I just feel like I have no one to talk to sometimes... mostly because I feel like I talk about
my disease way too much or my status too much.. and people get annoyed.. I even feel like I post too much on here and sound whiny. I'm just really tired.
I woke up today because my stomach said I had to go the bathroom and had to go NOW..... I spent the next two hours in the bathroom... and lost the precious hour of sleep I usually get...and let me tell you.. it's needed. I get 10 hours of sleep a night! and I STILL feel exhausted and tired the next day.....
I work at a Preschool.. in the younger toddler room.. I need this job because hubby just lost 500 a month going to a new job.. and I just went fulltime a month ago because i WAS in remission... making it to work is getting harder and harder.. and being that I need someone to relieve me every time i need to go to the bathroom.. it's TOUGH. I'm so tired of everyone asking if I'm okay... and saying IM GOOD... when I really want to say.. well.. this morning i crapped for a full two hours and im still gassy and my stomach is in so much pain.. i was woken up early to go to the bathroom.. i haven't had breakfast.. i'm starving, but afraid to eat.. i feel weak and my joints hurt so bad.. and im on 4 diff meds... NO IM NOT OK.
My mom is so HECK BENT on the way I eat... saying if I ONLY ate this.. if I ONLY tried this... she said she's tired of hearing about
it because I'm not DOING enough to help myself.. WHATEVER WOMAN! GR. If she ONLY knew.
And now I have to wait on 6mp to kick in.. if it does within 6 months.. Dr. said 1 month... you guys say up to 6. I'm freaking out.. what IF it doesn't kick in.. and the Lialda and Rowasa don't put me in remission... and it gets worse.. ? Remicade.. surgery. I'm SO TIRED OF THIS!!!!!!!
and I just feel alone...and depressed.
Kara, 22F Married. Latest - Lialda 2 twice a day. Left Sided Colitis 40cm up...flare. Also IBS.
Medications: Lialda 2 twice a day, Align probiotic, Hyomax as needed, 6mp 50mg a day, Rowasa enemas.
I am so sick of this disease!