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lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 7/4/2009 3:30 AM (GMT -6)   
I dont know if it is the weather as we have had a bit of a heat wave here in England or coming off pred 3 weeks ago but this last week i have been so tired and worn out without even doing anything also my legs ache all the time and feel so heavy finding it very hard to sleep even though so tired on a good night might get 5hrs bad night 3hrs which is not helping the 5hrs sleep is with taking zopiclone bms not to bad any ideas.
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 7/4/2009 7:38 AM (GMT -6)   
have you tried some camamile tea. It has been hot here. And I hate London when it is hot. I keep waking up feeling like I am burining up. Its also because of the pred. Pred is hard on the body, you really need to take it easy and lie really still. Read a book. Doing too much will make you come out of remmission. I know this as I am holding my remission but I am really tired today. And i am typing this at work as I am strggling through today. Thats one of the worst things about UC is the tiredness. others really don't know how it effects you. I look at others and think wow I wish I had that energy.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning and 1 X250g Asacol every other evening
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 7/4/2009 8:12 AM (GMT -6)   
It is hard having UC because between all the meds making you tired as side effects and the disease itself causing fatique, plus a lot of use have to watch everything we eat you certainly do not have a lot of energy left over. I can certainly empathize with you. Lots of times I have to drag myself to work. I too wish I had the energy normal people have. Hang in there, you are not alone!

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 7/4/2009 1:00 PM (GMT -6)   
I get that way just before my period, my legs ache and I feel really tired.

BTW, I saw your posts about salad...iceberg lettuce is the one food I absolutely cannot eat. Even a little gives me terrible intestinal cramping. Which is weird because there is hardly anything to it! I always ask for all romaine salads, and can even tolerate fresh spinach now (in moderation).
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Arc
Regular Member


Date Joined Jun 2009
Total Posts : 25
   Posted 7/4/2009 1:05 PM (GMT -6)   
I too am experiencing extreme exhaustion but I live in America in the southwest. A very hot desert of doom. Tons of humidity and heat. I almost passed out in the store the other day but I blame the prednisone. When it hits it hits hard and has no remorse. The best thing to do I think is to relax by staying home and napping or if you have to leave walk slowly and try not to think too much. You might try some light exercise. I find if I do too little I cannot sleep. A book usually does the trick if I am trying to fall asleep. Tea is okay but I try to drink it about an hour before I sleep to avoid indigestion. A heating pad might help the legs. When my leg gets bad I try just thinking happy thoughts and using the heating pad.


Diagnosed in November of 2006 with UC (ileitis) though I had symptoms ,which were misdiagnosed as IBS and hemorrhoids, nearly 6 months before I finally went to a GI. Also have a bad arthritic right leg that hurts in my hip joint....at least I think it is arthritis though it could be directly tied to IBD.
 Colonoscopy in November of 2006 and took part in a Prednisone and Asacol taper program.
 No serious flare ups just moderate ones for nearly 3 years. It was nice....
 May 2009 experienced first serious flare up and now on prednisone 30mg daily and waiting for my next colonoscopy....yay.

Post Edited (Arc) : 7/4/2009 1:11:30 PM (GMT-6)


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 7/4/2009 3:55 PM (GMT -6)   

Ugh I know EXACTLY what you mean...the fatigue is the worst symptom for me. For the past 6 months on a lot of days I havn't been able to do anything much other than the absolute necessary (work etc). I have to plan my weeks out so that I don't end up doing too much on one day, and try to keep my days off work as free as possible. Maybe thats something you could try?! Its a complete pain to have to do, but it helps in the long run, otherwise you might end up getting even more tired by doing too much in one go.

I also take Zopiclone when I'm having a bad bout of sleeping (seems to be when I'm on a higher dose of Pred).


22 year old female, from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect! Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
20mg Prednisolone tablets, 100mg Azathioprine (started taking 11th May),1g Acetarsol suppository, Asacol suppository (alternating nights)1g Mesalazine granules x 2 
Motilium (anti sickness), 1.5mg Zopiclone (taken when needed for sleeping), 10mg Citalopram (anti-anxiety), Probiotic Multivitamins, Nutren Build up drinks. 
                             
                             

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