Remicade only - no colazol or asacol?

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Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 6/30/2009 2:50 PM (GMT -6)   
Has anyone's doctor said this is okay? My doc said I don't have to take Colazol anymore. I was surprised, but
I am happy because I am nearly going bald from it. I did think, however, that it provided protection from cancer.
Just curious if most people stop.
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, Remicade (3rd infusion 6/8/09)

Discontinued: Prednisone, 6MP


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/30/2009 3:06 PM (GMT -6)   
he had me stop the asacol to see if it was making me worse, and I have not been any worse since stopping it. He has not suggested that I start taking it again and I just saw him today
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
20 mg Prednisone AM, 15 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/30/2009 3:10 PM (GMT -6)   
I think the reason Asacol, Colazol, etc provide protection from cancer because they keep the inflammation under control. The Remicade should do that as well. If the Remicade alone keeps you in remission, I'm not sure why you'd need the Colazol as well. But, I'm not the best person to answer that, since I'm not on Remicade.

You're still doing well, I take it?
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/30/2009 3:10 PM (GMT -6)   
My GI cut me from three times a day to two on Colazal. She might have taken me off except that my mother had colon cancer.
Judy
 
Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 6/30/2009 4:32 PM (GMT -6)   
I'm doing great! No reaction at all to the 3rd Remicade and absolutely no UC symptoms ever since. I don't even take the spasm meds anymore!

I had previously been on Colazol only and stopped (myself) because of severe hair loss -- which completely stopped when I stopped the Colazol but then I had the biggest flare of my life (landing me in the hospital twice) so I started taking it again along with prednisone, etc. I've been on it again for about 4 months and my hair has started falling out by the handfulls again. When I started Remicade GI said I could quit colazol. I questioned him but did it because of the hair loss. It does take a little while for the loss to subside after discontinuing it. My old GI had told me it was providing protection against colon cancer so I just wanted to see what everyone was told just to make sure that quitting is the right decision. It's hard enough to have UC without going bald from the meds!
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, Remicade (3rd infusion 6/8/09)

Discontinued: Prednisone, 6MP


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/30/2009 4:42 PM (GMT -6)   
I'm so happy to hear the Remi is working for you!
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Trying Applied Kinesiology & supplements.


Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 6/30/2009 5:37 PM (GMT -6)   
When I was on Remi, I didn't take any other meds.

Looking back on things, I wish I was on a 5-ASA and / or rectal meds, maybe the Remi would have worked for > 6 months! :(

For those of you who don't know my story, when I was first diagnosed with UC, it was after a week long stay in the hospital with sudden onset of severe D and bleeding. When I was discharged from the hospital, they put me on Asacol, Prednisone, and Rowasa for a couple of weeks before I got so sick again with UC that I had to be in the hospital again for almost 2 weeks. During those 2 weeks, I started Remi and stopped Asacol and rectal meds (and I was on IV steriods, took 3 months to taper off the Prednisone that time!).

Remi no longer working. Trying AZA, tapering off Prednisone again. We'll see if it keeps me out of the operating room! Good luck to you guys, I hope Remicade helps you!

Jen O
Age 34, Diagnosed with UC September 2008
Current Meds:
Prednisone currently on 20 mgs, tapering down 5 mgs every Wednesday
Will start Azathioprine 100 mgs 6/22/2009
Just started taking Apriso 4 tabs daily 6/11/2009 (SIGN UP FOR THE LOYALTY PROGRAM FROM SALIX!)
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 2000 mg per day
Multivitamin
Also tried: Remicade, Asacol, Rowasa, Cantasa


Hopeful4uc
Regular Member


Date Joined Jun 2009
Total Posts : 90
   Posted 7/2/2009 8:49 AM (GMT -6)   

Glad Remi is working for you!! I just started and having much improvement and more energy.  And no bleeding, very important.  I can't wait for the 2nd loading dose.  My GI said to stay on current med of Lialda 1.2 mg x 2 daily (aasocol).  He said that it's been founded to protect from the small chance of cancer.  I will ask him again about the benefit of staying of Lialda when I see him for my follow-up.  Good luck to you and all of us!!  Hope this keeps working!


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 7/2/2009 9:04 AM (GMT -6)   
I'm only on Remicade. My doc stopped the Asacol first thing after I started Remi.

Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Canadian Chick
Regular Member


Date Joined May 2009
Total Posts : 60
   Posted 7/2/2009 10:13 AM (GMT -6)   
I'm only on Remicade. My GI has never mentioned taking it in conjunction with other medicines.

Butterfly Kisses
Regular Member


Date Joined Aug 2008
Total Posts : 32
   Posted 7/2/2009 10:24 AM (GMT -6)   
I've been on Remicade for a little while now and my doctor said once I'm in full remission I can most likely get off all of my meds...colazal and Imuran. I hadn't heard about Colazal protecting against cancer. I'm assuming Remicade does as well otherwise I doubt my doctor would take me off of it. I'll have to ask during my next visit.
~Was diagnosed with Ulcerative Colitis in 2002.
 
Currently taking Colazal, Imuran, Prednisone, Entocort, Limotil occasionally and I am also on Remicade.


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 7/3/2009 7:44 AM (GMT -6)   
Well at least my doc isn't the only one who told me to drop the colazol! I'm thrilled about it because I am STILL losing tons of hour and I stopped 10 days ago hoping it would stop!

Also thrilled to hear others having having similar success with Remicade. Jen, sorry to hear its not working anymore! You poor girl! I hope the new meds give some relief! I was in the hospital 3 times in 2 months because of my UC so I'm definitely enjoying finally feeling better!
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, Remicade (3rd infusion 6/8/09)

Discontinued: Prednisone, 6MP

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