wow...My GI doc is a jerk! He's FIRED!

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P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/1/2009 2:59 PM (GMT -6)   
I've had the same Dr since 2004 but I'm now looking for a new one after today. This all started last Wed when I went to his office for this flare. Well I got stuck in traffic on the way there and was lucky to get to the bathroom before an embarrassing incident. Needless to say I was VERY upset when I got there. I was fatigued and flaring (so not eating), broke down in tears & had a panic attack right there in his office. He was COLD AS ICE and sent me to the ER. On Friday he had the nurse call in my Entocort.
 
I called the office yesterday to express concerns over side effects of the 9mgs of Entocort (joint pain, check pain, back stiffness/pain, heartburn, etc) and he proceeds to tell me that there shouldn't be any side effects but if I couldn't take it, I could lower to 6mg for a week and back to 3mg for a week.
 
I have an FMLA set up for Intermittant leave due to my colitis. I told him that I had reached my max days since I've been out since Thursday and that my company would be sending paperwork for a re-certification. He told me and I qouote "Well...I don't treat anxiety & you need to follow up with your primary Dr". ***!!??!! I was speechless. He is fired once I get this FMLA stuff striaght. So I called my Psych Dr and she is awesome. She told me not to worry and she would fill out the paperwork. I saw her on Monday and she took me out of work this week due to physical and mental stress related to the flare.
 
Sorry so long...need to vent!
Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


Lonie
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Date Joined Feb 2005
Total Posts : 6447
   Posted 7/1/2009 3:06 PM (GMT -6)   
Hey Dee, all venting is allowed here! :-) It's probably a good time to move on and meet a new doctor. Who knows, you might even find the new doctor has a new trick up their sleeve. I'm glad that you have taken the reigns because you are your own best advocate; remember that quality of life is very important and your doc should be concerned with this. Take care, and let us know if you have found a new doc.

Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


AMK77
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Date Joined Mar 2008
Total Posts : 678
   Posted 7/1/2009 3:25 PM (GMT -6)   
You know, if these GI's could feel what a flare feels like for ONE day they wouldn't be so SMUG!!!!
32 yr old female
Mild Pancolitis
UC since 2000 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Trying Applied Kinesiology & supplements.


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/1/2009 3:55 PM (GMT -6)   
My thoughts excatly!! I have 1 more appointment with the nurse in his office and then I'm gone. I called one of the top research hospitals in my area and talked to someone in the Find A Doc area. I have an appt in August with what will hopefully be my new GI doc. He is the associate professor of medicine, and co-director of the Inflammatory Bowel Disease Program at the Washington University School of Medicine. He is also in charge of lots of studies and trials. I'm thinking I upgraded! We'll see what his bedside manner is like.
AMK77 said...
You know, if these GI's could feel what a flare feels like for ONE day they wouldn't be so SMUG!!!!


Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


Christine1946
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Date Joined Aug 2008
Total Posts : 5957
   Posted 7/1/2009 4:35 PM (GMT -6)   
     I hear ya.  My GI doctor has the bedside manner of a dried up frog.  When I was admitted to the ER last year with a blood pressure of 210/110, flaring throughout the colon, bleeding , tenesmus.....he came into my room and asked WHY I came to the hospital.  I said.."Look, pal, I am almost 62 yrs old and feel like ****, my blood pressure is off the wall, the CT scan you just ordered shows inflammation throughout the colon...now you do the math and repeat your question."  My roommate could not believe her ears.  When my doctor left the room, she told me he would be history.  However, I knew what his freakin problem was....he was trying to push Remicade on me for two years and I have been refusing.  I listened to him five years before that and went on the 6MP....now it seemed to stop working, so he thought he would talk me into Remicade.  Well, I was exposed to the TB virus years ago and know of  a few cases where Remicade proved fatal in patients who harbor the TB virus in their system.  Even his associate, who took care of me throughout my hospitalization, agreed with me 100%.  I was seriously considering dumping him, even though he does have a good reputation as a GI doctor (not so good bedside manner), but his associate was sort of squashed in the middle..lol.  So....my old GI doctor (who is 13 yrs younger than I) and I had a huge clearing of the air at my first follow up visit....hugged and I told him....he has to respect my wishes and I will respect his.  We discuss ALL methods of treatment.  Oh, every now and then he will throw in the Remicade punch but I just roll my eyes at him and he laughs.  I can say we have an excellent doctor patient relationship...but you MUST stand your ground.
     Guess this comes from my having a Jersey girl attitude..lol.   I am now in another flare and agreed to up the 6MP to 100 mgm (not happy, mind you, but willing to give it a whirl).  He is closely monitoring my blood work, very important.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/1/2009 4:46 PM (GMT -6)   
wow...I probably would've slapped him! How insensitive. I just don't get it. They are supposed to be healers and not drug pushers. Compassion is all part of it, especially when you specialize in chronic diseases.

Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/1/2009 5:00 PM (GMT -6)   
You have a good Dr. I think my docs practice got too big. They used to take calls directly but last yr they went to an answering service. You literally cant get through to the office. The serive leaves them a message  they call you back within 24-48 hrs. That was the beginning of the end for me.
supersaw said...
my GI isnt smug at all. He is always very helpful....returns my calls whenever I leave a message, and generally does whatever he can to help me feel better every time I see him, but always lays out every option rather than just telling me what I HAVE to do.


Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/1/2009 5:49 PM (GMT -6)   

Never hurts to either get a second opinion or move on.  I respect my doctor because he knew he had come up against a brick wall with my case and sent me to a doctor with more experience with my age and UC.

The new doctor put me on rectal meds only and taper and discontinue prednisone.  He said at my age - Remicade is too dangerous - I am 69.

Good luck and stand your ground - you have to be YOUR OWN BEST advocate.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works!
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


WIMOMOFTHREE
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Date Joined Apr 2009
Total Posts : 654
   Posted 7/1/2009 5:54 PM (GMT -6)   
Some GI doctors bedside manners are horrible.  But would you be very friendly if you looked at butt's all day(Haha).  I just switched doctors because my old GI told me I need to get it through my head that I'm allergic to all 5 asa's.  All I did was ask him if I could use a different one or if I would have the same problem on all of them.  Also, anytime I asked a question he rolled his eyes at me.  When I was done with that appointment I went to the bathroom and just cried.  I never had a doctor make me feel so stupid.  I have a great GI now.  She answers my questions and explains things great.  I hope you find a GI you love.  Best of Luck!

Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 7/1/2009 7:02 PM (GMT -6)   
My GI does have intestinal troubles, not sure what exactly, but alludes to symptoms sometimes. I know it has made him a lot more compassionate to what his patients are going through.
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

16 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 6/06/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 7/1/2009 8:08 PM (GMT -6)   
Sometimes doctors forget, or simply don't know what it feels like to be suffering and living with the thought of being sick on and off for years...perhaps there should be required courses on this very subject...
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5164
   Posted 7/1/2009 9:21 PM (GMT -6)   
What really stinks about your doctor's attitude: he turned cold when you broke down & cried in his august presence. Somewhere along the road he lost his basic humanity. You are absolutely justified in seeking out a new gastro & I wish you good luck at Washington U. Not that there aren't heels among the IBD subspecialists/professors, too, but many of them are very dedicated to helping patients get on with their lives-- so that's hopefully the kind of gastro you'll soon hook up with. Keep us posted! / Old Hat (30 yrs with left-sided UC ... [etc.])

lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 7/2/2009 12:20 AM (GMT -6)   
It is a must that you like your GI dr......especially because of the topic of conversation. My first GI was arrogant. I had a colonoscopy and he told me to come back in 2 weeks...went back and he asked me why I was there and I was too young to be having problems. (this made me question him as a dr.) Then I unexpectently became pregnant and he ended up taking me off all of my meds and told me I was fine to be off of them. My son is now 10 months old and I have been flaring since august of 2007. I switched GI dr after my son was born and have a wonderful GI. He is pretty young and listens to everything going on and I never feel rushed. Only problem is that I don't like his nurse. He always tells me I need to call him when something new comes up and not wait to my next appointment (you can tell he gets upset that I didn't call the office to let him know)....but I have to talk to the nurse first and that deters me from calling.  Last time I called when I had a fever while I was on azathioprine I talked to her and asked if it was something to worry about me and she told me absolutely not. Then I landed in the hospital with a very rare reaction to the med. Told my GI about this last visit.....he wasn't very happy about that and all and was shocked for her to say that.


Colonoscopy on 4/23-diagnosed with severe ulcerative proctitus
 Meds:
12 Asacol/day - don't think it actually is working
proctofoam at night
prednisone (10 mg) tapering - upped it again til august 6
Vitamin D
Calcium 
Azathioprine (50 mg)   serum sickness reaction 
pentasa  didn't work
canasa   didn't work
 
 
Waiting to feel healthy again and waiting on the next plan of action since can't take azathioprine....
 
 
 

Post Edited (lovemyboys09) : 7/2/2009 12:24:32 AM (GMT-6)


gurgling tummy
Regular Member


Date Joined Aug 2006
Total Posts : 166
   Posted 7/2/2009 3:59 AM (GMT -6)   
I got very lucky with my GI, he has done more for me then my primary care has to help with my other conditions because he believes that when my whole body is better then my stress will be lower and have better colon health. He told me that if I ever had problems or started bleeding again to notify him immediately. Well Tuesday was the first day that I put that to the test and I was in his office within a minute of letting him know I was there. I was amazed.

My last GI in Nebraska told me that I didn't have UC and that I was just being a baby and making things up. Yeah, he was gone that day. It's so hard to find a good doc no matter the specialty.
*~~*Emily*~~*
Diag. Aug 06 (Proctosigmoiditis), finally diagnosed with Fibromyalgia 12 August 08, Paxil (1 a day) for Depression & anxiety, Azathioprine (1 every morning)Morphine (three a day) for pain, Tramadol (as needed for breakthrough pain),  Fioircit (for migrains), Phenergran (for nausea), Prednisone (10 mg tabs 4 a day), Omeprazole (for gerd from the pred), Tylenol PM (to actually get some sleep every once in a while), Calcium (for osteopenia), aloe juice (2Xs a day), chinese herbs for energy. And now Pred


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 7/2/2009 7:15 AM (GMT -6)   
I'm very lucky in that my GI is simply the best- he always returns my calls on the same day, he never shrugs off any questions I have, he's open to alternative medicines & supplements, he doesn't push steroids or drugs on me, but does explain what we have available to use. He goes the extra mile all the time- I called him last week to get his opinion on colo-rectal surgeons at a Boston Hospital- my insurer will allow treatment there, but not at his preferred hospital- he immediately started going thru his list of names, then called the Boston hospital to speak with his buddies there about a "special case" (me), then called me right back with the names of 2 surgeons. This is for a fistula repair. My only complaint is that he does tend to push surgery, every time I see him. On the one hand, he has a point- I'm stillk suffering symptoms despite being on the big gun meds, & my scopes show active disease. I'm also tired all the time, run down, susceptible to any old bug from the meds I take, etc. So yes, surgery would be more than called for in my case. But..... he knows that unless I show dysplasia I won't be making that decision. He's the first & only GI I've ever had- I have gone for 2nd opinion consults with other GI's who work at top-notch hospitals, at his urging, just to see if they had any suggestions we hadn't tried yet. So.... I can't imagine having to deal with both UC & an unsympathetic GI. It must be horrible. You need to find a doctor that will work with you, & respect how you're feeling- otherwise it's counter-productive.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1907
   Posted 7/2/2009 7:30 AM (GMT -6)   
I agree with Adam, they are getting paid a ton of money and if they can't be nice to you, fire their a**. I think most of them go into it for the money anyway. Perhaps socalized medicine here would help with that! Only people who enjoyed it would go into it. Also, it would be nice if a few of them knew what it felt like to be so sick with IBD, ya know???

