Scared about hubby's symptoms...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

WorriedWifey
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/2/2009 3:36 PM (GMT -6)   
After reading a lot of posts I feel a little overwhelmed and grateful at the same time. HH was in the hospital on November, abdominal pain, bloody stools, etc..They had him so doped up he barely remembers, ran a bunch of tests. One day UC, one day IBS, one day Diverticulitis and so on. He was taking Prilosec for a previously diagnosed duodenal ulcer.  A month after it was all said and done, they gave him the scopes from both ends, all clear, like a textbook-we were elated. Told him to keep taking the P. Now he's having diarrhea, blood, mucous, some pain. We lost our insurance in January. Went to GI she switched him to Nexium. I had no idea about flare ups or how long they lasted. I don't know what to feed him, low fiber?Low density? I told him to keep taking a multi-v and have him eating probiotic yogurt everyday. We're both scared. Thanks for reading, I feel a little better seeing all these posts.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5957
   Posted 7/2/2009 6:27 PM (GMT -6)   
     So sorry about your hubby.  I've had UC for almost eleven years.  My flares have lasted anywhere from two months to seven months.  I know, not an easy fix, unfortunately.   My colonoscopies look good when I am not flaring.  That is the way with this disease.
     Presently, I am flaring after only a seven month remission.  My main problem is ulcerative proctitis.  Your husband's symptoms sound a lot like mine.  While flaring I stick to a low residue diet.  However, I also have diverticulosis along with the UC and the diets conflict for each disease.
     This is the diet I am now following.  For breakfast I eat rice krispies with Silk because I cannot tolerate milk while in a flare.  I put a teaspoon of honey to sweeten and 1T of Red Mill Ground Flaxseed Meal (most grocery stores in this area..south Jersey, carry this and it is excellent).  I usually cannot tolerate fiber while flaring but the ground flaxseed meal is great.  Lunch is usually Activia yogurt with 1T of the flaxseed meal again.  I also eat 1/2 banana.  Tuna with just a smidge of mayo is an alternative too.  Dinner: baked salmon, 1/2 sweet potato with Smart Balance and well cooked vegetable...either string beans, carrots or spinach.  For some reason or other I crave unsalted saltine crackers and I put Smart Balance on them too.  I drink decaf green tea.  It is best to stay away from anything with caffeine.
     Good luck to both of you.  Losing your insurance must be devastating.  If I didn't have this prescription plan I would be lost.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


WorriedWifey
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/3/2009 9:29 AM (GMT -6)   
Thank you so much for your reply. I think I'm getting the idea with the diet, he's definitely cut out all the caffeine and a lot of sugar. I can't get him to eat certain things but will keep trying. He's wary of every pill i try to give him, maybe I'll try the flaxseed but the seeds scare him. He won't even consider the fish oil, he's convinced it will give him more diarrhea. What a struggle! The insurance thing is a nightmare. We have a barber shop and our self-employed policy went from 454 a month to 635-ridiculous!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5957
   Posted 7/3/2009 12:14 PM (GMT -6)   
     Sorry to hear that.  My neighbor was a barber and they had a lot of insurance problems too, but he passed away about 15 yrs ago at a young 57 yrs old from cancer of the esophagus.   The doctor was telling him to take pepsid for years and he suffered with upper gastric distress...never had it checked out,  poor guy. 
     The flaxseed meal I told you about are not seeds.  Seeds would really irritate him.  This is found in the grocery store (at least in south Jersey it is).  It is called Red Mill ground flaxseed meal.  It is ground to a pulp so not irritating to the colon.  The fish oil shouldn't give him diarrhea.  My nutritionist suggested the fish oil capsules and probiotic to me but I only take one fish oil capsule daily. 
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


WorriedWifey
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/3/2009 12:23 PM (GMT -6)   
I've seen that brand in Shoprite i think. Barbering is a stressful job, always on your feet. I thank you for your advice. I hope you have a happy fourth! We're closing the shop for the weekend, first time in 8 years.  I told HH he just needs to relax. No guests, just a quiet family weekend, i can't wait! btw, he's only 36. He grew up very poor and often hungry in another country. my theory is that his digestive system just destroyed itself. I'll keep trying though to make it better! PS 62 is not old at all:)
 

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5957
   Posted 7/3/2009 12:28 PM (GMT -6)   
     Let me guess..Italy?  That is where our neighbor was from.  Yes, I purchase the flaxseed meal at Shoprite too.  62 may not be old but I feel like 92 while in this flare..lol.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


WorriedWifey
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/3/2009 4:38 PM (GMT -6)   
Guatemala. We've been to see his family. He grew up in a shack, literally, with a kitchen outside. Outhouse. Since he's been here he's built a house for his Mom and brothers with water and a bathroom. God Bless America!

