Started Prednisone Today

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Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 6/30/2009 12:05 PM (GMT -6)   
Ok.. After my visit to the ER yesterday, I took my first dose of prednisone today.. 40mg until I get this flare under control, then tapering down to hopefully nothing except for my regular meds.. I have a follow up appointment today to see what drug therapies they want to try with me next...
 
  I'll let you know how it goes..... Only sign of the prednisone so far is my heart is starting to "THUMP"... lol... don't know if that's necessarily a good thing or not... 
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of June 30th, 2009 :  Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 40mg daily, Lialda, 2x2 a day, Rowasa every night, Canasa every am... Xanax for stress releif and Ambien for sleep...
 
               http://www.myspace.com/77016897         


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 6/30/2009 12:30 PM (GMT -6)   
((((((HUGS)))))) to you. Hope your flare ends soon. How has your appetitie been? What are you able to eat without cramping and D?

Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 7/1/2009 12:19 AM (GMT -6)   
Hi P-Fit.... Well since today is my first day on Prednisone... I have still not been feeling very good... No real appetite to speak of, but I can eat small amounts of food and not get cramps too bad... I just ate a very small portion of Chicken that my stepdaughter made for me (She's such a sweetheart) and some scalloped potatoes... Just enough to put something in my stomach and then had another ensure.. Although I did have a sandwich this afternoon that was turkey meat, deli style, with light mayo and whole wheat bread... that was pretty good with no bad cramping so far...

I drink ensure's mostly and those work wonders for me.. I took my 40mg of pred this morning with my oatmeal and one ensure, and my other U/C Med Lialda and went to my doctor today... He told me to stop all my other medications while on Prednisone, and to stay at this 40mg dose for 2 weeks then come back to see him about how I'm doing and to start the tapering process.

He said the reason to go off the 5 ASA's is that my body has developed a tolerance to them, and sometimes going off of them for a while get's your body back to how it was before and when you go back on them you will have a good reaction again.. That makes sense and as long as I'm on the Pred, I'll do what he says... Then when I start tapering the pred, maybe bring back in the Lialda and Rowasa and Canasa to see if those drugs can keep me in remission again.... Plus, the good side for now is that I only take the Pred once a day, and all the other pills PLUS the pred were kind of a pain...

I'm not sure as how certain foods effect me yet, I'll have to give it a week and see how I feel once the pred kicks in and get's my remission going.

All in all... Day one wasn't too bad.. but the 40mg dose is a higher dose and it sure got me cranked up... man that was the main thing was feeling like I had 30 pots of coffee and having to deal with it... NOT EASY... So I took a 1/2 a Xanax and that helped some and now that it's time for bed I took my ambien and that is finally kicking in so I'll end this for now... I feel that I can do this dose for 2 weeks with help from the xanax and ambien for sleep... then after that.. can start tapering and see what happens..

Just a bit freaked out, but hanging in there.. it's been a loooooong week....
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of June 30th, 2009 :  Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 40mg daily, Lialda, 2x2 a day, Rowasa every night, Canasa every am... Xanax for stress releif and Ambien for sleep...
 
               http://www.myspace.com/77016897         


quincy
Elite Member


Date Joined May 2003
Total Posts : 30971
   Posted 7/1/2009 4:04 AM (GMT -6)   
Hope you feel better soon!

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


gurgling tummy
Regular Member


Date Joined Aug 2006
Total Posts : 166
   Posted 7/1/2009 4:50 AM (GMT -6)   
Susiebuddy,
Definitely tell the doc about your racing heartbeat with the pred, make sure that you aren't having a reaction to it. I don't believe that it should cause that, at least it didn't for me. But anything that makes my heart race like that worries me. So let him know and keep an eye on it. I wish you luck with the pred and wish for a speedy recovery.
Emilie
*~~*Emily*~~*
Diag. Aug 06 (Proctosigmoiditis), finally diagnosed with Fibromyalgia 12 August 08, Paxil (1 a day) for Depression & anxiety, Azathioprine (1 every morning)Morphine (three a day) for pain, Tramadol (as needed for breakthrough pain),  Fioircit (for migrains), Phenergran (for nausea), Prednisone (10 mg tabs 4 a day), Omeprazole (for gerd from the pred), Tylenol PM (to actually get some sleep every once in a while), Calcium (for osteopenia), aloe juice (2Xs a day), chinese herbs for energy. And now Pred