Sorry that happened to you. I hope you are feeling better soon.
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 7/2/2009 7:59 AM (GMT -6)   
If you're not happy with your treatment - in any way - you should seek another doctor. There are plenty of duds out there but some good ones, too. Don't feel like you're stuck with whomever you start off with. They all have different personalities and treat IBD differently. Some favor steroids; some favor immunosuppresants, etc. Finding a doc who also suffers isn't a guarantee of compassion. My first GI was an IBS sufferer and still was one of the most discouraging and inconsiderate docs I've tried.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/2/2009 9:17 AM (GMT -6)   
Thanks so much. You guys are awesome. I went down to 6mg of Entocort yesterday. I had a TERRIBLE night with leg pain, anxiety and sleeplessness. I think I'm going to just stop taking it. I haven't even been taking it for a whole week so I don't think it will hurt me not to slow taper, especially considering the reactions I'm having to it. I will never do this again. I'll just try to mange the flares. I'm sensitive to so many meds. I should've trusted my gut devil (terrible I know) instinct.

Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/2/2009 9:19 AM (GMT -6)   
Don't just STOP entocort cold turkey! You can REALLY cause yourself some serious health problems doing that.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/2/2009 9:22 AM (GMT -6)   

After trying everything with mesalamines - can't tolerate - and enemas, etc. I am down to "managing" as you say at least for now - tapering prednisone and will be off in two weeks.

My new gastro specialist with 30 years experience put me on rectal meds only.  I am using Cortifoam and Anusol which is VERY easy.  He recommended three times a day for now - I am lucky to get in two and my condition is improving.  Less urgency, two to three BM's a day - pretty normal.  Still have blood and mucous on stool but not significant.  He told me not to worry about that now unless I become anemic.  He said it would take a while and maybe not go entirely but "manageable".  Certainly better than all those side effects - to live with!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   
Cannot tolerate mesalamines.  New specialist (June) - Cortifoam and Anusol three times a day for now.  Hope it works!
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/2/2009 9:23 AM (GMT -6)   
Really? Even if I've been on it less than a week? These side effects are messing me up. I sleep 3 hrs a night and anxiety is terrible. I had weaned down on my anxiety meds before this flare and I dont want to have to go back up. It was brutal to get to the level I was at.
fruitgirl said...
Don't just STOP entocort cold turkey! You can REALLY cause yourself some serious health problems doing that.


Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/2/2009 9:29 AM (GMT -6)   
Well, I'd assume that you have to taper it like you do pred. I know it's not systemically absorbed, but I still imagine it suppresses your adrenal glands a bit. Maybe I'm overreacting, but I don't want you to really mess youself up!

I'd call your pharmacist since your GI is a jerk! :)
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/2/2009 9:40 AM (GMT -6)   
Great idea! I'll call him now.
fruitgirl said...
Well, I'd assume that you have to taper it like you do pred. I know it's not systemically absorbed, but I still imagine it suppresses your adrenal glands a bit. Maybe I'm overreacting, but I don't want you to really mess youself up!

I'd call your pharmacist since your GI is a jerk! :)


Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/2/2009 9:46 AM (GMT -6)   
pharmacist says I should be fine stopping since I haven't been on it long. Hopefully this anxiety will go away soon.
Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 7/2/2009 9:47 AM (GMT -6)   
Good!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently taking Apriso (4 pills ONCE!! daily), Rowasa twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (25 mg).

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