I have only been on it once. It worked, but it didn't work as well as Humira has been working for me. I was fortunate in that immediately after my first major flare, I was gotten into a Humira trial, and things have been going really well so far. Of course, I do wonder about
the potential side effects of the Humira that they just don't know yet (like how pred was once seen as a miracle drug), but one step at a time.
I hope to never have to go on pred again. I would definitely be looking into other medical options-IDK all of them, but there is Immuran, remicade, 6mp, Humira might be an option (it isn't approved yet, but some have been able to get it-and they might be trials going on near you).
My GI never mentioned pred and didn't put me on it. My original GI was talking about
Immuran, and then I got into this bad flare as I was switching GI docs. The docs at the hospital got me on the pred, and then the new GI kept me on it because it was standard operating procedure for the Humira trial and they had a set schedule for tapering, assuming the Humira was working. To be honest, I would push for discussions about
different med options before resigning myself to another round of pred.
34 years old, stay at home mom of 2 girls, ages almost 4 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Off of canasa because of severe joint pain (side effect)