PrednisoneJunkie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 7/1/2009 7:34 AM (GMT -6)   
FWIW, in my experience 40mg is enough to make your heart pound if you have a low body weight.
27 / Male
UC Diagnosis May 2003
Survived 9 flares
Have successfully tamed 1 flare without prednisone
Asacol 9/day
Supplements: probiotics lactobacillus acidophilus, bifidobacterium infantis, maltodextrin, L. rhamnosus, L. salivarius, and S. thermophilus
Diet: paleolithic (but I often cheat), non-smoker, non-drinker
Other problems: Childhood asthma


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/1/2009 8:56 AM (GMT -6)   
My heart was racing when I was on 60 mg, but now that I am on 35, I do not have the problem. I don't know if it was actually from prednisone or something else, though. It could have been coincidence
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
20 mg Prednisone AM, 15 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 7/2/2009 12:55 AM (GMT -6)   
Thanks everyone! I am at the end of my second day on Pred and today was better than yesterday... I didnt' have near as much hyperness and jittery's like yesterday... I actually felt pretty darn tired and didn't want to do much even though I had quite a bit to do.. but got it done and have been in bed since I got home this afternoon... I don't have the real bad cramps like yesterday, but the bleeding is still pretty present, but less.. so we'll see how it goes over the next few days.

Tomorrow's a lazy day... gotta stay down for a while before I can get back up!!
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of June 30th, 2009 :  Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 40mg daily, Lialda, 2x2 a day, Rowasa every night, Canasa every am... Xanax for stress releif and Ambien for sleep...
 
               http://www.myspace.com/77016897         


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/2/2009 5:10 AM (GMT -6)   
     I am seriously considering upping my prednisone to 40 mgm.  I started this flare about five weeks ago.  The doctor told me to start at 20 mgm of prednisone.  Of course, this does nothing, so I started at 30mgm.  Actually, the 30 for a week did nothing either.  I have no idea why he starts me so low.  He should know from my numerous past experiences (almost 11 yrs with this disease) that my lowest starting dose has always been 40 mgm.  Guess he just hates me being on the darn prednisone.  Well, I am not overjoyed either, but sometimes ya gotta do what ya gotta do.  He increased my 6MP to 100 mgm.  So far, this week, I have tolerated that ok.  So any opinions out there?  I am taking 20 mgm of prednisone, no sense in lowering to 15 which is what I was going to do.  I am still bleeding with urgency.  Tempted to go off the Colazal too.  Sick of taking nine of those babies a day and they are doing absolutely nothing.   Probably immune to them after eight years.  They haven't kept me out of flares.  Taking Cort enemas (which recently refuse to stay up there) and Canasa suppositories.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 7/2/2009 5:28 PM (GMT -6)   
Hey everyone.. today is day 3 and my main problem now is indegestion... Man O Man... I have heartburn or something.... I take a Nexium every morning but now with the pred I'm getting breakthrough burning... It get's less after a poopie session, (which are becoming more normal now and bleeding is way less.. YEA) but the heartburn is KILLING ME... And I feel like a freakin ZOMBIE.. I don't know if I can stand this too much longer... he wanted me to stay at 40mg for 2 weeks and today is only day 3.... WOW... I just don't know if I can hold out at 40mg.... I don't have a low body weight.. I'm about 5'7 and weigh around 170..... I must be really sensitive to medicines...
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of June 30th, 2009 :  Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 40mg daily, Lialda, 2x2 a day, Rowasa every night, Canasa every am... Xanax for stress releif and Ambien for sleep...
 
               http://www.myspace.com/77016897         


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/2/2009 7:11 PM (GMT -6)   
     Susie, prednisone can give you gastric ulcers.  Better notify your doctor about that heartburn.  When I was hospitalized last year they gave me 60 mgm of prednisone through the IV.  I had to take Nexium and thankfully I had no upper gastric distress.  However, the prednisone raised my blood pressure to alarming limits...210/110 and I was on three blood pressure meds.  It also raised my blood sugar and they gave me insulin through the IV.  No wonder my GI doctor refers to prednisone is the best worse drug.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 7/2/2009 10:39 PM (GMT -6)   
The Prednisone should knock that flare out for you. Hopefully you won't be on it too long.
Age: 31
Location: Missouri
Diagnosed with UC in 1997.
Medications: Mesalamine rectal meds, back on 100 mg Azathioprine
 
 
 


Apetro
Regular Member


Date Joined Aug 2008
Total Posts : 95
   Posted 7/2/2009 10:49 PM (GMT -6)   
Is it normal to stop 5ASA drugs? I'm curious because I once had a problem with Lialda during my initial flare after I was diagnosed and was taken off of it, only to be reintroduced later on.
http://asilentocean.blogspot.com/  -> My blog
 
