It sounds like you could use a second opinion from another doctor... if you don't mind me saying so. It's possible that your doctor is doing everything perfectly, but he should explain it so that you really know what is going on. For me -- and I have been to top doctors in New York City -- I got several opinions throughout the years. They nearly always agreed with each other, which made me feel that I was doing the right thing! So it is good for peace of mind too.
Rectal meds can be a life saver. Without them, I flare. With them, I can get back into remission or at least keep myself from getting really bad. There are a bunch of different ones that people here have written about
You can get a lot of great info for free through the Crohn's and Colitis Foundation of America. ccfa.org
There is a section on all types of meds and they have a free hotline you can call or you can email them. I highly recommend it!
UC for the last ten years
Current Meds: 6MP since 2006, Lialda, Asacol foam, Lomotil
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine, Cortifoam)
Alternative treatments I have had success with: Acupuncture, Hypnotherapy
Post Edited (julee70) : 6/30/2009 6:11:38 PM (GMT-6)