prednisone vs. entocort

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kate22
Regular Member


Date Joined May 2009
Total Posts : 227
   Posted 7/2/2009 2:29 AM (GMT -6)   
i am confused.  i have UC and am currently on prednisone to get out of a bad flare.  i have been reading some posts about enotocort, which i am under the impression may have fewer side effects than pred.  (i have terrible side effects from pred).  this is the first i am hearing about entocort and i am wondering why my dr hasn't mentioned/tried it for me.  it makes me mad!  is entocort available in the US and is it used for UC?  has anyone had great results with it for UC flares?

Butterfly Kisses
Regular Member


Date Joined Aug 2008
Total Posts : 32
   Posted 7/2/2009 10:36 AM (GMT -6)   
I have used Entocort a few times and it's worked every time for me. My doctor refuses to put me on Prednisone for any lengthy amount of time because of the terrible short and long term side effects. The first couple of flares I've had my doctor gave me a small dosage of Pred for a few days only and then I was on Entocort for about 6 months or so and once I started to feel better I got off of it. Entocort takes about a month to get into your system and start working though so you won't feel better as fast as you would on prednisone but I find the end result is the same. For me I haven't noticed any side effects from Entocort but the short time I was on Prednisone (less than a month) I had a ton of awful side effects. Yes you can get Entocort in the US and yes it can be used for UC but some doctors say it's a Crohn's only drug, a friend of mine requested it for her UC instead of prednisone and her doctor turned her down saying it's only for Crohn's. If you have a good doctor that listens to you and knows the meds available I think you should be able to get it. Just do your research and take it in to your next visit and ask about it. It can't hurt to ask. Maybe your doctor has a specific reason why he hasn't put you on it but maybe not.
~Was diagnosed with Ulcerative Colitis in 2002.
 
Currently taking Colazal, Imuran, Prednisone, Entocort, Limotil occasionally and I am also on Remicade.


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 7/2/2009 11:31 AM (GMT -6)   
Entocort did not work for me, but I know some people have good results from it. It did not have many side effects, just a little "off" feeling and some dizziness that eventually went away. It is very expensive. We have decent insurance and still it was over $200.00 month for the prescription. I agree that it certainly can't hurt to talk to your doctor.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/2/2009 12:51 PM (GMT -6)   
I was confused about that as well. it seems i should have been offered that instead of 6 months+ on pred since it seems the side effects/risks are less
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
20 mg Prednisone AM, 15 mg PM (tapering from 60mg a day)
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


Butterfly Kisses
Regular Member


Date Joined Aug 2008
Total Posts : 32
   Posted 7/4/2009 12:32 PM (GMT -6)   
I think every doctor has thier preferences when it comes to meds and surgery. It's hard to fully understand for me anyway since I'm not a doctor but that is why I do my research and bring stuff up to my doctor and ask him about them instead of waiting for him to try something new. My doctor is always willing to listen to me and he usually goes with what I ask unless he really doesn't think it will work but then he'll explain why it won't work. He wants me to be happy so if I present a reasonable request to try a different med that has the potential to help me he's for it. I know not everyone is that lucky though.
26 years old...Diagnosed with Ulcerative Colitis in 2002

Currently taking: Colazal 750mg 3 pills 3x a day, Imuran 50mg 3 pills 1x a day, Remicade & B12 Injections.

Have taken: Asacol, Lialda, Entocort, Prednisone, Limotil, Nulev, Librax, Canasa & Rowasa.


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 7/4/2009 5:00 PM (GMT -6)   
I believe that entocort is more "topical" vs. systemic (lower side effects). I also recall learning that it works best near the end of the the small intestine, the terminal ilium and only the right side of the large intestine, so not really beneficial if the bulk of the disease is left sided. I think it works better for Crohn's than UC.

My son has left sided UC and entocort did not help him at all, symptoms progressed while he was on it.
Julie

Mom of Son 17 UC dx 07/02, Prednisone 30mg, Lailda 2 am & 2 pm, Azasan 100mg, Cortafoam (when flaring), folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 10mg am & 10mg pm, Colazal 750mg x 4, 6MP 25mg, Iron, Vit/Min., Culturelle


WIMOMOFTHREE
Veteran Member


Date Joined Apr 2009
Total Posts : 654
   Posted 7/4/2009 5:45 PM (GMT -6)   
My GI told me that entocort works the best for people with ulcerative colitis only in their rectum or right side of colon.  Mine is throughout my whole colon and very severe.  She told me it most likely wouldn't work for me.  I'm on my second dose of pred.  I haven't had anyside effects yet but I'm waiting.  Last time I was on it was a month and a half ago and I had 20mg for 7 days then 15 for 7 then 10 for 7 then 5 for 7 then off it.  It worked great but about a week off it I was going to the bathroom about 10-15 times a day again.  I started 20mg of pred.  about a week ago and she wants me to stay at that until I start remicade.  So, it will be interesting to see if I get some side effects because I will be at 20 mg at least for a month before I taper down.  Pred makes me feel normal again for alittle while anyway.  I just scared of the long term side affects of being on pred.  All I notice is I'm very tired but I'm always very tired.  I would ask your doctor.  He will at least give you an answer as to why he doesn't think it will work or if it would.  Good luck.
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