Quick Asacol Question

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aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 7/2/2009 2:56 PM (GMT -6)   
I took Asacol a couple of years ago and it immediately exacerbated the flare I was in.  I am currently trying it for a second time and it seems to be working.  The only problem is that the side effects are terrible.  I have dizziness, a weird trembling feeling and ringing in my ears off and on.  I really want this to work and I guess my question is is there any chance these side effects will start to diminish in time.  I have been taking it for over three weeks now.  The side effects haven't eased, but they haven't gotten worse either.  Any ideas?  Thanks.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


shortstuff1
Regular Member


Date Joined Feb 2009
Total Posts : 80
   Posted 7/2/2009 3:13 PM (GMT -6)   
Hi aned!

I had some side effects when I first starting taking Asacol that included dizziness, becoming naucious (sp?), and headaches. They subsided after about the first month. I every now and then have the side effects but not enough that I would be worried. You may want to ask your doctor though because your side effects sound a little more serious than the ones I had.
29 yr old recently diagnosed with UC in Nov 08. Taking Asacol 3 times daily and Steriod enemas 2 times daily. no children, very active;
Started Remicade 6/25/09


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 7/2/2009 3:29 PM (GMT -6)   
Thanks shortstuff. I will talk to my doctor, if they persist. I hesitate to do that too soon because he will say stop taking it and honestly, I need an inexpensive maintenance medicine that will work to keep my in remission. I hope this does the job.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/2/2009 7:23 PM (GMT -6)   
Everything you stated are typical side effects of Asacol. Definately let your doc know if they continue or become bothersome.
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Lou95
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 7/2/2009 11:43 PM (GMT -6)   
The side effects may diminish over time. I had the ringing and buzzing in my ears for a couple of months and then it went away. I like the Asacol because since I had ulcers, reflux and other GI problems since 1975 it was one of the few meds that doesn't upset my stomach.
Age/Sex:  52 & female
Diagnosed:  2005 pancolitis
Medications:  800 mg. Asacol twice a day - in remission; Two 1200 mg. fish oil supplement nightly.   Effexor-XR 150 mg. daily
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 7/3/2009 1:51 AM (GMT -6)   
How much asacol are you taking?

No problems for me on asacol for 20 years...but I've never been on more than 6 most of the time..once went up to 8 for about 6 months..but no noticable side effects.

What other meds are you on aned?

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 7/3/2009 3:36 PM (GMT -6)   
I used Asacol and found I did better with Colazol. Less side effects for me and the same class of drug.

Butterfly Kisses
Regular Member


Date Joined Aug 2008
Total Posts : 32
   Posted 7/3/2009 8:10 PM (GMT -6)   
I found out right away when I was diagnosed that Asacol did not work for me and all of the people I know that are on it or have been on it said it never did anything for them. As for the side effects I agree with everyone else, they should subside but like the pamphlet says "if they persist or worsen" talk to your doctor. Colazal has been working for me...your list of meds says that is what you are currently on so which is it Asacol or Colazal? It's weird how 1 of the 5 ASA's will work while the others wont when they are the same drug essentially. But definitely try one of the other ones if neither Colazal or Asacol works for you. I switched to Lialda for a short period of time (less pills to take per day) but I found I had more side effects from it and didn't notice any difference between the Colazal and Lialda in terms of helping me to feel better so I just went back on Colazal. Colazal has a generic now so that one is cheap also. I don't know about the others though.
~Was diagnosed with Ulcerative Colitis in 2002.
 
Currently taking Colazal, Imuran and I am on Remicade.


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 7/4/2009 5:36 PM (GMT -6)   
I am taking six Asacol a day.  I just finished a taper off of Entocort.  The entocort did nothing, but it seems like the Asacol is helping. No bleeding, frequency is down, urgency is better...still some pain.  That is all a good thing, but the dizziness appears to be getting worse.  I just really want to find something that helps for the long term.

37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 7/5/2009 2:09 AM (GMT -6)   
Hi...It's possible that your dizziness is caused from the asacol, but if it's getting worse, you may have an ear infection (not all feel them) or something else going on vestibular-wise. Have you had your B12, Vitamin D, thyroid or other enzymes checked?

Do you have high blood pressure/low blood pressure?

If all of the above is fine, do see if you can get in to see an ENT.

Keep us posted as to if you're having continued success with the ASacol.

You should also be on rectal meds...my first suggestion would be Rowasa (or other if you're not in the US)..but you could ask the doc for a steroid foam enema..low dosage to start.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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