Call your GI and ask for rectal meds as well as dicyclomine.. The suggestion for Pepto would be a good one, but Blue5 is already on Lialda.
She does,however,need rectal meds to help get the rectum inflammation under control.
Blue5....you could also add a fibre supplement to your intake of supplements as well as probiotics. the fibre will help bulk the stool and hopefully slow down the urgency a bit.
Do you have bms before you leave the house? If you don't you might want to hurry the process or get up earlier so that you have bms before you leave home.
I don't see why you'd need to go back on pred....I'd refuse it forever as well.
Have you ever tried any of the rectal meds? I'd suggest initially retention enemas...Rowasa or if you're not in the US to use Salofalk or Pentasa...or at the very least to use Canasa up to 2 times a day.
Keep us posted as to how you're doing.
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!