Totally Confused - Can anyone help

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Kayspain
Regular Member


Date Joined Jan 2009
Total Posts : 39
   Posted 7/1/2009 5:51 PM (GMT -6)   
Hi all,
 
I saw my GI today and am totally confused and so is GI. I had a colonoscopy done last November by surgeon colon looked normal but biopsy results showed mild to moderate resolving colitis. (Symptom Free at time of colonoscopy). Was put on Dipentum as maintenance and was referred to GI. The GI insisted on doing a repeat colonoscopy which I had done 2 weeks ago, after colonoscopy GI said that the rectum and lower colon was inflamed with an ulcerated area just above the retum, he changed my tablets to Mesalizine and started me on Predfoam. So when I saw GI again today, he said that the biopsy results were normal and he can't understand how as there was definite inflamation at time of colonoscopy (was having some symptoms and still am) and even showed me pics of it. Bloods also show levels of inflamation. He wants me to continue taking medication and has scheduled me for a MRI scan of the small bowel.
 
Does anyone know why colonoscopy and bloods show inflamation but biopsies are normal, and when colonoscopy was normal biopsies showed colitis?
 
Is there any other reason other than colitis that the rectum and colon are inflammed with normal biopsies?
 
If anyone can help I would be very grateful as I am so confused it is like the docs are saying I have UC, I haven't UC but still want me to take meds for UC.
 
(Family History of Crohn's)

37, Female
Proctitis in 2000
Diagnosed in November 08 with colitis (By surgeon)
Medication
Dipentum Olsaline Sodium  Mexavant XL - Mesalazine
Ciprofloxcin  Predfoam Rectal Foam 20mg
Nexium 20mg Daily
Iron Supplements
Probiotic -Super8


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 7/1/2009 7:13 PM (GMT -6)   
Do you have a copy of the results? It is possible that your biopsies were mixed up with someone else's.
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 7/1/2009 10:35 PM (GMT -6)   
How much experience does the cytologist have? That's really the critical factor when it comes to biopsy analysis. It sounds like your gastro wants to rule out Crohn's if at all possible right now. I'm wondering, though, why he put you on Dipentum for maintenance-- because that med is not the latest word, by any means. I took it in the 1990s, but my gastro was happy to switch me to Colazal when it came on the market ca. 2003, and stated that it's a better formula for combatting D, which I found to be true. / Old Hat (30 yrs with left-sided UC ... [etc.])

Kayspain
Regular Member


Date Joined Jan 2009
Total Posts : 39
   Posted 7/2/2009 4:38 PM (GMT -6)   

Hi,

Thank you both for your replies.

I don't have a copy of yesterday's results, the GI did show them to me and each one just said normal mucosa. I do however have a copy of the results from the last biopsies - Mucosal oedema with loss of vascular pattern and granularity consistent with resolving mild to moderate colitis.

A few months before colonoscopy I had been very ill with very high inflamation levels, high white cell count and was also anemiac and had to take Cipro for over 3 months as every time I stopped taking it within a week I was very ill again. Was hospitalised with it on two occasions, but the docs kept saying it was a kidney infection even though the urinalysis only always came back with mixed growth. A friend of mine who is a nurse in Australia said I should have a colonoscopy as it sounded like IBD. So the first colonoscopy was done at a private hospital but as my health insurance wouldn't cover another colonoscopy for 3 years, and GI insisted in doing one I had to go public. So colonoscopys were done in two different hospitals.

The surgeon put me on Dipentum temporarly until I was seen by GI as he said it had very little side affects...so I think that was his reason for it. The GI changed it to Mexavant XL - Mesalazine on day of colonoscopy as I had alot of inflamation in rectum and lower colon and he said it was obvious the dipentum wasnt working. He even showed me pics of the inflamed area. Thats why I can't understand how biopsies were normal.

Apologies for long reply but thought it might help you to understand why I am so confused.


37, Female
Proctitis in 2000
Diagnosed in November 08 with colitis (By surgeon)
Medication
Dipentum Olsaline Sodium  Mexavant XL - Mesalazine
Ciprofloxcin  Predfoam Rectal Foam 20mg
Nexium 20mg Daily
Iron Supplements
Probiotic -Super8

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 7:21 AM (GMT -6)
There are a total of 3,005,022 posts in 329,189 threads.
View Active Threads


Who's Online
This forum has 161760 registered members. Please welcome our newest member, Adrianna1023.
250 Guest(s), 3 Registered Member(s) are currently online.  Details
Sherrine, 61Impala, Mamatomypeas