Diagnosed 7/27/08
 
Asacol- 2.4g/day
 
Prednisone 20mg/day 40mg/day  20mg/day and tapering again....


janettzi
Regular Member


Date Joined Jul 2009
Total Posts : 23
   Posted 7/8/2009 11:43 PM (GMT -6)   
Hey,
Just wanted to check in, and see how youre doing (?), cause I am also on my second day of 40mg pred, first time. I thought it was a miracle the first day, like i was cured or something. BUt it was a bad joke, cause it wore off in about 12 hours, in the meantime, having been super excited about my new-found hunger, i had filled my stomach, and therefore spent the entire overnite in the bathroom.
Today was day 2, i guess im doing a little better, a little less pain and stuff, but i think im still up to 10 bms with a lot of blood. definitely NOT a miracle cure so far.

Those of you more experienced, is this the way it goes? Does it take a while to really start working? my impression was that it was gonna just stop all the inflammation and reallly turn us around quickly....

Hope youre feeling better!!!!


WIMOMOFTHREE
Veteran Member


Date Joined Apr 2009
Total Posts : 654
   Posted 7/9/2009 7:27 AM (GMT -6)   
This is my second time on pred.  The first time I was on 20mg for 7 days, then 15mg for 7 days, then 10mg for 7 days, and 5 mg for 7 days then off of it.  I was fine on the pred.  I felt like I was normal again.  When I got down to about 5 mg I started going D more.  about a week after the pred was stopped I was going D about 10-15 times a day again.  I started pred about two weeks ago at 20mg(not tapering yet because she is waiting until I start remi and get through the first group of infusions).  Within a day or two I went to about two bm's a day.  I really don't have any side effects on pred but I'm worried about long term use.  I really feel normal on pred(except I get tired).  You almost forget you have UC then you go off the pred and almost right away you feel like crap again.  I hope the pred gets you out of your flare and that you don't experience to many of the side effects.  Isn't UC fun? 

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/9/2009 1:54 PM (GMT -6)   
The thumping is normal. Weird feeling.
Be sure to eat bananas, or something else with lots of potassium, to avoid muscle cramps.
I find (natural) peanut butter helped with the hunger, because just a little would make me feel less ravenous.

I found I need at least a little time -- even a day or two -- at 40 mg of pred to get out a flare. But then 30 mg would do the job, maybe you can get down to that by now. As much as I tried to use a lower dose to get out of a flare, it never worked very well, like you guys have said.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 7/11/2009 10:58 AM (GMT -6)   
Hey again~!

Today is day 11 on Pred... Still some bleeding but my cramps are gone and overall I feel better... Prednisone has not been the miracle drug I thought it would be, but it has me going in the right direction at least.. I have to stay on 40mg for probably another week or so before I can start to taper, but so far, no major side effects except for feeling like I've had about 30 cups of coffee all the time.. lol.. AND.. I've actually LOST weight.. 7 pounds so far and averaging about 1/2 pound a day... it must be having the opposite effect on me because it makes me not hungry and wanting to keep going all day. No water weight gain and my house has never been cleaner.. I've been going through cabinets, cleaning out drawers and it's been quite a trip being on this drug.....
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of June 30th, 2009 :  Flaring for the last 7 or 8 months with blood, mucus PAIN..... Meds are: Prednisone 40mg daily,  Doctor told me to stop all other U/C meds until I taper down on the Prednisone.. I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn.. 
 
               http://www.myspace.com/77016897         


quincy
Elite Member


Date Joined May 2003
Total Posts : 30971
   Posted 7/11/2009 11:14 AM (GMT -6)   
Wow, happy to hear you've gotten a break from how you've been feeling and that your symptoms have improved....I hope you're able to taper with no problems.

Keep us posted...
quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5189
   Posted 7/11/2009 10:32 PM (GMT -6)   
Hey, there-- I have some closets that need to be cleaned, wanna help? (Just jivin'-- 'cause I remember what a steroid high does. It makes you feel like you could break boards with one chop.) Try to get at least 8 hrs rest every day so that your colon heals. Pred also made my heart pound at 40 mgm., when I was in a severe flare & dropped down to 105 lbs. Besides keeping your potassium up, you need to supplement calcium & vit D for the sake of your bones. Hopefully, the Pred will have you feeling well enough within 6 weeks that you can ease back to 5-ASA meds. Take care & don't push yourself. / Old Hat (30 yrs with left-sided UC ... [etc.])
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