. So far, no medication seems to make any real difference. If I stay on Asacol or Colazal I seem to have a few less severe episodes, but I have to balance that with unremitting side effects from those drugs like dizziness, ringing in the ears, etc. I guess I am just having one of those days where I really wonder if I will ever just be able to take for granted that I will feel okay tomorrow. I am tired of not being able to plan my life because I never know how I might feel. Thanks for all the info. and letting me vent.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/30/2009 10:25 AM (GMT -6)   
aned said...
I think it is crazy that this disease is so hard to manage. For the last few years, I think I must be in some kind of constant flare. I do have periods of feeling much better, but the never last more than a few weeks at the long end. For me it is much more a day by day thing. So far, no medication seems to make any real difference. If I stay on Asacol or Colazal I seem to have a few less severe episodes, but I have to balance that with unremitting side effects from those drugs like dizziness, ringing in the ears, etc. I guess I am just having one of those days where I really wonder if I will ever just be able to take for granted that I will feel okay tomorrow. I am tired of not being able to plan my life because I never know how I might feel. Thanks for all the info. and letting me vent.


I completely understand. I feel the same way, except Asacol didn't seem to make any difference at all for me.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
20 mg Prednisone AM, 20 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 5:25 AM (GMT -6)
There are a total of 3,006,718 posts in 329,385 threads.
View Active Threads


Who's Online
This forum has 161847 registered members. Please welcome our newest member, Mindstrange.
130 Guest(s), 3 Registered Member(s) are currently online.  Details
Mustapha, JOKERWILD477, GuitarHunter