Butterfly Kisses
Regular Member


Date Joined Aug 2008
Total Posts : 32
   Posted 7/3/2009 7:28 PM (GMT -6)   
I'm no doctor but if your husband is going in and out of flares I'm thinking it's IBD (irritable bowel disease like UC or crohn's) not IBS. With IBS there isn't much you can take pill wise (prescription anyway) to stop it but with IBD it's most likely that a person will need medication to help control the disease. If it's left untreated for too long your husband can have some serious complications a lot more sick. The no insurance thing is really hard. I'm sure there are cases of people who have just randomly gone into remission or who've found holistic ways that work...maybe you should create another post and title it "holistic remedies???" and maybe that will catch the eye of someone who knows of alternate solutions rather than prescription drugs that are probably super expensive w/o insurance.

As for how long a flare last is way to difficult to say since everyone's bodies are different. Mine have lasted a year or so but the reason I ended up going into remission is due to the medications I'm currently on and a few that I had to take up until I got into remission. I personally have never went into remission w/o being on medication, I've actually flared when I've gone off my meds. And then there is my friend who has never been in remission and she's had UC for 6 years and she's taking prescription meds. But what works for one doesn't always work for the other. So I guess what I'm trying to say is that I think trying to find someone who knows about holistic methods of treatment would be your best option until you can get insurance or something. As for a diet my doctor always tells me "bland food" when I'm in a flare. It gets old after a while but sometimes you just have to do what you've gotta do to help ease the symptoms. Absolutely no red sauce like spaghetti sauce or tomatoes, nothing with acid so oranges, lemonade etc...sugar tends to cause me to have D more often so he'll probably want to stay away from that if he finds it does that to him also. Fiber only makes me go to the bathroom so if he's already having a lot of trips to the bathroom a day then i wouldn't personally recommend that. Avoid Fried food, spicy foods, chocolate, broccoli, cabbage, beans, oh and possibly anything that is "diet", i've found that whatever they use in diet pops, candies, gum etc often increases my chances of having to go to the bathroom especially when I'm in a flare. Fiber is better for constipation. Also dairy is probably good to avoid along with lettuce... basically anything that is hard for a "normal" person to digest he should stay away from since it will be 10 times harder for him to digest. If it's Diverticulitis that he has then he should not have any seeds whatsoever so that means no strawberries, raspberries, popcorn etc. He should keep a food journal to see which foods cause him more or less pain since everyone is different. There are foods that I tolerate w/ no problems that my friend can't even touch. Oh also avoid any medication whether it is over the counter or prescription that cause blood thinning if he's bleeding because it will make that worse. IB profin is one to stay away from and excedrin since it has caffeine in it, Tylenol is ok though.

This is so hard to give advice on sometimes since some things work for some people and some don't. It's all about trial and error really and just figuring out what works for you. This might sound harder to do than say and a little corny but you both have to try to stay positive and hopeful because getting depressed, stressed and worried will only exacerbate his symptoms. I know it's hard to not be worried and stressed all the time when you're constantly in pain and going to the bathroom but you have to try really hard to not be. It's an awful cycle. My first flare ever happened during a really stressful time for me, stress doesn't cause IBD but it does make it worse.

The ccfa.org website has a lot of good information for crohn's and colitis as it is The Crohn's and Colitis Foundation of America.

Sorry for such a long response. I hope I have helped in any way. This is a tough disease to go through so anything I can do to help someone else I'm happy to do. I hope he finds relief soon!
~Was diagnosed with Ulcerative Colitis in 2002.
 
Currently taking Colazal, Imuran and I am on Remicade.


WorriedWifey
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/6/2009 3:57 AM (GMT -6)   
The journal seems key. I'm going to try and get some lactaid today nad flaxseed. Thanks for the advice, every bit helps. He only takes Nexium right now. Everything seems to go right through him. Gotta keep my chin up.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 19, 2018 3:49 AM (GMT -6)
There are a total of 2,953,036 posts in 323,965 threads.
View Active Threads


Who's Online
This forum has 162049 registered members. Please welcome our newest member, Swantao.
268 Guest(s), 5 Registered Member(s) are currently online.  Details
Tanya844690, Angel07, lazyminimoo, Imbeccak, DRR