I hear ya. My GI doctor has the bedside manner of a dried up frog. When I was admitted to the ER last year with a blood pressure of 210/110, flaring throughout the colon, bleeding , tenesmus.....he came into my room and asked WHY I came to the hospital. I said.."Look, pal, I am almost 62 yrs old and feel like ****, my blood pressure is off the wall, the CT scan you just ordered shows inflammation throughout the colon...now you do the math and repeat your question." My roommate could not believe her ears. When my doctor left the room, she told me he would be history. However, I knew what his freakin problem was....he was trying to push Remicade on me for two years and I have been refusing. I listened to him five years before that and went on the 6MP....now it seemed to stop working, so he thought he would talk me into Remicade. Well, I was exposed to the TB virus years ago and know of a few cases where Remicade proved fatal in patients who harbor the TB virus in their system. Even his associate, who took care of me throughout my hospitalization, agreed with me 100%. I was seriously considering dumping him, even though he does have a good reputation as a GI doctor (not so good bedside manner), but his associate was sort of squashed in the middle..lol. So....my old GI doctor (who is 13 yrs younger than I) and I had a huge clearing of the air at my first follow up visit....hugged and I told him....he has to respect my wishes and I will respect his. We discuss ALL methods of treatment. Oh, every now and then he will throw in the Remicade punch but I just roll my eyes at him and he laughs. I can say we have an excellent doctor patient relationship...but you MUST stand your ground.
Guess this comes from my having a Jersey girl attitude..lol. I am now in another flare and agreed to up the 6MP to 100 mgm (not happy, mind you, but willing to give it a whirl). He is closely monitoring my blood work, very important.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.